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leahdragonfly
09-03-2008, 01:50 PM
Hi everyone,

My 6 y/o daughter has been wearing a Providence brace at night since June. She also wears a boston part of the day for a total of 16 hrs/day in brace.

She had a very difficult adjustment to the Providence since it is somewhat bulkier than the Boston, plus she didn't like the long side that comes down over her hip. Eventually she seemed used to it and most nights would sleep through in the brace.

Recently, the last 10 days to 2 weeks, she is waking up every night, a few hours after she goes to bed, sobbing in genuine pain and distress. She complains that the brace is hurting her ribs on the right side (where it is pushing her curve I assume). I have taken off her brace and shirt and the area is red but not unusually so, and not raw. I have tried loosening the brace a bit but she ends up awake and sobbing within less than an hour. At this point I change her into the boston and she is usually able to sleep the rest of the night. But this is adding up to a lot of sleep disruption. She is accepting of the brace, so I do not believe this is manipulation.

Has anyone else's child had this problem with pain in a brace? Does it means she has grown some and I'm making it too tight? Could it mean her curve is trying to progress and thus placing more pressure from the brace on her ribs? Her curve has never progressed so far. Maybe I'm just worrying too much (probably!).

We have a dr's appt in a week, so we will ask then, and I e-mailed the orthotist, but I just wondered if anyone here has any thoughts.

Thanks!

mariaf
09-03-2008, 04:12 PM
Hi Gayle,

I would not be too concerned about progression (OK, I "would" be - but I am the consummate worry wart - LOL!) - it could be that more likely, she HAS grown and the brace isn't fitting exactly as it should (pure speculation on my part).

I agree that is does NOT seem like manipulation. We, as parents, know our kids best and can usually tell when the distress is "genuine" -so trust your instincts.

Sorry I could not be of more help - I am interested in hearing what the orthotist and her orthopedic doctor have to say, so please keep me posted - and....

Good luck!

Pooka1
09-03-2008, 05:31 PM
My daughter ran into a problem after a few months with the Charleston bending brace where she was putting it on wrong and it was bothering her.

We went back to the orthotist and he reminded her how to put it on. That did the trick.

swimmergirlsmom
09-03-2008, 10:23 PM
Hi Gayle

My daughter was very uncomfortable sleeping in her brace at first too. Her largest curve is the right Thoracic curve so the brace places most pressure against her right side (seems similar to your daughter's brace). This may seem strange (or not), but she found she has less pressure/discomfort if she sleeps on her left side so that gravity and the brace are both pushing in the same direction.

Good luck and let us know how it goes at the doctor next week too!

txmarinemom
09-04-2008, 12:55 AM
Gayle ...

Can Leah just stay in the Boston at night vs. the Providence?

Us former "23 hour" people know it's possible. Check with her doctor. I don't envy what you're reliving, but you know how to get real answers.

I don't mean to sound cold to your sweetheart's discomfort ... and trust me, everytime I see you post about her, I hope the ^&$% bracing will be over soon.

Hang in there.

Pam

leahdragonfly
09-04-2008, 11:43 PM
Thanks for the replies above. The orthotist e-mailed back and thinks it could be related to growth, as you thought Maria. He thought if the curve was progressing that her Boston brace would be hurting her more than the Providence, and it isn't, so that's good.

Until our upcoming appt in a week I will just have her wear the Boston (at night too). The orthopedist can then check everything out and we'll go from there. Leah is already counting the days until she gets her 48 hours out of brace!