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scurve_99
06-17-2008, 05:07 PM
I was wandering if there was anyone on here that is currently wearing a milwaukee brace for scoliosis or kyphosis? I was also wandering if anyone who is wearing one is past the age of skeletal maturity as it seems most doctors and orthotist tend to stop using the brace once that age is reached except in rare cases?

Mike

TraumaScoli
06-17-2008, 05:45 PM
I was wandering if there was anyone on here that is currently wearing a milwaukee brace for scoliosis or kyphosis? I was also wandering if anyone who is wearing one is past the age of skeletal maturity as it seems most doctors and orthotist tend to stop using the brace once that age is reached except in rare cases?

Mike

I am one of those rare cases, I wear one to keep my very very flexible spine from curving and causing breathing problems. I had scoliosis as a kind, it was brought back due to a spinal trauma. I am 36 and without it, my legs go paralyzed and my breathing is hard. I cannot get surgery, so I wear this to eleviate pain and to keep mobility. Yes its very odd that I am this old and use it, but with therapy and exercise and poper care, i have gotten pretty used to it. My spine Curves, bowes and trwists. Sometimes it is hard to sleep and the heat OMG. But all and all I do not know where I would be without it. In a wheel chair or worse.

ElleBelleCurvz
06-17-2008, 08:49 PM
I hope to god I don't need one.
Recently I went to my doctor and 2 of my three curves are being braced. But the top one went up 3 degrees to be at 19 I know that there is a 5 error but I know that my curve could continue to progress. My doctor thinks I may need one if it does. :-(

scurve_99
06-18-2008, 06:50 PM
Hello Danielle

Sorry to hear about the increase in your upper curve. I hope you do not have to wear a milwaukee either. If it does come to that perhaps you can ask about a chaneau brace as an alternative. When do you go back to your doctor to find out? I am surprised that he/she did not just make the change when you were last there if he is considering it. Perhaps they are just waiting until your next xray to verify that the curve is progressing. As for the boston brace it seems I have seen so many different style of them. Some high some lower and some just for sleeping. What kind do you have and is it easy to conceal under clothing? My wife now has TLSO with a thoracic extension thatshe hates for her kyphosis. We are looking for other options.

Mike

scurve_99
06-18-2008, 06:58 PM
Kevin

I am not sure I see it as odd that you wear one so long as it helps and keeps you mobile. My wife has kyphosis and we have been told by some that the milwauke brace is the best brace for her but the doctor and orthotist are hesitant about perscribing such a brace at her age. However I have been reading that even at her age bones can change and that the brace can help. I just do not want to see her get worse later in life.

Right now my wife has a TLSO with a thoracic extension which she hates. The TLSO is ver hot and very high in the back which she does not like. I would think a milwaukee brace would be cooler due to the metal structure and less plastic but she is afraid of the neck ring and having people stare at her. The other option that we are considering is the Cheneau brace.

Mike

ElleBelleCurvz
06-18-2008, 10:26 PM
Sorry to hear your wife has a tlso.
I have one as well but I just call it a boston because it is so similar.
I may ask my doctor about that next time I go (Sept. 17) Thanks for the advice. But he is verry careful with his patients, his daughter has the same brace as me so he really does care about his patients. So much in fact it's annoying, but I will not wear the milwaukee if it gets to tha I will try EVERYTHING. Thanks a ton though, i'm gonna go research that a bit.

TraumaScoli
06-19-2008, 12:45 AM
Kevin

I am not sure I see it as odd that you wear one so long as it helps and keeps you mobile. My wife has kyphosis and we have been told by some that the milwauke brace is the best brace for her but the doctor and orthotist are hesitant about perscribing such a brace at her age. However I have been reading that even at her age bones can change and that the brace can help. I just do not want to see her get worse later in life.

Right now my wife has a TLSO with a thoracic extension which she hates. The TLSO is ver hot and very high in the back which she does not like. I would think a milwaukee brace would be cooler due to the metal structure and less plastic but she is afraid of the neck ring and having people stare at her. The other option that we are considering is the Cheneau brace.

