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scoliotensed
11-07-2008, 04:24 PM
Hi
I am 24yrs old. I just met an orthopedic and he confirmed i have scoliosis with 67 degrees:(
actually he compared my childhood x-rays and the recent x-rays and said that actually he didnt see much progress in the curve - meaning i am having 65 degrees curves since birth.
he asked me to meet a physio therapist and asked to practise some exercises.
according to him surgery is not necessary as my structure is fully grown.

anyone any suggestions on this is greatly appreciated.
i dont know if i need a surgery or .......

LindaRacine
11-08-2008, 12:26 AM
Hi...

First, you might want to post to the area for adults (you've posted to the Adolescent & Teen forum).

I always recommend that everyone get at least two opinions from doctors who specialize in scoliosis. You can find a list of specialists here:

http://www.srs.org/find/

Regards,
Linda

scoliotensed
11-08-2008, 10:56 AM
hi linda
thanks for your advice. i tried the link you gave but unfortunately it says no physician found for my search.( i tried to pick adult scoliosis in maryland area).
If you know any doctor in maryland area would be really good.
regarding posting in an adoloscent thread, how can I move my post to adult scoliosis thread.

leahdragonfly
11-08-2008, 11:05 AM
Hi there,

Try again on your SRS search--I tried for Maryland and found 15 specialists listed for adult scoliosis.

Good luck!

pmsmom
11-08-2008, 01:26 PM
If he is in your insurance network, you might want to check out Dr. Lauerman at Georgetown in DC.

We are in PA and he will be following my dd's case.

scoliotensed
11-11-2008, 11:52 AM
thanks guys for your suggestions and support. I will surely again try in SRS for the doctors around our place.

Can you tell me how is Dr. Lauerman at Georgetown in DC.

I am actually really scared. I want to approach a doctor if his reviews are really good.

Thanks for all the love and support:)

pmsmom
11-12-2008, 08:36 AM
thanks guys for your suggestions and support. I will surely again try in SRS for the doctors around our place.

Can you tell me how is Dr. Lauerman at Georgetown in DC.

I am actually really scared. I want to approach a doctor if his reviews are really good.

Thanks for all the love and support:)

We have only met with Dr. Lauerman once (as a 3rd opinion for my dd as surgery was indicated). He took the time and listened to all of our concerns (of course I have more questions now). He was very thorough in asking us questions (asking me even about my pregnancy with dd--was she high risk, etc.?) which the other doctors didn't do. He also looked at her MRI more carefully and consulted with a neurosurgeon about a suspicious spot he saw (which turned out to be nothing, thank God!). He said he tended to be overly cautious, which is fine by me.

He also struck as a very humble man.

I have emailed 2 different people who had direct experience with him (one in an interview and the other whose son had 2 surgeries with him). They said he was the best and Georgetown's aftercare was wonderful. The first mom said that she really liked him and most likely would've gone with him, but her dd preferred someone else (you know how you just "click" with people). But this mom had also done her research on some of the top doctors in scoliosis surgery, and Dr. L's name came up as being one of the top 10 or so on the East Coast. She was very kind to share her information with me.

So far we haven't found anyone who has not liked him. :)

From the research I've done and what others have said, he is a professor at Georgetown as well, so he is up on the research and such (he does it as well).

And, my dd said she trusts him. Something I didn't hear from her about the other surgeons we saw.

Hope this helps. I think if he is in your insurance network, at least go and see him for a second opinion. With whomever you choose, you do want to find a surgeon who is a specialist in scoliosis surgery.

We live in PA and traveled 3 hours to see him. It was well worth the trip. I do wish we lived closer, but you work with what you can.

Take care,
Marian

scoliotensed
11-13-2008, 10:59 AM
Hi Marian

Thanks a lot for patiently giving me info regarding Dr. L
I would surely contact him and hope I would also be comfortable with the doctor.
Will keep you posted with the happenings.
Please update me with your dd surgery. All my prayers are with her.

