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View Full Version : Would my child inherit my scoliosis?



Hannah
08-22-2008, 11:05 PM
As scoliosis can be hereditary, and in my case I believe it is, what are the chances of my child inheriting it from me? This is a burden on me and I would really appreciate some answers.

tillgurl
08-23-2008, 04:48 PM
The only thing you can do is keep an eye out for it and have a doctor check out her spine regularly.
I wish I had caughten mine sooner...mine wasn't noticed until I was 15...and therefore, too old to wear a brace because it would have been useless.

ecnw
08-24-2008, 02:44 PM
We know it is hereditary, but I don't think it is known exactly who will get it or to what degree. It was noticed in my great-grandmother's imediate family, skipped two generations, I got it, and then passed it right on two my two. I don't think of it as something that would have made me not consider having kids.
Emily

tillgurl
08-24-2008, 09:42 PM
Yeah it's definitly been proven to be hereditary...but its really like random..if that makes sense.
My dad's cousin has scoliosis and so does my 2nd cousin. haha see, pretty random pattern there!

Hannah
08-24-2008, 11:42 PM
Thanks to those who replied to my post. I wore a brace for two years before having a spinal fusion in 1995 at the age of 12. It seems to run on one side of my family, in small touches, but I definitely got the brunt of it! I just worry about passing it on.:(

debbei
08-25-2008, 02:54 PM
My grandmother had it, it skipped my mother's generation, and I have a severe case. My sister has a slight case. Unfortunately, I passed on to all 3 of my kids :( But my daughter's Dr. told me that the likelyhood of my kids having as severe a case as me is very small. My boys are out of the woods and only needed to be watched, but the jury is still out on my daughter as she is only 9.

For myself, I wish I had known that 1) it is hereditary, and 2) that pregnancies, 3 of them in my case, probably helped my curves progress. Maybe I would have had fewer kids if I had known, who knows.

sariberri
09-25-2008, 07:24 AM
I read somewhere that if you have scoliosis you have a 1 in 5 chance of passing it onto your child.

sccrm08
09-25-2008, 07:58 PM
I was also told growing up it was hereditary. But I am happy to say I have 3 daughters 22, 21 and 16 and they do not have any sign of scoliosis.

augemac
09-25-2008, 09:45 PM
I found I had Scoliosis at age 5. They told me that they thought mind wasn't hereditary but now as an adult I found out my older sister suffered as a teen with a mild case and my mom's 1st cousin had it.

I have two children and it does concern me the more I have found out over the years. But I would still of had children even if I knew they would have Scoliosis.

In fact I am taking them both on the 2nd of October to the Dr. to be checked out. I hope that with today's technology and options that we could catch it soon enough and do other treatments.

I never wore a brace they tried electrodes on my back. I also went to the chiropractor but I have heard that makes things worse for Scoliosis patients??

bluestone
09-26-2008, 06:56 AM
As scoliosis can be hereditary, and in my case I believe it is, what are the chances of my child inheriting it from me? This is a burden on me and I would really appreciate some answers.


When I had my children I never gave it a second thought that they may inherit my scoliosis.I dont know of anyone in my family that I inherited mine from.
Now my 12 year old daughter has just been diagnosed-I had started taking notice of her back last year and noticed some changes so im just pleased that its been caught early as its only mild.My 16 year old son is fine.
All I can say is keep checking your childrens backs, I noticed my daughters more during the summer-when she had little summer tops on so I didnt have to make a big deal of it and scare her.
Best wishes :)

susanna(h)
03-06-2009, 04:39 PM
I have congenital with an S curve. I'm sorry I don't know the degree. My daughter has idiopathic with a 17 degree curve and watching. My grandmother had it also but not my mother or sister.

Haleysmom
03-26-2009, 02:27 PM
We thought my daughter was the ONLY one in our family. Found out that 2 cousins (same family side) have it, one recently was fused at age 20.
He grew late and just grew crooked very fast. The other cousin has not been treated and chooses to just complain about it from a pain perspective. It is so entirely unpredictable. My older daughter is completly straight.

bluestone
03-28-2009, 07:10 AM
Ive recently found out that an uncle of mine has scoliosis and has had operations.We arent in contact but I may try and get in touch as it would be interesting to know what he has been through with his scoliosis.
Ive now got an appointment for my daughter to see a spinal surgeon so im glad I caught hers early.

Tinkerbell
03-28-2009, 02:20 PM
We thought my daughter was the ONLY one in our family. Found out that 2 cousins (same family side) have it, one recently was fused at age 20.
He grew late and just grew crooked very fast. The other cousin has not been treated and chooses to just complain about it from a pain perspective. It is so entirely unpredictable. My older daughter is completly straight.

Haley has a truly amazing mom!!! She is very lucky to have such a strong advocate for her future. Your children may not know it now, but you will have been one of the single biggest influences as far as their health and wellbeing is concerned. They WILL thank you. (Probably when they have kids of their own and know just how often you went to bat for them). I am 55 years old with a pronounced S curve. I was never officially diagnosed as a child, although I remember having difficulty with things like forward tumble rolls in gym class. When I was growing up, there was little awareness of scoliosis, so my parents were not involved in managing my condition. However, I have lead a relatively normal life WITH my scoliosis. I often went camping and boating with my family in the mountains, I rode horses for more than 30 years, lifted bales of hay and worked around the ranch, (lots of bending and lifting, and it didn't make my condition worse.) I had fun with my friends, and never thought that life was unfair, even though I was different. There was no stopping me then, and there is no stopping me now. I can still run circles around my staff. In fact, they often tell me that they wish I would slow down. You, and all the other mothers I have read about in this forum are an inspiration to me! Keep it up! Your kids are so blessed!