Mike

Thanks Mike, I have been wearing it for some time now, sleeping and temperature are the hardest thing. I to heard that bones can change. It is Hot in the summer and the stress of just learning to relax in it is hard and makes you sweat. I have become a very good driver with it. When I got it, I was so afraid to drive, but with mirrors and extra EXTRA caution, I can drive quite well. I have a neck ring, I wish I had the lower neck version, but my cervical curve is one main reason I get migraines. The neck ring helps out I guess.

Danielle, I hope you do not get a Milwaukee, for me it is a life saver. a Pain in the neck, (lol) life saver but one at that, without it and proper exercise I would not be walking because of the trauma to my spinal chord.

Thanks, and stay strong. =)

ElleBelleCurvz
06-19-2008, 01:31 AM
Thanks Kevin.
Hope all is doing well. Or at least....bearable.

Snoopy
06-19-2008, 10:49 AM
Mike,

Don't assume that getting a Milwaukee brace means no plastic. My daughter had a "modified" Milwaukee brace and the bottom part was hard plastic, just like a Boston brace. Jamie's brace didn't have a neck ring. Instead, hers had a metal bar that went over each shoulder and was very close to her neck and very uncomfortable.

I think I have a very good idea of what your wife's brace looks like. When Jamie couldn't wear the Milwaukee brace, they switched her to a Boston brace with an extension. Hard plastic brace with a chunk of metal going up the front with a triangle shaped piece of hard plastic with padding. Is your wife's similar to that?

Mary Lou

scurve_99
06-19-2008, 12:52 PM
Mary Lou

My wifes brace is exactly like you described and in fact I believe the shell may have been ordered from the boston Brace company as they tend to make a number of different styles. Her brace does not have shoulder straps to help pull her shoulders back and the orthotist had them make the back part out of a more flexible plastic. As for a Milwaukee brace I do realize that the lower portion (pelvic girdle) is made of plastic just like her TLSO but it seems to be lower and cover less area. That was just my observation. By know means do I think a milwaukee brace is a walk in the park.

Kevin

its interesting that you mention migraines as my wife started getting migraines about two years ago and the doctors seem to have no idea as to what is causing them. She starts seeing spots in front of her eyes when one starts to come on. I wander if they could have something to do with her kyphosis.

Mike

TraumaScoli
06-19-2008, 01:47 PM
Mary Lou

My wifes brace is exactly like you described and in fact I believe the shell may have been ordered from the boston Brace company as they tend to make a number of different styles. Her brace does not have shoulder straps to help pull her shoulders back and the orthotist had them make the back part out of a more flexible plastic. As for a Milwaukee brace I do realize that the lower portion (pelvic girdle) is made of plastic just like her TLSO but it seems to be lower and cover less area. That was just my observation. By know means do I think a milwaukee brace is a walk in the park.

Kevin

its interesting that you mention migraines as my wife started getting migraines about two years ago and the doctors seem to have no idea as to what is causing them. She starts seeing spots in front of her eyes when one starts to come on. I wander if they could have something to do with her kyphosis.

Mike

Hmmm, Mike that is a good question, my migraines were very frequent and were just like your wifes (I see spots too) then my neck was imobilized more, I have not had one sinse. Good observation though. The Doc conjected it might have to do with impulses not getting to the brain from my chord due to Scoli. Hmmmmm....

Kevin

ElleBelleCurvz
06-19-2008, 02:40 PM
well. my scoli isn't as bad as any of yours...
but i've always gotten migraines/headaches
and we never knew what it is, but
i heard it is connected to spinal disorders and curvatures.
I would get at least one a day though.
Still do.

scurve_99
06-19-2008, 05:06 PM
With regard to migranes and such my wife also started getting stiffness in her neck kind of between her neck and shoulder blade. She tried those thera heat patches you buy at the drug store to relieve the pain. I think the doctors just thought it was muscle tension etcetera and never tried to link the two together but now i wonder if there could indeed be a link? Does this ever happen to you?

I really think it is important for people to research like this and talk to others. Who was overmedicating her and mixing drugs that shouldn't be mixed. When she was in the hospital the doctor there perscribed a new drug and she had a potentially fatal reaction to it. She told them how she felt and they said it was just an anxiety attack. The worst part of it was that when I got home and did research on it I discovered that this very same hospital had caused a death by mixing this same drug combination on another patient.