Peace:)

pmsmom
11-14-2008, 08:24 PM
Hi Marian

Thanks a lot for patiently giving me info regarding Dr. L
I would surely contact him and hope I would also be comfortable with the doctor.
Will keep you posted with the happenings.
Please update me with your dd surgery. All my prayers are with her.

Peace:)

No problem! We are all here to help each other and share information. So many people have been so wonderful and helpful to me on this board.

Do contact different doctors--you are the one who will know with whom you feel the most comfortable.

Please do keep us posted with what is happening. I will do the same with our dd although we are in a down time right now and her next appt. is in mid-Feb. Just hoping it doesn't snow! At least we will miss all the traffic during the inauguration! :D

Essi
11-20-2008, 03:40 AM
Hi
I am 24yrs old. I just met an orthopedic and he confirmed i have scoliosis with 67 degrees:(
actually he compared my childhood x-rays and the recent x-rays and said that actually he didnt see much progress in the curve - meaning i am having 65 degrees curves since birth.
he asked me to meet a physio therapist and asked to practise some exercises.
according to him surgery is not necessary as my structure is fully grown.

anyone any suggestions on this is greatly appreciated.
i dont know if i need a surgery or .......

i suggest you take a look at the Scoliosis SOS website.
www.scoliosissos.com
i went to SOS 2 years ago with a curve of 56.
it then went down to 49-52. (:
if you want more details just ask :D

txmarinemom
11-20-2008, 04:26 AM
i suggest you take a look at the Scoliosis SOS website.
www.scoliosissos.com
i went to SOS 2 years ago with a curve of 56.
it then went down to 49-52. (:
if you want more details just ask :D

This, in the SOS FAQ pretty much summed it up for me ...

Question: "What is the difference between the ScolioGold treatment offered by Scoliosis SOS and the Schroth method used on the continent? "

Answer: "The difference is the quality of our results. At Scoliosis SOS our results are second to none. ScolioGold is a hybrid of the best non-surgical treatments for spinal curvatures and originated from the Schroth method.

Many people (health professionals and patients) have commented on how our results, at Scoliosis SOS, are so much better than the Asklepios Katharina Schroth Klinik’s results. This is partly due to our high therapist to patient ratio i.e. our class sizes are smaller; 6 or 7 patients to each therapist compared to the 20 patients per therapist they have in Germany.
We have also had English patients who went to Germany several years ago, before Scoliosis SOS opened in the UK, but who have now come to us for follow-up treatment and they have all commented that the treatment given at Scoliosis SOS is of a much higher standard. "

Schroth (nor ScoliGold) demonstrates any "quality of results". One has merely existed longer than the other ... and neither is proven to reduce a curve.

I really had to laugh at this snake oil hawker bashing another one with "Many people (health professionals and patients) have commented on how our results, at Scoliosis SOS, are so much better than the Asklepios Katharina Schroth Klinik’s results."

Define "many" and the credentials of the "health professionals".

At best, PT, exercise, etc. - or any program that makes wild claims while taking your hard earned money - MAY help reduce pain. NONE of them will CURE a curvature.

BTW, Essi, your curve "correction" is well within the margin of error. Why was your Cobb 56° (absolute) at initial measurement, and now it's ±49-52°? 56° vs. 52° means nothing, and a hard Cobb of 56° compared to a range of 49° to 52° means even less. They're simply playing a numbers game with you, and I hope you don't fall for it.

At the very least, if you had pain, I hope it has helped.

Pooka1
11-20-2008, 06:38 PM
BTW, Essi, your curve "correction" is well within the margin of error. Why was your Cobb 56° (absolute) at initial measurement, and now it's ±49-52°? 56° vs. 52° means nothing, and a hard Cobb of 56° compared to a range of 49° to 52° means even less. They're simply playing a numbers game with you, and I hope you don't fall for it.