WNCmom
03-28-2009, 02:42 PM
My 13 yo son was fused 5 months ago. Until we discovered his scoli at age 11, the only other person in the family with scoli was my cousin on my mother's side, who had fusion surgery (no instrumentation) in the late 60s and was in a body cast for a year afterward. I never imagined my child would develop it.

After Sidney's diagnosis, we could see that my husband has a mild curve (never diagnosed), and his father told us he has a similar curve. About 6 months before Sidney's surgery, my aunt (on my father's side) told me that both she and her sister had curved spines, and that one of my second cousins on that side had surgery with rods. I also found out that a deceased aunt on my mother's side who had lifelong back pain and fusion with rods in her 60s had scoliosis (I knew about the surgeries, but not the type or the cause). I have 6 siblings. It's amazing none of us had it. Sidney has 21 first cousins, and so far none of them that I know of have developed it.

I think I read somewhere that scoli is hereditary, but it just hangs around in the gene pool and is not necessarily passed along in a linear manner.

rainbow2010
03-30-2009, 08:55 AM
As in any inherited disease, you have a 1 in 4 chance of passing on the gene to your child. I have 2 sisters and they both have small curves, while mine needed surgery. I have 2 daughters, the oldest outgrew here small curve and the youngest had to have surgery for hers. We think that it came from my father's side of the family. He was an only child because his mother had a difficult delivery and almost died. She wore a corset from preteen years until the day she died. They made great braces, so we just don't know.

Monica
08-03-2009, 02:53 PM
I am 29 years old; I had spinal fusion surgery when I was 14 years old in Houston, Texas @ Texas Children Hopsital.

Since my parents and I found out I had idiopathic scoliosis, we were told there is no clear causal agent and this condition was hereditary. The peculiar thing was nobody in my family had (or have) scoliosis that we known of.

I am from México, so when we first met the doctor that performed my surgery, he asked us If we had other ascendency besides Latin American because this condition itīs not typical in Latin American people because itīs not in their genes. My parents told him that some of their great grand parents and grand parents were from USA, England and Spain, so he told us because of this ascendency I inherited scoliosis.

When I think of my condition and that I can pass this to my children I get so sad, I donīt want them to live what I lived, all the pain, all the sorrow, etc.
But as I wrote above, nobody in my family has or had scoliosis, maybe some great great grandparent had it and it disappeared some generations, so I hope the same thing happens here and my children donīt get scoliosis.

Greetings! :)

kdsims
08-19-2009, 11:21 PM
Well as far as my family, both of my sisters have mild cases .I have it bad and both of my kids have a mild case.

Dingo
08-21-2009, 02:37 PM
Hannah

A lot of misinformation has been spread about Scoliosis and heredity.

The latest research suggests that there is very little chance that you will "give" your child Scoliosis.

Adolescent idiopathic scoliosis in twins: a population-based survey. (http://www.ncbi.nlm.nih.gov/pubmed/17426641)
According to this large 2007 study if one identical twin has Scoliosis the other will have it just 13% of the time. This strongly suggests that although genes may make a child susceptible to Scoliosis the largest factors involved are environmental.

Melatonin Signaling Dysfunction in Adolescent Idiopathic Scoliosis (http://pico.sssup.it/files/allegati/2004_1469.pdf)
Scoliosis is caused by or closely related to a very specific dysfunction in the central nervous system. Nobody knows why this happens or what the environmental and genetic factors are. If it was as simple as a "Scoliosis gene" scientists would have figured this out a long time ago. On the plus side a blood test is in the works that will allow children to detect this dysfunction even before their curve develops.

It's important to realize that many diseases that appear to be genetic because they hit some families harder than others ultimately turn out to be environment. As I write this a major shift is underway in Autism research. Until recently Autism was thought to be a genetic disease but that is changing rapidly. It's now thought to be triggered by something in the environment in genetically susceptible children.

California's Autism Increase Not Due To Better Counting, Diagnosis (http://www.sciencedaily.com/releases/2009/01/090108095429.htm)


results from the study also suggest that research should shift from genetics to the host of chemicals and infectious microbes in the environment that are likely at the root of changes in the neurodevelopment of California's children.

Under suspicion (http://www.boston.com/news/globe/health_science/articles/2007/08/13/under_suspicion/?page=full)


"any major article or proposal concerning the causes of autism is coming to be considered incomplete if it doesn't talk about a potential role of environmental factors."

Dingo
08-21-2009, 04:25 PM
Age- and sex-specific prevalence of scoliosis and the value of school screening programs. (http://www.ajph.org/cgi/content/abstract/75/12/1377)

This large study found that among children age eight to fifteen 5.2% of girls had Scoliosis and 3.2% of boys had Scoliosis.

Scoliosis is so common that if most people looked hard enough they could probably find a case somewhere in their extended family. If a family has some type of genetic susceptability they may find several cases.