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babachi
12-17-2008, 12:37 PM
Jesse's on the regular floor now. They took him off the pca this morning and changed his dressings. He'll have oxycodone during the day and oxycontin during the night. They've lowered his dose of valium as well. He is running a low grade fever. The nurses had him up and in the chair yesterday evening and he was in the chair this morning. He walked from the bed to the door and back. Their hoping to have him walk a little in the hall later today.
With all the posts about constipation, I was nervous, but they've been giving him colase since EARLY yesterday morning. He's been drinking well since Monday night and had some saltines today. The nurses said Jesse's really strong and doing quite well.
I am craving a night with stretches of sleep lasting more than 2 hours! I feel like it was when he was an infant,"nap while the baby naps".
Thanks everyone for checking in.
Bethany

WNCmom
12-17-2008, 01:07 PM
BEthany--

It did occur to me as well that those early post-op days are a little like having an infant, sleep-wise. Don't worry, they'll be gone before you know it.

Mary Ellen

JenniferG
12-17-2008, 02:00 PM
Sounds good, Bethany. Hopefully Jesse will avoid the constipation. Keep up the good work Jesse!

Sherie
12-17-2008, 02:22 PM
It sounds like he's doing really well. Getting off the morphine so early is a very good thing, my daughter was on it too long but I didn't know that at the time. As soon as she was off, she perked up and started eating.

Hope everything continues so well, for Jesse. Take care.

Carmell
12-17-2008, 02:39 PM
Bethany - Thanks for posting about Jesse. Sounds like he's doing fabulous! He'll be out of that "newborn" stage very soon, I'm sure. I hope he continues to do well and he has a smooth and uneventful recovery.

gillespie
12-17-2008, 04:27 PM
So great to hear that Jesse is doing good. It is so funny I said that it was like having a newborn too the sleep part anyway, well alot of other things too. Before you know it he will be driving you crazy. Wish him well and tell him to keep moving it really is the best thing

Pooka1
12-17-2008, 06:41 PM
That all sounds great, Bethany.

Take care of yourself, too. Mary Lou (Snoopy) and some others gave me that advice.

sharon

pmsmom
12-18-2008, 09:24 PM
Glad to hear that Jesse is doing so well! :)

You rest up too!

I've seen several posts about others who've said their children have run low-grade fevers. What is that about? Does it usually resolve itself before they go home?

Marian

Carmell
12-19-2008, 11:25 AM
I've seen several posts about others who've said their children have run low-grade fevers. What is that about? Does it usually resolve itself before they go home?

Hi Marian,

Fever (especially low-grade) is often an indication of pain. The body is amazing. When in pain, the body is fighting with all its might to get rid of the pain. Fever is often a result. Braydon tends to spike fevers with uncontrolled pain (102+ for 20 mins, then it's gone). So yes, once the pain is controlled, the fever goes away.

Also, low grade fevers indicate mild infection. Sometimes it takes a couple days after surgery for the body to re-generate the blood supply and clean out the wound(s). Fever can mean many things, but they don't get worried about fever unless it goes high and stays.

HTH

pmsmom
12-20-2008, 09:26 AM
Thanks for the information, Carmell.

Another piece of the pie gets filled in. :)

Marian

WNCmom
12-20-2008, 03:00 PM
Bethany--

How is Jesse doing?

babachi
12-20-2008, 07:27 PM
We're home!!!! Jesse is feeling a little better today.
We spent a lot of time walking loops around the floors. After every nap, meal, whatever, we'd walk, so sometimes at 4am we'd be walking the halls. I'm surprised I didn't collapse with exhaustion. He's doing well getting out of bed, but he needs help getting settled into bed and chairs. Last night Jesse slept for 3-4 hour stretches.
The bathroom is tough. I feel bad for him that he needs help there. He's had a couple small BM despite the fact that he's been on stool softeners, laxatives, had a sopository and an enema!
Jesse is off the oxycontin and they lessened his dose of oxycodone to 5 mg. They put him on tramadol and he also has the valium. He was so groggy and literally would fall asleep within 20 minutes of taking the pills.
We're making progress!!
Bethany

Pooka1
12-20-2008, 07:55 PM
You certainly are making a lot of progress!