If a chiro measured it and didn't take it out to at least 4 decimal places, I can't have confidence in the measurement. Digital protractors canNOT be beat! :D

Essi
11-21-2008, 12:23 AM
I wasn't saying it can cure a curve, and i'm not saying that it has cured mine. My cob angle before was anywhere from 54-58 (56) and then the next time i got x-rays, it was 49 (47-51). This is what my surgeon told me. (it got a bit worse later with it getting to 52 (50-54).
+
The cob angle doesn't mean anything to me, I measure my back on my quality of life, and SOS has definitely changed my quility of life. I'm pretty much pain free and stand tall, so i'm completely satisfied. (:

txmarinemom
11-21-2008, 01:05 AM
I wasn't saying it can cure a curve, and i'm not saying that it has cured mine. My cob angle before was anywhere from 54-58 (56) and then the next time i got x-rays, it was 49 (47-51). This is what my surgeon told me. (it got a bit worse later with it getting to 52 (50-54).
+
The cob angle doesn't mean anything to me, I measure my back on my quality of life, and SOS has definitely changed my quility of life. I'm pretty much pain free and stand tall, so i'm completely satisfied. (:


Interesting ...

That's great you feel your quality of life has improved, but there's very little science to back it up.

You take your pre-treatment 54-58° measurement as a median/centerpoint (I have no idea how many times each number occurred) of 56°: It could mean ±5° on EITHER side. You could have been as little as 49°; as high as 63°.

Same for your "post-treatment" measurement: You now say you increased to 50°-54° (you didn't in your first post ... you chose the best numbers).

Again, the median of 52° is inaccurate. You can say you COULD have been 45° at the least, and 59° at the worst.

Margin of error is at LEAST ±5° (maybe ±10°) ... and, BTW, it's "Cobb" (not cob). I really worry about this kind of information. If it works for you, great ... but you really don't seem to know the details of how things are measured.

Again ... if it makes you feel better, go for it. I'd ask you do some self study, however, on the details; make SOS explain their measurements compared to SRS standards.

Regards,
Pam

Essi
11-21-2008, 01:52 AM
I understand that you worry about this information, but still 45-59 is better than 49-63. Although, it's probably the roughly the same.

The natural history for my age and curve type is for my curve to deteriorate. By doing exercises my curve has stabilised (over two years) with six monthly x-rays. The cobb angles have been measured by several independent people. Now I know that there is error but you are choosing to represent that I must be over-estimating improvement while you are under-estimating any change.
I have a very senior and experienced surgeon who agrees that my curve has stabilised. Now this could be just good luck I suppose, or it could be that the exercises I have been doing have helped. I am not the only person to have undergone this kind of treatment and it been successful.

I really dont want to pick a fight here and its hard for you to understand what my scoliosis is like as for it is different for everyone. I understand were you are coming from, though.

txmarinemom
11-21-2008, 02:00 AM
Essi ...

As I said, if you're feeling better, fantastic. Really. Pain sucks (this I know).

Even better if your curve is truly stable: I had a stable adult curve (that began as a JIS curve - dx'd at age 10), as well, and one that (by normal standards) *should* have progressed. The only reason I had surgery is my pain was increasing ... not my curve.

Fingers crossed you avoid that aspect!

Best regards,
Pam

Essi
11-21-2008, 07:27 PM
txmarinemom,

I was just wondering how old you were when you got your surgery?
Surgery is not off the table for me, I might have to get it later in life if pain becomes a major problem. I was just thinking that I might develope pain over the coming years, that's what scares me.

Thanks.

txmarinemom
11-21-2008, 10:03 PM
Surgery is not off the table for me, I might have to get it later in life if pain becomes a major problem. I was just thinking that I might develope pain over the coming years, that's what scares me.

Essi, I hope with all my heart you NEVER have to consider surgery. For a moving curve, pain - or any other reason.

