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  • Chihuahua Mama here....

    Hi all….first, my apologies for not being as on top of updating you all on my surgeries as others have been, but it’s not been for lack of respect for all the love and information I’ve had from you all. Mostly, it’s been just plain exhaustion on my part, plus my attention span has dwindled to that of a three year old.

    In a nutshell, here’s how the surgeries went: The first surgery was on the 16th and they went through my left side to access and remove 4 bad discs in the lumbar area. After they removed them, they were replaced with cage-like thingies (PEEK implants) that were filled with bone and other material that will promote bone growth. What they did there opened up my spine to normal heights, and relieved all the nerves that were being compressed. They sewed me up and I have about a 6" set of stitches that will dissolve on their own. This approach is known as an XLIF and while there are some spine specialists that do it, my doctor is truly one of the best and most experienced at it.

    That following Friday they attempted the second surgery, however, something happened that caused my heart rate to to increase......like, off-the-charts-increase. They quickly stopped the procedure and woke me up which is a story in and of itself that I’ll tell you later.

    Because of the complication, I had to go to the ICU and stay there for several days. I found the nurses are nicer in the ICU - one of them made these cute little cut-outs for my back brace. They were cut outs of hands (she traced her own hands onto orange paper) and we placed them over my boobs and lower lumbar area, so whenever I had to get up and walk around the unit it made for quite the show. Things get pretty serious in the ICU so I was the comic relief. Plus they had me on a very strong morphine drip and I found out I can and will say anything under the influence of morphine.

    The following Monday (the 23rd) they re-attempted the the posterior surgery. It went fine and they were able to put all the screws and rods in that straightened out my back (T10 thru L5). I don't have numbers confirmed yet but I'm pretty sure I'm 2 inches taller!

    I went home on July 1st. Most of the hospital stay was a bit of a blur (thanks to Mr. Morphine). I can't do anything other than sleep alot, or watch TV and I have no attention span at all. In fact, it's taken me about an hour to write this and I need to quit and go lay down.

    As the day wears on, I’ll fill in more details, but for now I just wanted to let you all know I was okay, even after a 16 day hospital stay.

    Many of my earlier fears about surgery ended up being totally silly, others were right on (like the NURSES, haha). Like I said, more later. I need to go lay down for awhile.

    Thanks to you all for the prayers and good vibes, they were all answered!
    Susan
    XLIF/Posterior Surgery 6/16/08. Fused T10-L5 in CA by Dr. Michael Kropf (don't go there unless it's simple, I hear he's at Cedar's now). Very deformed, had revision w/5 PSO's, rods from T-3 to sacrum including iliac screws, all posterior, 5/23/16 with Dr. Purnendu Gupta of Chicago.


    Owner of Chachi the Chihuahua, So Cal born and bred, now a resident of 'Chicagoland' Illinois. Uh, dislike it here....thank God there was ONE excellent spine surgeon in this area.

  • #2
    Hi Susan!!!

    While I had already heard the good news that your surgeries are finally over and went well, it's still great to see you posting again here!!!

    Welcome back!!!

    Get your rest though, as well. I'm sure before you know it you'll be feeling a whole lot better and stronger!

    Best,
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

    Comment


    • #3
      I'm so glad you are home after all you were through and such a long time. You go rest and don't worry about updating us until your have more energy!
      __________________________________________
      Debbe - 50 yrs old

      Milwalkee Brace 1976 - 79
      Told by Dr. my curve would never progress

      Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
      Pre-Surgury Thorasic: 66 degrees
      Pre-Surgery Lumbar: 66 degrees

      Post-Surgery Thorasic: 34 degrees
      Post-Surgery Lumbar: 22 degrees

      Comment


      • #4
        Yes you do say and do funny things while dating Mr. Morphine!! LOL I am SOOO happy to see you post your self! Great job Susan. It is quite funny in hind site at all the things we worried ourselves to death about and then it turns out to have been such a non-issue. Now you too can help ease the worries of the newbies and set their minds at ease. Welcome back, you have been missed. Give a big thanks to Matt for keeping us up to date. Talk to you soon. Best wishes.

        Comment


        • #5
          YAY, Susan!