That's great!

Glad you are home.

sharon

pmsmom
12-20-2008, 08:11 PM
We're home!!!! . . .We're making progress!!
Bethany

Glad you all are home!

How long was his stay? Or have I not been checking the boards that frequently? Where has the time gone?

Marian

babachi
12-20-2008, 08:20 PM
Marian,
Jesse had surgery on Monday, stayed in ICU til Tues. afternoon and was discharged today, so 5 days post op.
Bethany

WNCmom
12-20-2008, 08:29 PM
Congratulations on getting home, Bethany. It will get easier from here, even the BM part. My son also got very groggy from the meds, and as soon as they were adjusted he was much more alert.

Sounds like Jesse's doing great!

Mary Ellen

gillespie
12-21-2008, 03:59 PM
Sounds like Jesse is doing very well so glad to hear. Is it not the best feeling to be back in your own home with the worst of this behind you. The pain and dependence will be over before you know it Danielle is doing pretty much everything for herself. It is very hard for them and their personal privacy but what are you going to do I was suprised how well Danielle took and appreciated the personal things. Merry Christmas to you and your family

babachi
12-23-2008, 10:04 AM
I know it will get better, but I really wish Jesse could sleep at night for more than 2 hours at a time! I'm exhausted and cranky. I know I shouldn't complain in light of what he's gone through.
Jesse's going for longer stretches in the day without meds and he was awake for a good chunk of the afternoon yesterday. His biggest complaint is stiffness, which I guess is better than pain. He is able to do more for himself and is getting up and around. He needs less help getting in and out of chairs/couches/recliners. Jesse's appetite is better and he's no longer constipated!:D
Well, I really think I should nap while he's sleeping.
Bethany

laurieg6
12-25-2008, 01:02 AM
Hang in there, it really will get better quickly from now on. The stiffness takes a while but does improve. Keep Jesse up and walking as much as possible and that will help a lot.

babachi
12-25-2008, 05:21 PM
Jesse has been doing great, recovering well,(except the sleeping at night). Yesterday about an hour before we were going to my in-laws (Jesse wanted to go for an hour or so), Jesse's dressing started dripping watery blood. My best friend, also an ICU surgical nurse, was at our house. She looked at it, said it looked okay, redressed it and told us what signs to look for. I called the surgeon anyway. He said to have Jesse lay on his stomach or side for he next 24 hours and if the bandage soaks, go to the ER and that he would call the following day.
Jesse had a hard time with not being able to go; he was real disappointed. My heart just broke for him.
As the evening went on, the bandage was still "bloody", but not soaked. Well, at bedtime he had a fever, 101.2. I called the after hours number, the doc on call was not too concerned as fevers do sometimes accompany spinal fusions, but he was going to email Jesse's surgeon. At 12:30am, his surgeon called and told me to head to the ER in the morning and he would notify his colleague on call.
They decided they wanted to reopen the incision to check for infection. And that he'd have to stay in the hospital for at least another 2 days. Jesse was so upset. He kept begging and pleading to just give him antibiotics and he's come back the next day. We all finally convinced him that it was in his best interest to do this now.
There was no evidence of infection, but the did find a blood/fluid pocket, which they drained. They also left 2 drains in his back after the closed him back up again. They said it was a good thing, because if we left it, he would continue to drain and the pocket would eventually become infected.
So, we're here at Children's again. We'll celebrate Christmas one day next week. When Jesse said to me "what a christmas present, huh?" And I said "the fact that you're okay IS the best Christmas present"
Hope you all are having a wonderful holiday.
Bethany

JenniferG
12-25-2008, 05:49 PM
Ahh Bethany. You are correct. It might have been so much worse. I can fully sympathise with Jesse though. I hope all's well soon and Jesse can come home and continue his recovery and enjoy some of the holiday season with family.

discombobulated
12-25-2008, 07:31 PM
Bethany -

Belatedly adding my voice to Jesse's cheer team :D

What a blow to him to have to go back for the wound cleaning - but definitely better than the possible alternative of nasty infection. You guys must have gotten such a fright with the bloody bandages - so relieved it was "minor".

