For those who haven't seen me post before I have a 9 year old daughter who was diagnosed with congenital (they just changed it from idiopathic) scoliosis at 1 year old. Since then she has been braced and cast. We have been able to maintain her curves fairly well over the years but she has finally progressed to the point where her dr is recommending surgery. She has been seeing Dr. D'Astous at the SLC Shriner's since she was diagnosed. In January I found some info on VBS and had her xrays and file sent to Dr. Betz in Philly to see if she was a candidate for that. (unfortunately she wasn't) So we also went to Dr. John Smith at Primary Children's here in Salt Lake, and he has recommended VEPTR. At this point I don't know whether to go with growth rods and the doctor we have been going to for 8 years. The doctor who I trust, but don't like the idea of growth rods too much due to the possibility of the spontaneous fusion. Or to go with the doctor we have met once but comes highly recommended, who is recommending a surgery that also has some rather serious prospects of severe complications. Anyone who has any input for me would be greatly appreciated!
Thanks!
Thanks!
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