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View Full Version : Anyone here that had scoliosis surgery in there 20's?



Amanda
10-05-2008, 07:04 PM
I would love to hear ur stories and how going back to school was for you(if your in school that is)! I am considering surgery and just looking for some comfort!
Thank You
Amanda

amber24
10-06-2008, 04:24 PM
Hi Amanda, I was 24 when I had my surgery in Feb. 2007. I had one curve and it measured at 80 degrees. I returned to classes online after 5 days post op.:confused: I don't know what I was thinking at the time, but my school worked with me.

discombobulated
10-06-2008, 06:31 PM
5 days?? :eek: I'm in awe, Amanda! Glad your school worked with you on that one, Amber!

Amanda, I haven't yet had scoli surgery in my 20s, but my first 2 were when I was 12 & 14, + I have another revision coming up in December this year (I'm 22 now). Exemplified by Amber - everyone's recovery is different, & it depends a lot on how extensive your scoli surgery will be. When I had my T3-L3 fusion & again when I had my L3-pelvis fusion, I had the surgery in high school holidays, then took the whole of the next term off from school (but did work on study that was sent home for me, a couple of hours a day with plenty of naps). In the first few weeks, pain was the major problem, but even as that eases, the EXHAUSTION of surgery lingers for a long while.

This time around will be my biggest surgery ever - 9-10+ hrs expected, & I have higher-than-average chance of post-op complications, + other medical issues to deal with. Sooo....just yesterday I made the final (horrible) decision to put off the study for the entire of next year, so I don't have to freak out about study starting when I'm still recovering. I think I'd probably be ready by mid-year, but my university doesn't accept mid-year entry into my major.

I guess the point of the rambling is - everyone is SO individual! If you could have the surgery during Summer-break (that's the one that lasts a couple of months in the US?), you may well be ready to ease back into the new year of study. Some things you could do to help smooth/speed recovery is to make sure you're reasonably fit (get a little cardio exercise into your day, eat healthily), & you can build up a little muscle (esp. abdominal & leg muscles).

Hope this helps some.

By the way - I don't want to freak you with the fact that some of us here have had more than the one scoli surgery - it's rare, the vast majority of original scoli surgeries work like a charm. :)

Amanda
10-06-2008, 09:07 PM
Thank You discombobulated and amber24 for responding.
to answer ur ^ question the summer break in the US is 3 months. So I've heard that it normally takes 3 months for good recovery but it might take longer... hopefully not! I will be turning 22 on oct. 16 a few days away:) lol
i have read some you ur posts and seen what you went thru... how did u keep a level head? Thats amazing!!!

amber24 thats great to hear that your school worked with u? do u live in the US? what school did u go too

amber24
10-06-2008, 10:35 PM
Discombobulated, Thank you! I was to start school in March and already registered when I went in for my pre-op in Jan. and my surgeon scheduled my surgery for the end of Feb. I knew it was going to be rough, but I didn't want to give up!

Amanda, I will be honest, it was tough and a long recovery. My fusion is from T1-L4. I don't really remember much of my hospital stay. I do remember the pain and for the most part it was under control. I know I had to get a blood transfusion and my oxygen and blood pressure were really low and I got my period the following day after surgery. I do remember walking for the first time and wearing the uncomfortable brace. I did have to get readmitted 2 weeks after my surgery because they thought I had a spinal infection.

I really have to give the credit to my family for supporting and encouraging me through it all! There are ups and downs! I had times when I was happy and then times I was crying...emotional roller coaster!

Yes, I live in Ohio and my surgery took place here.

discombobulated
10-07-2008, 12:49 AM
Amanda,

By 3 months you should be feeling MUCH better - everyone is very different, but I'd expect you'd be off pain meds by then, & certainly up & about. Do remember to factor in for becoming very tired quite easily, even up to 6-12 months, but slowly getting better. You will get there!

By the way - do you know how many degrees your curve is or what levels your surgeon wants to fuse? Among many other things, these will also affect your surgery & recovery.

All the very best with making a decision & with the surgery if you choose it. Please keep bombarding the board with all the questions/worries that you have. There are some amazing people here. And I have some free time on my hands, so I'll be around a fair bit, too, if there's anything I can help answer. :)

Take care.