Wishing Jesse a smooth recovery from here on out - & much more sleep for you both very soon! Hurray for Progress!! :D

BTW - after every surgery, with good pain control or not, I always get a low-grade fever for a few days. It's very common, apparently, & so long as it doesn't go too high (possibly indicating serious infection), my doctors/nurses are never concerned. I'm glad it came to nothing for Jesse, too :)

Take care, Bethany.

Carmell
12-26-2008, 07:21 PM
Bethany - please give Jesse our very best. This will be a memorable Christmas, not like he'd want it to be, but one that you can look back on and have such a sense of accomplishment when this is all over. Many more hugs and well wishes that he's one his way to a full and successful recovery. No more setbacks.

pmsmom
12-28-2008, 08:44 AM
Jesse has been doing great, recovering well,(except the sleeping at night). Yesterday about an hour before we were going to my in-laws (Jesse wanted to go for an hour or so), Jesse's dressing started dripping watery blood. My best friend, also an ICU surgical nurse, was at our house. She looked at it, said it looked okay, redressed it and told us what signs to look for. I called the surgeon anyway. He said to have Jesse lay on his stomach or side for he next 24 hours and if the bandage soaks, go to the ER and that he would call the following day.
Jesse had a hard time with not being able to go; he was real disappointed. My heart just broke for him.
As the evening went on, the bandage was still "bloody", but not soaked. Well, at bedtime he had a fever, 101.2. I called the after hours number, the doc on call was not too concerned as fevers do sometimes accompany spinal fusions, but he was going to email Jesse's surgeon. At 12:30am, his surgeon called and told me to head to the ER in the morning and he would notify his colleague on call.
They decided they wanted to reopen the incision to check for infection. And that he'd have to stay in the hospital for at least another 2 days. Jesse was so upset. He kept begging and pleading to just give him antibiotics and he's come back the next day. We all finally convinced him that it was in his best interest to do this now.
There was no evidence of infection, but the did find a blood/fluid pocket, which they drained. They also left 2 drains in his back after the closed him back up again. They said it was a good thing, because if we left it, he would continue to drain and the pocket would eventually become infected.
So, we're here at Children's again. We'll celebrate Christmas one day next week. When Jesse said to me "what a christmas present, huh?" And I said "the fact that you're okay IS the best Christmas present"
Hope you all are having a wonderful holiday.
Bethany

I'm sorry to hear that this happened, but you are right--the best present is that you all will be together and that he will be ok. That is what's most important.

Marian

WNCmom
12-28-2008, 10:13 AM
Best wishes for Jesse's speedy recovery from that bump, Bethany. This will definitely be a Christmas and new year to remember!

laurieg6
12-29-2008, 12:20 AM
I'm sorry that the infection happened, esp. on Christmas. I hope Jesse's incision is doing better by now and that Jesse gets to celebrate Christmas soon.

babachi
12-30-2008, 09:03 AM
well, we're still here. The incision is still draining and the drains in Jesse's back just came out. Those were draining a good amount of fluid. He's going home with a PICC line for iv antibiotics. The docs want to treat him aggressively to be sure the is no infection, even though the cultures came back negative. They don't want to mess around.
At this point it looks like Jesse will go home tomorrow. Keep your fingers crossed.
I also started a blog.
Thanks again for your wishes and prayers.
Bethany
http://web.mac.com/bessiebingo/Site_2/Photos.html

Pooka1
12-30-2008, 09:10 AM
I'm glad things are getting better for Jesse.

Thanks for doing the blog. I think they are extremely helpful for folks going forward with surgery. I wish I had the wherewithal to do one.

Del (aussiemum) also has a great blog on her daughter's surgery.

sharon

WNCmom
12-30-2008, 09:58 AM
Glad to hear Jesse is doing better and the docs are being proactive. I hope you'll get to go home tomorrow! Jesse's x-rays look great.

I second the thanks on the blog. We set up one on Carepages.com for Sidney, and it was, as Sharon says, very helpful. I know what a blog is and how to use it, but I didn't have the skills to set one up all by myself. Carepages offers a template format ready to go, and you just plug in the information. It sure saved a lot of phone calls and kept everyone informed.

Mary Ellen