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theizzard
06-23-2008, 10:32 AM
Hi,
I am new to this board and I just came from a 21/2 hour MRI of my thoracic and lumbar spine. I had a 3 level fusion 3 years ago that was supposed to fix me and answer all my problems but of course it didn't. it barely touched the tip of my curve. at the time i had no idea that my curve would continue to grow and now i have a 57 degree curve and I don't know if it's really bad or not. i do know i am in pain and cannot walk. 4 years ago i could easily walk 4 miles a day and now i can barely walk a block. i live outside of philly and saw a doctor last week who sent me for the mri & xrays. he specializes in scoliosis and spinal deformity but someone i know from another board tells me his reputation isn't great and that I should go to ny to see dr. bitan. anyway, i like the guy and I really don't feel like going to ny to see someone. at this point i haven 't committed to surgery and he hasn't told me exactly what he has in mind. he will be sending a letter out to me and my referring surgeon with details of what he would do. apparently i lean to the right and also cannot stand up straight. if my arms were longer i would look like a monkey dragging my hands on the ground. he said he would start at t10 and go to the pelvis. i asked why he wouldn't start higher up and he said it didn't need it and he saw no reason to do the entire spine (just half of it). so now i wait and figure out when i could fit in surgery and recovery. i am 57 years old and i am working on getting a psyd in psychology. i already missed one semester to get a new hip. so that's all for now. i am so happy to have been directed to this site and unfortunately don't even remember who was kind enough to give me the link but thanks anyway.
avis :D

briarrose
06-23-2008, 11:28 AM
Hi Avis,

Sorry to hear that your curve has progressed. That's not very pleasant to hear. What doctor did you see? There are a lot of Philly people on here (I live about 50 miles west of Philly) who could suggest other doctors. I had surgery 4 weeks ago by Dr. Fras. I really like him and feel that he did a great job with my surgery. I can give you his number if you are interested.

Good luck!

Shell

Janet
06-23-2008, 11:36 AM
Avis,

Welcome to this forum. You will find so much info here that a spine doctor doesn't have the time or personal experience as a patient to tell you.

If you do decide to pursue surgery, I suggest you consider a trip to NYC to consult with Dr. Boachie. He did my T2 - L2 fusion six months ago (severe kyphosis and compensatory scoliosis) at age 62, and attained a very good correction considering my age and that the curves began when I was 13 and thus there was a lot of calcification and rigidity. He is one of the very best out there, and I decided, after consulting with several spine surgeons locally, that I would entrust my spine only to him.

Good luck to you as you begin this process.

Keep us posted!

Janet

theizzard
07-06-2008, 06:29 AM
thanks for the replies. the doctor in philly i saw was dr. vaccaro. has anyone had their surgery done by him or know anything about him. i sent my films to dr. bitan in new york and i am waiting to see what they have to say. i know someone who has had surgery with dr. bitan and she raves about him but it was not scoli surgery. is dr. fras in philadelphia?
avis

Karen Ocker
07-06-2008, 02:47 PM
Do not go to a doc who does not have extensive experience with scoliosis--especially do not let them fuse other levels. Why? Because the whole spinal balance/alignment must be considered. The spine can continue to curve in other places and you are in a mess. :eek:

Search this forum and you will get your answers.

briarrose
07-06-2008, 11:01 PM
Dr. Fras sees patients in Broomall and at Lankenau hospital. He's very nice and I feel he did an excellent job with my surgery and correction. There were definitely some issues though. The Briarrose Surgery Update thread explains some of them or I can PM you if you are interested.

Susie*Bee
07-07-2008, 07:11 AM
Hi Avis! I'm so glad someone gave you the link to the forum! It is a great place to find info and support and understanding! We are all in the same boat-- or else have a loved one in it. Because of the understanding aspect, it's a great place to share some of the thoughts or emotions that can try to control us at times... without feeling like you're upsetting your own family by voicing your concerns or fears. It's also a great place to share about our victories and how exciting this can be too!

I'd like to echo the thought of making sure you have an experienced scoliosis specialist as your doctor. With something this big, you really need to have total confidence based on fact. It's alright to ask questions! Find out how many scoli surgeries they do, etc. Most people seem to get second opinions (and third, etc.) until they feel like they are sure of their doctor-- and that is soooooo important. It's your spine-- pretty much the foundation of your body, that is probably going to need major reconstruction. So you definitely want it done right!!!

Both of the scoli books I wrote about in the link below have sections on choosing a surgeon that you may find helpful. They also have lots of good info, period. I'm just putting the link here because it's easier for me and also has Linda Racine's extremely thorough website of scoli resources and info. http://www.scoliosis.org/forum/showpost.php?p=60239&postcount=12

Best wishes as you continue your scoli journey. :) Susie

theizzard
07-07-2008, 07:37 AM
Thanks for the input. As a matter of fact, over the weekend I ordered the scoliosis sourcebook and it should arrive by tomorrow I think. it is so validating to find that my symptoms which seem odd to me are just common scoli things. The other day i was wondering why my waistline had changed :D from being low waisted to high waisted with my boobs now laying near my waist and someone wrote that that was a result of scoli. Now it makes sense especially since I have lost at least 11/2 inches in height. I sure hope after surgery that I can gain height back and have my waist go back to where it used to be. sorry for babbling
thanks again.
avis