--

Amber - SO glad you didn't have an infection. That's my #1 fear, so it's always good to hear when people make it through safely. Goodluck with the studies.

amber24
10-07-2008, 05:26 PM
discombobulated, thank you! I ended up graduating 4 months after surgery!:)

Amber

sarah105
10-08-2008, 09:23 AM
I am in the same situation. I just turned 20 and am considering having surgery. Unfortunately I was just told that am not able to see my current surgeon anymore because I am too old! So after 10 years with the same doctor, I have to find a new one for surgery. I am a college student so I would probably do it in may because summer break is my only time off. That will give me 3 months so hopefully I'll be ok to go back in the fall.

Amanda
10-08-2008, 05:57 PM
hey sarah105 if u don't mind me askin where do u live? and wat doc are u looking at?
i live in NY so maybe we could work together?

arizo
10-08-2008, 06:03 PM
i will be, im 21 and had been debating on getting the surgery for 3years now

its gona suck because im always up and about, either clubing, at the gym or playing sports.

and im going to be out of commission for a while, i think i might go crazy.

Just the hospital stay is going to be a lil over a week. but ill be checking in during my stay

amber24
10-08-2008, 07:31 PM
The first doctor I seen made me feel like I should get a second opinion. The second doctor I found was one that specialized in scoliosis and he made me feel comfortable with his knowledge. I think you get that good feeling when you pick who you want your surgeon to be.

Best wishes with your searches!

sarah105
10-09-2008, 06:48 AM
Amanda-I'm from southeast CT (although i'm actually in school in dc). I would be having the surgery in CT because it will be easier to be with my parents. I am seeing two doctors over christmas break, Dr. Krompinger at Hartford Hospital (he's the one my pediatric hospital refered me to) and Dr. Grauer at Yale in New Haven. I guess I'll decide from there. If anyone knows of any other good doctors in that area let me know.

mmw
10-09-2008, 06:35 PM
I had my surgery just over 4 months ago, and I was 27 at the time of surgery, and I turned 28 a few weeks ago. Oh and I am a mother to 2 boys, 5 & 2!

samsmom
11-19-2008, 10:38 PM
Amanda-I'm from southeast CT (although i'm actually in school in dc). I would be having the surgery in CT because it will be easier to be with my parents. I am seeing two doctors over christmas break, Dr. Krompinger at Hartford Hospital (he's the one my pediatric hospital refered me to) and Dr. Grauer at Yale in New Haven. I guess I'll decide from there. If anyone knows of any other good doctors in that area let me know.

Hi, My daughter (age 17) had surgery in CT last February her doctor was Dr. Brian Smith at Yale and he did a fantastic job - couldn't have gone better You can pm me if you want more info.
Good Luck!

iluvmath!
11-19-2008, 11:27 PM
Hi Amanda!
I've actually had 2 surgeries both while in school because the first one didn't really work (don't worry about that happening to you though...it rarely happens). Anyway, I had my first surgery at the end of June the summer before my senior year in high school. I was fine going back to school by the time school started except I would get tired pretty easily still...a couple weeks into the school year that went away too though. I had my second surgery this past summer at the end of May (I will be 6 months post-op this friday :) ). The three months was more than enough time for me to recovery before my classes started. I would still have pain but nothing that a tylenol couldn't take care of. Everyone is different but in my experience, I'm sure that the summer would be enough time for you to recover.

Good luck finding a surgeon that you like!!! Please let me know if you have anymore questions!!!

~Katie

amae28
11-20-2008, 02:42 PM
Hi Amanda,

I am 21 yrs old and had surgery on June 30th of this year. I was back taking college classes full time by the middle of August when they started up. I admit that at first it was hard to sit through classes, and I am taking a light load this semester (13 hours), but after about 2 weeks I felt a lot better and I am not having any trouble now. My campus is really large and has a lot of hills so I did use a handicap parking permit for a while so I didn't have to walk so far because I would get winded really fast walking up and down all the stairs on campus. For me, going back to class within about 6 weeks was do-able, but of course it depends on the person, how extensive of a surgery you are having, etc. You can PM me if you want!

Abbie

vndy
11-20-2008, 03:14 PM
I had surgery last December, at age 22, and half way through my masters program. It was hard for me to sit in one place long enough to sit through class for the first few months, and I definitely was short on energy. I'm happy to answer any questions you might have... I'm almost 1 year post-op and it (finally!) feels like a distant memory, but I do remember how hard the decision pre-op and recovery post-op were!