Yes ... you figured it out, I think: I was dx'd with a ±35° curve at age 10 (which surely developed before then), and held off on surgery (although I'd had serious back pain since age 10-11) until it just got to be too much.

Try not to be scared about the *possible* pain, or the decision (if you do need to consider it) to have surgery ... you'll know. I can't even begin to explain how you will (if it comes to that), but you just ~will.

The ONLY reason I'm glad I held off doing anything for 29 years (after diagnosis) is the technique wasn't there. I'd rather have lived with the pain than what the surgery would have taken from my life 10 years ago. My pain tolerance (extremely high, BTW) ended at just the right time for me. And techniques are improving all the time.

Best of luck to you.

Regards,
Pam

gardenjen
11-25-2008, 07:29 AM
I suspect that pain or lack of it has to do with more than
the Cobb angle. Since I expressed an interest in scoliosis
here, I have 3 or more patients a day with scoliosis. Yesterday
I saw someone with an 85 degree T-L curve, "no pain" (just
interested in conditioning and if possible, preventing progression)
and someone with an 18 degree compensatory lumbar curve with
"5/10 pain". Is it the degree of rotation? Associated disc pathology?
Other factors? Some people with relatively small curves report
improved pain by addressing sacroiliac or hip issues. I had a email
from Dr. Brooks (D.O. for Martha Hawes) yesterday and he has a
'protege' in our area I'm thinking of suggesting my daughter see. I
have no idea what 'bodywork' is, but supposedly reducing curves
in an adult from 49 to high 20's is intriguing. Seems hard to imagine
but I saw the XRays and presentation at the SOSORT meeting in 2007.

Andrea
01-02-2009, 05:52 PM
You should learn Schroth exercises to start with, If you are in Ottawa or coming to Ottawa You can learn these exercises at the Ottawa &District Physiotherapy 613-233-1235

Hi
I am 24yrs old. I just met an orthopedic and he confirmed i have scoliosis with 67 degrees:(
actually he compared my childhood x-rays and the recent x-rays and said that actually he didnt see much progress in the curve - meaning i am having 65 degrees curves since birth.
he asked me to meet a physio therapist and asked to practise some exercises.
according to him surgery is not necessary as my structure is fully grown.

anyone any suggestions on this is greatly appreciated.
i dont know if i need a surgery or .......

txmarinemom
01-03-2009, 04:50 AM
I suspect that pain or lack of it has to do with more than
the Cobb angle. Since I expressed an interest in scoliosis
here, I have 3 or more patients a day with scoliosis. Yesterday
I saw someone with an 85 degree T-L curve, "no pain" (just
interested in conditioning and if possible, preventing progression)
and someone with an 18 degree compensatory lumbar curve with
"5/10 pain". Is it the degree of rotation? Associated disc pathology?
Other factors? Some people with relatively small curves report
improved pain by addressing sacroiliac or hip issues. I had a email
from Dr. Brooks (D.O. for Martha Hawes) yesterday and he has a
'protege' in our area I'm thinking of suggesting my daughter see. I
have no idea what 'bodywork' is, but supposedly reducing curves
in an adult from 49 to high 20's is intriguing. Seems hard to imagine
but I saw the XRays and presentation at the SOSORT meeting in 2007.

Search the Quackwatch and Schroth thread on here.

Gardenjen, please explain how your "patients", Hawes and your daughter's treatment apply in the same response ... I'm curious.

scoliotensed
01-03-2009, 01:04 PM
Hi Guys

Sorry for not updating.
Had to visit my home country as my mom went through a minor surgery

guys i have a doubt: after going through your conversations, i have noticed that pain would is more terrible than the curve.

