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Susie*Bee
07-03-2008, 05:11 PM
Just wondering out loud... I get headaches quite often and just wondered if some of you do too-- and whether anyone knows if it could be something that comes along with the other scoli-- and post-op-- baggage.

I know half (and then some) of the non-scoli people get headaches too, but thought maybe some of us might be more prone because of extra strain somehow. Anyone have some ideas or knowledge on this?

trishthedish
07-04-2008, 12:40 AM
I developed migraines after my first surgery in 2003, but have not had one in the 2 months since the 2008 surgery. That's something I am keeping a journal on. Will let you know if I find any info on this.

sccrm08
07-04-2008, 01:05 AM
Susie,

I have been wondering the same thing too.

Years ago, I suffered from severe headaches and minor migrains. The last two months I have had several migrains. Just last friday I felt like something snapped in my neck and by the next morning I had a migrain that would not let go by Tuesday evening my husband wanted me to go to the ER but I would not go as I didn't want to get sick in the car.(stupid I know) also I thought it might be the turning point and start to go away which it did, I had no headache today.

I would love to hear if anyone else gets Migrains or severe headaches since there surgeries....I really hope this is not going to be a side effect from the surgery.

JoAnn5
07-04-2008, 06:38 AM
It may possibly BE connected somehow, but happened in reverse for me. I haven't (knock on wood) had a migraine since i had my surgery, but they were frequent before!

loves to skate
07-04-2008, 08:41 AM
I have had a definite increase of migraine auras (thank God, I don't get headaches with the aura) recently at 7 months post-op. I have been waking up in the mornings with them. I always though they were caused by stress, however, I don't feel stressed right now. It would be interesting to know if they are related to the surgery. I know they can be related to menopause for those of us who never had them when we were younger. Sally

Singer
07-04-2008, 09:49 AM
Interesting....I must say that headaches are one thing I almost never get.

lelc2002@yahoo
07-05-2008, 04:28 AM
Same as Singer here, I've never had headaches, migraines since surgery..
I do feel I am much worse on remembering people's names etc.....sure I lost a few brain cells with the anesthesia...augh!
Lynne :eek:

Singer
07-05-2008, 08:51 AM
Lynne -- YES, I am also much worse at remembering names since surgery. I often wonder if it's anesthesia-related or the stress of the operation.

Janet
07-05-2008, 12:19 PM
I too have difficulty remembering names - of people, events, objects, etc. It was a lot worse in the first 3 - 4 months following surgery. Also I would use the wrong words - sometimes not even related to what I was trying to express!

I'm much improved now, but the name thing is still lurking and makes itself known from time to time.

I suppose like everything else related to this extreme surgery, it just takes a long time to (hopefully) fully recover.

Susie*Bee
07-05-2008, 01:11 PM
I like the way this thread is moving... that's the fun part of something like this-- sometimes it heads off in another direction -- and in this case, it's been really fun and fantastic. ;) (For me, who started it!)

This is why: It has to do with not remembering names/words, etc. (I'll lump them together to make myself feel better!) Anyway, I keep wondering if I am having pre-Alzheimer's problems or something occasionally-- not always, mind you! I just can't remember some words that used to be "right there" always for me. But usually I can think of the first letter of that word... weird, huh?! The other day when I was posting about the test they did on my legs to see if there were blood clots, I could not think of "ultra sound" so had to go round-about and look it up. Aughhhhh! :eek: Now you ladies are helping me to rationalize those lapses and feel a little better. I think the clarity is still there in almost all cases-- I am as lucid (I think!) as I've ever been, but I just can't seem to capture the correct word I want at times... :rolleyes: Maybe there is hope-- and then again... :confused:

Regardless, thanks for the info and all your sharing. It looks like the headache thing is probably just a "some do, some don't" thing. And maybe so is the "brain cell" revolt/rebellion. Some of us had our brains say "hey, she went to sleep *forever and a day* so we're just gonna take it easy too"... ;) Sounds good to me! Hopefully those little buggars on R&R will "hop to" and do their jobs better soon! :D

Susie*Bee
07-05-2008, 04:23 PM
I hope most of you realize that was a bit tongue in cheek... I am not forgetful about most things-- just the occasional word, and not that often. OK? So please don't feel concerned. It dawned on me that it might have come across sounding bad when it's really not. ;) Besides, we are ALL constantly sloughing off brain cells. I think it just happens to escalate a bit when we get older. :rolleyes:

Singer
07-05-2008, 07:30 PM
If I had a nickel for every time I've said to my husband, "I swear I have early Alzheimer's...."