Mike

TraumaScoli
06-19-2008, 05:11 PM
With regard to migranes and such my wife also started getting stiffness in her neck kind of between her neck and shoulder blade. She tried those thera heat patches you buy at the drug store to relieve the pain. I think the doctors just thought it was muscle tension etcetera and never tried to link the two together but now i wonder if there could indeed be a link? Does this ever happen to you?

I really think it is important for people to research like this and talk to others. Who was overmedicating her and mixing drugs that shouldn't be mixed. When she was in the hospital the doctor there perscribed a new drug and she had a potentially fatal reaction to it. She told them how she felt and they said it was just an anxiety attack. The worst part of it was that when I got home and did research on it I discovered that this very same hospital had caused a death by mixing this same drug combination on another patient.

Mike

Wow, Mike that is incredible, there was defintly a link with mine and Scolli. I think with all the communication going on this board, and how it has helped so many people, it couldnt hurt to do research. Best of luck to her.

Kevin

bracegirl
06-22-2008, 06:35 PM
Okay, I would definatly encourage you all to ask about the Cheneau brace. For me, I wore a boston brace for a year, and met a doctor from spain who specializes in the Cheneau brace. He made some predictions about my next x-ray, and said that the Cheneau would be a better bet. At my next x-ray, his predictions were dead on. I got a Cheneau, and have been wearing it for 4 years with no progression. It really saved my back. My aunt wore a milwaukee brace when they were made out of leather and metal. its gross, and looks EXTREMELY uncomfortable. The transition from boston to cheneau is tough, but bareable. I could not imagine wearing a milwaukee though (and I live in milwaukee!! :rolleyes: ). What I have been told is that a Milwaukee really does work better than a boston, but patients just can't tolerate it. Please...Check out a Cheneau. There are only a few doctors in the US that make them (3 that I know of) and the one who made mine lives in washington DC. he specializes in out-of-town patients, and has discounted hotel rates, etc. already set up. His website is www.orthoticsolutions.com Luke is amazing, and the Cheneau brace worked wonders for me!

Snoopy
06-22-2008, 09:24 PM
Mike,

Sorry I didn't reply sooner....we were on vacation. From reading your posts, you sound like you've done your research and I know you understand that wearing a Milwaukee is no walk in the park. You did surprise me though, by wanting to get your wife a Milwaukee brace...most people run from them!

When Jamie was diagnosed, the worst thing we could imagine was her needing a Milwaukee brace and of course that's what the doctor prescribed.
We agreed to try the brace because with Kyphosis and Scoliosis that went high up in the thoracic area, it was the best option for her. I am sorry to say she just couldn't wear it. She was 12 y.o. and in 7th grade. I don't blame her. At that age I wouldn't have been strong enough to wear it in public either.

Good luck with your wife. Keep us posted.

Mary Lou

scurve_99
06-23-2008, 11:27 AM
Mary Lou

Thanks for the response and I hope you had a nice vacation.

As for the Milwaukee brace it is not a matter of wanting her to wear one but a matter of not wanting her to have to undergoe surgery or end up looking like her grandparents or parents. You are right though I have done quite a bit of research and many do say that the Milwaukee brac i the best brace for high thoracic curves. Even the orthotist we saw confirmed this in terms of correction however, as he said you have to look at all the factors and brace wear compliance is a major factor with the milwaukee. A less efective brace may be more effective in the end if the patient will wear it vs a more effective brace that is not worn. Its really difficult to way all the options but that is what I am trying to do.

We are also looking into the cheneau brace as well. Our issue is that she can not wear either brace at her work so her time in the brace may be limited. because of this the brace neds to be very effective.

Mike

TraumaScoli
06-23-2008, 12:58 PM
Mike, i was in a Cheneau brace at first and although it help stabilize my lumbar curve it had no efect on the Thoracic curve(s). I too tried to dodge wearing anything at work, thats was why I tried the Cheneau. But like I said the Migrains and other problems went away. I will be hoping and praying that she will not need a CTLSO or the Milwaukee. Compliance is so hard and I cannot imagine how a younger child could have the power. Some do, and I am i awe by it. A brace is always most affective when you wear it the most. I only had the Cheneu because it was more comfortable and hidden. But I had to let all that go.

Well, good luck to you and your wife. I will be praying for ya. =)

Kevin