I too experience pain day in and day out, but am not sure the degree of pain i undergo.

i get the pain when i eat a lot or eat less. work a lot or no work.

and the worst thing i hate is CONSTIPATION. my pain n constipation are interrelated, they follow each other :(

Is constipation a common problem for scoliosis????

can any of you tell me if you are also facing any similar symptoms?

once again sorry for the late rply.

peace:)

LynnMarie74
01-04-2009, 11:15 AM
...based on your signature....looks like you had/have a single curve? I looked at your xrays...the before/after & it almost looks like a double....or do I still have my morning eyes on?! lol :D Just wondering....Also, how have you been doing w/ everyday tasks? Getting yout shampoo & soap in the shower, washing your hair, getting dressed...going to the bathroom...yada yada. Looks liike you are about 9/10 months post op,right? Hope all is going well for you.....

Lynn

inca
01-09-2009, 12:26 PM
Hi
I am 24yrs old. I just met an orthopedic and he confirmed i have scoliosis with 67 degrees:(
actually he compared my childhood x-rays and the recent x-rays and said that actually he didnt see much progress in the curve - meaning i am having 65 degrees curves since birth.
he asked me to meet a physio therapist and asked to practise some exercises.
according to him surgery is not necessary as my structure is fully grown.

anyone any suggestions on this is greatly appreciated.
i dont know if i need a surgery or .......


u need physio therapy and to see foot consukltant to do with foot alignment they can can advise to weather they can do anymore i am waiting for hospital shoes to align my fett i am fully grown but there r treatments through foot consultantys can i suggest u go gp and ask to sdee foot consultant for foot aligment

bscoli
01-26-2009, 08:32 PM
hi linda
thanks for your advice. i tried the link you gave but unfortunately it says no physician found for my search.( i tried to pick adult scoliosis in maryland area).
If you know any doctor in maryland area would be really good.
regarding posting in an adoloscent thread, how can I move my post to adult scoliosis thread.

Hi - you may want to check out this provider who can assist with information about doctors in your area as well as Schroth which is mentioned in some places in your post: http://www.scoliosissolutions.org/index.html

Mary jane
01-27-2009, 08:15 PM
My daughter has a curve of 58 and doctors have beene after us to do surgery for a while. she is 17. My daughter has something called Dysautonomia and postural orthostatic tachycardia syndrome. We have been putting off surgery because it can worsen her other condition. Has anyone ever heard of this illness? Many kids have scoliosis along with it. I agree that getting more than one opinion is very important.

Pooka1
01-27-2009, 09:08 PM
Oh I see you mention POTS. I don't recall that the woman on the medical show also had scoliosis but my memory is going. :eek: It might have been mentioned.

Andrea
04-25-2010, 12:00 AM
Hi
I am 24yrs old. I just met an orthopedic and he confirmed i have scoliosis with 67 degrees:(
actually he compared my childhood x-rays and the recent x-rays and said that actually he didnt see much progress in the curve - meaning i am having 65 degrees curves since birth.
he asked me to meet a physio therapist and asked to practise some exercises.
according to him surgery is not necessary as my structure is fully grown.

anyone any suggestions on this is greatly appreciated.
i dont know if i need a surgery or .......

Hello, try to find a Certified Schroth physiotherapist in your area.

Bigbluefrog
05-09-2010, 06:48 PM
We liked the schroth clinic in Wisconsin. It is something my dd has to do everyday for 1/2 hour, it helps with posture and lengthening the spine.

I would rec. the therapy to anyone. Just know it takes investment in time and buying equipment to do it at home.

We are lucky that the clinic was helpful in giving directions on how to make the bars...and my dh is handy so the equipment cost was minimal to us.

Schroth is a type of physical therapy based on Katrina Schroth technique.

Out of all the options out there, this one came with plenty of references and after talking to 5 satisfied patients I was content to go.
It is recommended to do Schroth in addition to bracing, Schroth prefers rigo cheneau brace. After consulting with an orthotist specializing in bracing he took a look at her double curves and said he could make a brace for her there are no guarantees that it will help stop the curve or correct the curve.
Because of this we decided to go with Boston, the one her Orthopedic Surgeon recommended. Teh Schroth clinic stated they could fit her, but if we had any issues we would have to fly across country to get fitted with the Orthotist...and to me that doesn't make sense. I prefer someone closer, who can fix the issues locally.