          It's just wonderful to hear from you! I am sure you entertained the troops royally in the hospital; you are a funny lady even without "Mr. Morphine"! That does sound like a fun ICU!

          I've been wondering how it's been going and was tempted to call Matt several times in the past few days to get your phone number, but kept reminding myself to be patient! Yes, the surgery and the meds zap all your strength away and you need to rest/nap after every little endeavor. I remember how exhausting just taking a shower was, even though I sat down the whole time on my shower seat. I would have to rest and take a nap from that. Believe me, you will perk up soon enough. Right now your body is screaming for sleep (the natural healer) -- not to mention the fact that the pain meds are wreaking havoc on your mental capabilities as well. So those of us who've been through it understand completely that you need your rest-- and that you're not working at the top level of your thinking processes. We will wait as long as necessary for the next installment of your surgery sojourn...

          So, rest up for now. I'm sending hugs and healing thoughts and prayers your way. Susie
          71 and plugging along... but having some problems
          2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
          5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
          Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

          Corrected to 15°
          CMT (type 2) DX in 2014, progressing
          10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

          Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

          Comment


          • #6
            Dear Susan,

            So good to hear from you and I am glad you are finally home from the hospital. I am sure you are happy to be home and in your own bed. Take it nice and easy and get lots of rest. I will be thinking of you and praying that you have an uneventful recovery. I bet that sweet little chihuahua is happy to see you. Take care, Sally
            Diagnosed with severe lumbar scoliosis at age 65.
            Posterior Fusion L2-S1 on 12/4/2007. age 67
            Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
            Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
            New England Baptist Hospital, Boston, MA
            Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

            "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

            Comment


            • #7
              Good work, Susan!! Congratulations on a successful surgery and for emerging from the whole experience with your sense of humor intact. Looking forward to hearing more from you in between lie-downs.
              Chris
              A/P fusion on June 19, 2007 at age 52; T10-L5
              Pre-op thoracolumbar curve: 70 degrees
              Post-op curve: 12 degrees
              Dr. Boachie-adjei, HSS, New York

              Comment


              • #8
                LMAO, Susan ... I happen to have a photo of your "decorated brace" (thank your kiddo for THAT one - LOL) ...

                If you'd care to show it, just let me know. I still crack up every time I look at the lil' strategically placed orange hands.

                You really have to wonder how much fun stoned patients are for bored nurses - heh.

                'Bout damn time you posted!

                Love ya,
                P
                Fusion is NOT the end of the world.
                AIDS Walk Houston 2008 5K @ 33 days post op!


                41, dx'd JIS & Boston braced @ 10
                Pre-op ±53°, Post-op < 20°
                Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


                VIEW MY X-RAYS
                EMAIL ME

                Comment


                • #9
                  Congrats on now being on the other side. Your 2nd surgery date delay must have been very stressful for you --- on the other hand (no pun intended), you probably weren't aware enough to have gotten stressed out, thanks to Mr. M.

                  My comments merely reinforce what others have said: you will be exhausted for quite a while, so rest as much as you can - you are entitled to do so. Your body will tell you when it is ready for more activity. The attention span problem gets better, too; just don't sign any important legal documents right now!

                  When you have the energy, post more of what you remember, but don't feel you must rush to do so. We'll be here, waiting patiently.
                  As of 12/25/07, age 62, 100* thoracic kyphosis, 73* L1-S1 lordosis, 37*/25* compensatory S-curve scoliosis. On 12/26/07, Dr. Boachie @ HSS NYC did 11 hours ant. & post. procedures, fused T2-L2, kyphosis now 57*, scoli 10*. Regained 2 1/4 inches in height!! Improving every day.

                  Comment


                  • #10
                    I'm so glad to hear from you! You've been on my mind a lot. Listen to what the others have said... They are wise and wonderful... Looking forward to the next installment of your story.... (((hugs))) JoAnn

                    Comment


                    • #11
                      LOL Pam

                      Originally posted by txmarinemom
                      LMAO, Susan ... I happen to have a photo of your "decorated brace" (thank your kiddo for THAT one - LOL) ...

                      If you'd care to show it, just let me know. I still crack up every time I look at the lil' strategically placed orange hands.

                      You really have to wonder how much fun stoned patients are for bored nurses - heh.

                      'Bout damn time you posted!