I have drawn total blanks while attempting to introduce people to each other...people I have known for years. It's very disconcerting.

I've tested myself with trying to remember what I was wearing the day before, or what I had for lunch or dinner the previous day, and I have to really concentrate and reconstruct the day mentally to remember.

I was NEVER this way before surgery. I'm going to start working part-time in September (office work) and I'm hoping that the increased activity and interaction will sharpen me up a bit. In my opinion I'm WAY too young to be so dotty!!!!!

JamieR
07-05-2008, 09:56 PM
I had pretty constant migraines, enough to be put on medication for them. After my surgery, I have had maybe 2 or 3 since, so my headaches have gone down, I don't even have to take the preventative medication anymore. Before surgery, I was having 4-5 migraines a week, sometimes even more than that. I don't know if my scoliosis had anything to do with my headaches, but I have noticed a big improvement either way.

Susie*Bee
07-10-2008, 12:49 PM
Hi-- just me again. :rolleyes: I have another one of my biggie headaches today. I wake up with them sometimes, and they get progressively worse as the day wears on. They even make my skull hurt-- forehead, temples, back of eyes, top of head, a broad region around the occipital area, etc. I FINALLY figured out what they are called, and it all makes so much sense to me. They are cervicogenic headaches. At least all the symptons, duration, intenseness, etc. meets up with what those can be. I knew they didn't have all the migraine symptoms but couldn't figure out what kind of other bad headache they were, as they are bad enough to make me feel sick. Anyway, it has to do with originating in the cervical spine. Hence, I am sure in my case it is scoli related. I used to get them before the surgery also, and would often describe them as going down into my back (and yes, everyone would look at me weird then!) :eek:

Tylenol didn't begin to touch this one, so just took a darvocet and hopefully once it kicks in it will allow me to feel well enough to function for the rest of the day. Anyway, just thought I'd pass on the info about that other type of headache, as it's not a label I've run across when searching about headaches. (Like on the Mayo website, etc.) Actually, I think I'll go to that one again, now that I have a name for the type of headache, and see if it's listed there.

Qikdraw
07-10-2008, 02:20 PM
This is why: It has to do with not remembering names/words, etc. (I'll lump them together to make myself feel better!) Anyway, I keep wondering if I am having pre-Alzheimer's problems or something occasionally-- not always, mind you! I just can't remember some words that used to be "right there" always for me. But usually I can think of the first letter of that word... weird, huh?! The other day when I was posting about the test they did on my legs to see if there were blood clots, I could not think of "ultra sound" so had to go round-about and look it up. Aughhhhh! :eek: Now you ladies are helping me to rationalize those lapses and feel a little better. I think the clarity is still there in almost all cases-- I am as lucid (I think!) as I've ever been, but I just can't seem to capture the correct word I want at times... :rolleyes: Maybe there is hope-- and then again... :confused:

I have the same problem! You mean I can blame it on the surgery? I never knew that! So the time I forgot my wife's birthday its not really my fault? *whew* Maybe I will hear the end of that one. :D


Regardless, thanks for the info and all your sharing. It looks like the headache thing is probably just a "some do, some don't" thing. And maybe so is the "brain cell" revolt/rebellion. Some of us had our brains say "hey, she went to sleep *forever and a day* so we're just gonna take it easy too"... ;) Sounds good to me! Hopefully those little buggars on R&R will "hop to" and do their jobs better soon! :D

I'm one of those that don't get headaches. Well I do, I just don't think its an abnormal amount.