After a week of intensive PT , she was taller and back muscles looked incredible. I have a folder of pictures here, I will try to scan them.

Whatever you decide to do... research and get references, get 2nd opinions and then just make a decision you can live with. :)

I haven't posted in awhile, my dad became very ill, and recently passed away so I was kinda walking in a fog. Its been one tough month for our family.

Katie12YROLD
08-22-2010, 11:57 AM
Hello, try to find a Certified Schroth physiotherapist in your area.

don't you need surgery? most dr said that if over 45 or 50 degree, it needs surgery, my daughter is 89 now, from 27 degree, 3 years ago, now she is 12yr young.

Pooka1
08-22-2010, 01:27 PM
don't you need surgery? most dr said that if over 45 or 50 degree, it needs surgery, my daughter is 89 now, from 27 degree, 3 years ago, now she is 12yr young.

Some Schroth folks have lost contact with reality. Just move along and try not to stare.

You daughter's curve moved on average a little less that 2* a month for three years. Wow. That's a very sustained growth spurt if that is what it is.

Did it start and stop or was it documented to progress during each radiograph?

My one daughter's curve never was documented to stop and moved on average 5* a month for at least 5 months. The other daughter's curve started and stopped on its own but did have one period with an average progression rate of ~4*/month for one 6 month period IIRC.

LindaRacine
08-22-2010, 02:15 PM
Some Schroth folks have lost contact with reality. Just move along and try not to stare.

You daughter's curve moved on average a little less that 2* a month for three years. Wow. That's a very sustained growth spurt if that is what it is.

Did it start and stop or was it documented to progress during each radiograph?

My one daughter's curve never was documented to stop and moved on average 5* a month for at least 5 months. The other daughter's curve started and stopped on its own but did have one period with an average progression rate of ~4*/month for one 6 month period IIRC.

Unless I'm confused (which is entirely possible), the OP's daughter's curve increased from 27 to 89 degrees.

--Linda

Pooka1
08-22-2010, 02:20 PM
Unless I'm confused (which is entirely possible), the OP's daughter's curve increased from 27 to 89 degrees.

--Linda

Did I do the math wrong?

That's 89 - 27 = 62 degrees in three years (36 months).

62*/36 months = ~1.7*/month

LindaRacine
08-22-2010, 02:29 PM
Did I do the math wrong?

That's 89 - 27 = 62 degrees in three years (36 months).

62*/36 months = ~1.7*/month

Your post said months, months, months, but my mind said years, years, years. Doh!

Pooka1
08-22-2010, 02:32 PM
Your post said months, months, months, but my mind said years, years, years. Doh!

No problem. :)

You are dealing mainly with adult patients as I understand it who tend to progress a few degrees a YEAR whereas my only experience with with two baby kids who were progressing at a few degrees a MONTH.

Our mindsets are shaped by what we deal with.

jrnyc
08-22-2010, 03:00 PM
Essi, i am glad you feel better...

the numbers dont sound impressive, especially considering the margin of error...

but if it works for you...hey...
i hope you stay without pain!

jess

Andrea
09-27-2011, 06:47 PM
Hi
I am 24yrs old. I just met an orthopedic and he confirmed i have scoliosis with 67 degrees:(
actually he compared my childhood x-rays and the recent x-rays and said that actually he didnt see much progress in the curve - meaning i am having 65 degrees curves since birth.
he asked me to meet a physio therapist and asked to practise some exercises.
according to him surgery is not necessary as my structure is fully grown.

anyone any suggestions on this is greatly appreciated.
i dont know if i need a surgery or .......

Are you in Ottawa, Ontario?
you can contact the Schroth Physiotherapist 613-233-1235