                      Love ya,
                      P
                      Go ahead and post it Pam - seems you're the only one with a copy of it - I asked Matt for it and he said he had to erase everything out of his phone for space reasons.

                      And - it'll give you an idea of my 'custom brace' . The rep for the bracing company took about 50 measurements to get just the right fit - and one that would retract when the swelling went down. I'm not going to get involved in the discussion of whether or not braces are needed or not as I picked my doctor very carefully and if he says wear a brace for 3 months? I'm going to wear a brace for 3 months. Besides - it's not that bad and I am going to start adding signatures and pics to it (like a cast) with permanent markers so that it's REALLY decorated!
                      Susan
                      XLIF/Posterior Surgery 6/16/08. Fused T10-L5 in CA by Dr. Michael Kropf (don't go there unless it's simple, I hear he's at Cedar's now). Very deformed, had revision w/5 PSO's, rods from T-3 to sacrum including iliac screws, all posterior, 5/23/16 with Dr. Purnendu Gupta of Chicago.


                      Owner of Chachi the Chihuahua, So Cal born and bred, now a resident of 'Chicagoland' Illinois. Uh, dislike it here....thank God there was ONE excellent spine surgeon in this area.

                      Comment


                      • #12
                        Glad to hear all ended up going well! Continue to rest and heal
                        Gotta go PT is here...
                        2 60* curves, DDD, left trunk shift, some rotation, rib and lumbar humps, annular tear at L5-S1
                        surgery 5/08 planning fusion T3 or T4 to sacrum with iliac fixation
                        Dr. Anderson at Rothman Institute
                        5/16/08 ALIF L1-L5
                        5/23/08 fused T2-sacrum w/fixation and I'm all Titanium
                        6/4/08 open all back up to clean out for Staph infection
                        (left open with just clear dressing)
                        6/6/08 recleaned and closed
                        3/30/2012 revision planned, broken rod and removal of iliac bolts

                        Comment


                        • #13
                          Wait!

                          Originally posted by Chihuahua Mama
                          Go ahead and post it Pam - seems you're the only one with a copy of it - I asked Matt for it and he said he had to erase everything out of his phone for space reasons.

                          Pam, I changed my mind. Do not post that picture. I repeat - DO NOT POST THAT PICTURE. I forgot about the swollen mug after surgery. and TMI for a forum.

                          LOL....sort of.
                          Susan
                          XLIF/Posterior Surgery 6/16/08. Fused T10-L5 in CA by Dr. Michael Kropf (don't go there unless it's simple, I hear he's at Cedar's now). Very deformed, had revision w/5 PSO's, rods from T-3 to sacrum including iliac screws, all posterior, 5/23/16 with Dr. Purnendu Gupta of Chicago.


                          Owner of Chachi the Chihuahua, So Cal born and bred, now a resident of 'Chicagoland' Illinois. Uh, dislike it here....thank God there was ONE excellent spine surgeon in this area.

                          Comment


                          • #14
                            Originally posted by Chihuahua Mama
                            Pam, I changed my mind. Do not post that picture. I repeat - DO NOT POST THAT PICTURE. I forgot about the swollen mug after surgery. and TMI for a forum.

                            LOL....sort of.
                            Oh Pam...now you HAVE to post it! LOL
                            Geish
                            47 years old, dx at 13
                            +30* to the right, +60* to the left, +30* to the right
                            Surgery 12-13-07 - fusion from T4 to sacrum.


                            http://www.scoliosis.org/forum/attac...tachmentid=267 Pre surgery
                            http://www.scoliosis.org/forum/attac...tachmentid=268 Post surgery
                            http://i156.photobucket.com/albums/t...s/DSC01091.jpg Xray from the side
                            http://i156.photobucket.com/albums/t...1089-1-1-1.jpg Xray from the back

                            Comment


                            • #15
                              The &quot;adjusted&quot; pic

                              Susan ... as we discussed ...

                              Here it is! LMAO!!

                              Pam
                              Fusion is NOT the end of the world.
                              AIDS Walk Houston 2008 5K @ 33 days post op!


                              41, dx'd JIS & Boston braced @ 10
                              Pre-op ±53°, Post-op < 20°
                              Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


                              VIEW MY X-RAYS
                              EMAIL ME

                              Comment

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