Brad

Susie*Bee
07-10-2008, 02:45 PM
Ha ha! LOL! You are a funny fellow! :D You can at least "try" that one on your wife, but if your surgery was THAT long ago, I doubt if it will work... ;)

I DO get those headaches-- and they are debilitating too. Oh dear. They have been getting worse, I think, and I start back to work in a month. At least that darvocet has made it not as bad-- but then again, I'm feeling a bit light-headed. Maybe it's time for a little nap! (But I have prided myself on not having had one since about 5 or 6 months post-op, so this would break my good record if I do...) What's a body to do? :confused:

Qikdraw
07-10-2008, 03:04 PM
Ha ha! LOL! You are a funny fellow! :D You can at least "try" that one on your wife, but if your surgery was THAT long ago, I doubt if it will work... ;)

Well in my defence I was under a lot of stress at work at the time, and we were also planning a trip to Cancun for her birthday. Its just that on her birthday I forgot it was her birthday. :(


I DO get those headaches-- and they are debilitating too. Oh dear. They have been getting worse, I think, and I start back to work in a month. At least that darvocet has made it not as bad-- but then again, I'm feeling a bit light-headed. Maybe it's time for a little nap! (But I have prided myself on not having had one since about 5 or 6 months post-op, so this would break my good record if I do...) What's a body to do? :confused:

Have you tried hot baths (with lots of bubbles) or hot tubs? Getting a massage from your husband? I'm shooting in the dark here, but just a thought. :)

Brad

debbei
07-10-2008, 04:07 PM
I'm sorry Susie that you're getting these headaches. Is there something you can do to prevent them? What makes them go away? Sleep?

I hope you feel better soon. I get sinus headaches sometimes, (knock on wood not so recently) and to me they feel horrible. Sometimes the only thing I can do is go to bed.

Susie*Bee
07-10-2008, 04:47 PM
Thanks, Brad and Debbe-- for your concern, but it's ok.

Brad -- it would probably give me more of a headache to try getting in and out of the tub with my long fusion and extra cushioning! :o Plus I don't think I could get comfy anyway-- I'd miss that way I used to slump (is that a word?) down in the tub by bending my back! It just wouldn't be the same to sit up "straight as a rod" (or two!) But the thought is nice. And I have an aversion to massages for some reason. It has to do with a strange grandmother I had who insisted on giving me a swedish rubdown when she returned from living in Europe when I was about 10 or 11. :eek: Wrong age, wrong person, etc. And she really absolutely gave me no choice in the matter. :mad: Obviously it affected me, if it still riles me over 40 years later. :eek:

Debbe-- I really think from what I've read that it all has to do my cervical vertebrae/nerves/etc. and the stress, so I don't know that there's any way to prevent them. I am always "tight" through the neck and shoulders anyway-- as in very tense. I will check with my scoli doc when I see him in Sept. I try to massage the back of my neck (that much I can tolerate, Brad!) some, but it doesn't do much. (A funny thought-- I wonder if I could have triggered this one by seeing how far I could turn my head, several times, in response to that question Pam had on people being fused to T1 in that one post yesterday... :rolleyes: Can't you just picture it?) But I doubt it. And Debbe-- funny that you should mention sinus headaches-- that's what I kept thinking at first, but with no sinus problem. They really remind me of sinus headaches in many ways--even my cheekbones hurt. And yes, I feel like going to bed when I have a bad one. However, I didn't go take a nap after all, so my record still holds. :)

Qikdraw
07-10-2008, 05:01 PM
Thanks, Brad and Debbe-- for your concern, but it's ok.

Brad -- it would probably give me more of a headache to try getting in and out of the tub with my long fusion and extra cushioning! :o Plus I don't think I could get comfy anyway-- I'd miss that way I used to slump (is that a word?) down in the tub by bending my back! It just wouldn't be the same to sit up "straight as a rod" (or two!) But the thought is nice. And I have an aversion to massages for some reason. It has to do with a strange grandmother I had who insisted on giving me a swedish rubdown when she returned from living in Europe when I was about 10 or 11. :eek: Wrong age, wrong person, etc. And she really absolutely gave me no choice in the matter. :mad: Obviously it affected me, if it still riles me over 40 years later. :eek:

Whoops! I answered your PM before I saw this...

