Hi,
I originally posted in the Physician/Hospital feedback section looking for recommendations for my dd who was diagnosed with a 54 degree left thoracic curve in September.
We were not going to go with the first surgeon we saw as he was saying a 1-2 day hospital stay, by 3 weeks she'd be back to normal. This was NOT what I was reading on the boards.
So, this past week we saw 2 other docs--one in Baltimore on Monday, and one in DC on Friday.
Dr. Lauerman was the one we saw on Friday at Georgetown Hospital in Washington, DC.
We are sold.
Dd trusts him and so do I--something in his mannerisms (maybe not so puffed up as the others we met) and thoroughness. He also seemed to be interested in hearing what we had to say and dealing with us as an individual case.
He was *very* thorough--even asking about my pregnancy with dd. She was high risk. I had been on several medications to hold the pregnancy--and years ago it was an experimental treatment as I have an autoimmune disorder which caused miscarriages.
Also, he took my concerns about her medication allergies seriously.
However, there may be a complication. He saw a spot on the MRI that he is
concerned about. He said he will have a neurosurgeon look at it--she may
have chiari malformation--he was looking at how atypical her curve was.
I'd rather him be overly cautious (which he admitted he is).
So he is going to check this out with a neurosurgeon colleague of his. He
said he would let us know if we needed to be concerned about that.
That, of course, would change the whole ball game--having to take care of
that before scoliosis surgery.
Right now we are scheduled to see him again in Feb. He will continue to
monitor dd's progress--if her curve hasn't really moved, he may wait and
observe her again in the fall. If it does move, she will have to have the
surgery--possibly next summer.
I am very thankful for this forum. I'm glad to know that there is such
support out there. I hate to think what would've happened if we didn't have
internet and we would've gone with the first surgeon's recommendation.
Am anxious to learn more--anyone who has had or had a child with chiari
malformation--what that entails. I'm probably jumping the gun, but would like to learn as much as I can.
I originally posted in the Physician/Hospital feedback section looking for recommendations for my dd who was diagnosed with a 54 degree left thoracic curve in September.
We were not going to go with the first surgeon we saw as he was saying a 1-2 day hospital stay, by 3 weeks she'd be back to normal. This was NOT what I was reading on the boards.
So, this past week we saw 2 other docs--one in Baltimore on Monday, and one in DC on Friday.
Dr. Lauerman was the one we saw on Friday at Georgetown Hospital in Washington, DC.
We are sold.
Dd trusts him and so do I--something in his mannerisms (maybe not so puffed up as the others we met) and thoroughness. He also seemed to be interested in hearing what we had to say and dealing with us as an individual case.
He was *very* thorough--even asking about my pregnancy with dd. She was high risk. I had been on several medications to hold the pregnancy--and years ago it was an experimental treatment as I have an autoimmune disorder which caused miscarriages.
Also, he took my concerns about her medication allergies seriously.
However, there may be a complication. He saw a spot on the MRI that he is
concerned about. He said he will have a neurosurgeon look at it--she may
have chiari malformation--he was looking at how atypical her curve was.
I'd rather him be overly cautious (which he admitted he is).
So he is going to check this out with a neurosurgeon colleague of his. He
said he would let us know if we needed to be concerned about that.
That, of course, would change the whole ball game--having to take care of
that before scoliosis surgery.
Right now we are scheduled to see him again in Feb. He will continue to
monitor dd's progress--if her curve hasn't really moved, he may wait and
observe her again in the fall. If it does move, she will have to have the
surgery--possibly next summer.
I am very thankful for this forum. I'm glad to know that there is such
support out there. I hate to think what would've happened if we didn't have
internet and we would've gone with the first surgeon's recommendation.
Am anxious to learn more--anyone who has had or had a child with chiari
malformation--what that entails. I'm probably jumping the gun, but would like to learn as much as I can.
Comment