You should be ok with the tub, just make sure you have some of those non-slip mats in it. My fusion is from T2-L4 and I get in and out ok. Granted I've had a lot longer to get used to my fusion. You youngsters don't know what it was like in 'my' day. lol

One good thing about having a long fusion, no one can ever say your slouching. I've been complimented on my posture before, I just tell them I can't help it. lol

I can definately understand the aversion, but by making into a 'romantic' night it may help you replace those older memories. My wife's massages are great and not only because of the massage. :D

Oh, and she read my post about forgetting her birthday and she said 'thats not an excuse'. *sigh* :(

Brad

ladare
07-13-2008, 08:22 AM
Hey Susie, I'm really sorry to hear of these bad headaches you are experiencing, especially since you are heading back to work soon. I've just now read this thread and can only add that the frequency of migraines increased when I started taking Tramadol about three months before surgery (before that I was on Vicodin and my migraines were on their usual schedule). I've been off Tramadol since surgery, but have had many medium strength headaches which I think is due to the Oxycodone. But yesterday I had another migraine.... Late in the afternoon I thought I was feeling better and got up to start a post, but ended up dashing to the bathroom to give it all up again... I spent almost all day in bed. It's hard to deal with these extra problems when dealing with the surgery is big enough. I hope your doc can find a med that will help you but keep you clear thinking for work. That's been my struggle - pain meds make me so loopy I can't think clearly, I can't read well, I often forget what I'm talking about mid-sentence, forget people's names, etc. I'm quite convinced it's the pain meds causing my brain problems, not the scoliosis. Keep us posted on what you find works for you. BTW, when do you head back to work, mid-August? Blessings. Lisa

sparks42
06-04-2010, 06:44 AM
Hello,
I'm 23, had spinal fusion at 18

had terrible migraines/headhaches ever since, but never before.

THEY HURT and I'm going to lose my job for attendance issues :'(
just came back after being suspended, and I'm having head/neck pain.

gotta love the call centers and insurance companie that think im faking my pain because im simply lazy, and dont want to work

FURSTRATED !!!

sorry for the rant style

Confusedmom
06-04-2010, 11:04 PM
On the forgetfulness thing, names, words, etc., I would not be surprised at all if it is related to the surgery. Have you heard of "chemo brain?" People who undergo cancer treatment experience this. I am guessing it's a combination of the stress of treatment, the fact that you are thinking about a LOT of things all the time, relearning how to function in different ways, and also possibly the pain medication. I'm guessing (hoping!) that it gets better with time.

Evelyn

Susie*Bee
06-05-2010, 09:28 AM
I was surprised to see this thread I'd started 'way back in ot (how in the heck do you spell that-- the substitute for zero?) eight, making the rounds again. I'm sorry to hear of your problems, Sparks. :( I really understand how miserable migraines/headaches can be. Since you mention insurance companies, I'm assuming you must have been to see a doctor about yours. My family doctor tried a few things with me (a high blood pressure med that apparently prevents migraines in some people, but didn't with me-- and I didn't have hbp) and then decided to send me to a neurologist a few months ago. In the meantime he had prescribed tramadol, which helped cut the pain a little, so that was a little better, but not great.

The neurologist had me keep a headache diary, recording the dates of my headaches. He also gave me a few samples to try and a prescription for a generic med. Yay! Generic always sounds good. Don't be fooled by that word! :eek: These generics are roughly $10 each... Yes, you heard me right, each pill! These generics are to be taken at the onset of a migraine and they work wonderfully for me. They are a sumatriptan, generic for Imitrex. (I think that's it.) Now he is having me take something to try to decrease the number of migraines I have. I think he diagnosed my headaches as common migraines, but whatever they are, mine last usually 2-4 days and I often get them 2-3 times a month.

And this (somehow) :p leads me to mention to Evelyn that definitely there are meds that cause "brain fog", because this one is written in the medical literature as being one of the culprits-- at least it's one of the possible side effects. It can cause the inability to think of simple words to put together in a sentence, forgetfulness, etc. So far, I'm good to go and I've been on it for a month... Anyway, it's topiramate, generic for topamax, nicknamed dopamax :rolleyes: (even in the medical literature!). And the good news is that I have only had a bad headache for one day since I started taking it one month ago, and I just got to full dosage this week. (You have to build up to it... It is actually an anti-seizure medicine but is FDA approved for migraine control, but needs to be started in stages-- so I took 50 mg the 1st week, then 100, then 150, now 200... and that is where I'll remain. If or when I stop, it will also have to be stopped in stages or it can cause seizures. Sheesh. Life is full of scary stuff, aint it. :eek:

Good luck with your headaches and with your job, Sparks.