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Sharshe
05-19-2008, 08:53 PM
Hi all, Thanks Susie for posting for me. #1 YUCKY the stuff they stick your electrodes on with is gross. I tried combing it out and did ok. When my mom came in she shampooed some more out and then I got a bright idea. I used an alcohol prep pad, that got even more out but there is still some residue. Pt has been in 3 times.
Saturday I was still in ICU. She asked me about home set up and helped me log roll and sit up. Didnít do that long. With naturally low B.P. that went even lower + morphine it made me very dizzy and nauseous.
Monday 9am- someone came in and put a big yellow ďfall riskĒ band on me. I must be special.
I have been having a urine retention problem. Kept the night people busy Saturday night. Every 1-1.5 hours I was on the commode. Sunday they finally started bladder scans and temporary catheters and sent me for a cat scan. That found nothing wrong. They think it might be some nerves went into shock and it will take some time for things to work right.
Pt just came in again and went over more stuff and gave me a grabber and sock thing. I will need new socks after using it. Iíll also go to the gym @ 1:45 - time meds.
As others have said do not go past med times! The nurse let me sleep through my 5:30 am dose. When I woke up it was awful Back to an 8+ and 10 on pain when I sat up. Felt like I wanted the morphine back.
They give me iron and a softener every day , today they are adding a laxative , and I also get a shot to prevent blood clots. It goes in the belly but isnít too bad..While the IV was in each hand it was nice for the extra shots.
I was just put back on the Foley catheter because the temporary can cause infections if used too much. Went back to Pt and walked around and went up 1 step. Also met someone with a similar but smaller surgery that is also using Dr. Anderson.
The next step is the posterior on Friday.
Sharon

Susie*Bee
05-20-2008, 07:35 AM
Sharshe-- that is absolutely wonderful of you to post so quickly-- and in the "middle" of your two surgeries!!! :eek: My gosh, girl, you must be wonder woman! ;)

I don't remember the yucky stuff from the electrodes... so maybe mine was different-- or just maybe my memory is really hazy from those first couple of post-op days (nature's way of helping cope?) What I think is that you are miles ahead of me at that point. I couldn't have cared an iota about hair or yucky stuff! And you can tell from the pics my hubby took! :eek:

I remember feeling very dizzy the first couple times they had me sit up and stand up... in fact, we had to wait a little while and try again. And I think it was because of low blood pressure-- and low hemoglobin too maybe... (at least I know it was low--don't know if that can help make you dizzy or not.) That brings us to the catheter business-- I WISHED I could have it in longer. :rolleyes: It seemed like such a huge ordeal to have to sit up, get out of bed, walk to the bathroom, etc., when I remembered how very easy it all was with the Foley catheter. But, removing it did the trick of making me get up more often. :o Sorry to hear about the urine retention problem. Hopefully that problem will get resolved soon.

It sounds like they are keeping you busy with PT. You will be strong and able (ok--relatively) to handle this next surgery on Friday. You are one strong cookie and will do well. It sounds like you're in good hands there. I'll sure keep you in my prayers. Big gentle hugs, Susie

Wishing
05-20-2008, 11:51 AM
Dear Sharon,

You are amazing to take the time and effort to keep us posted on how you are doing. You seem to be handling things very well and am sure you'll also do well after your surgery Friday notwithstanding the usual post-op issues. I'm on for next month, so I appreciate hearing about the recovery process and issues involved. Take good care and we are cheering for you and wishing you well.
Rita

briarrose
05-20-2008, 03:22 PM
I'm so glad to hear you're doing well! Thanks for keeping us all updating. You are a great encouragement to me. I hope I can post so soon after my surgery next week.

Shell

connier815
05-20-2008, 04:23 PM
Wow, Sharon, you are really an inspiration! I'm so happy you're doing so well. Best of luck on Friday! You'll be in my prayers!

Connie

Pooka1
05-20-2008, 04:26 PM
Sharon, I sent you a PM.

sharon

Sharshe
05-21-2008, 08:54 PM
Iím baaack! Ok not really, Iím still in the hospital. Hubby just is bringing in the laptop for me to write on then heíll post it from home-how sweet
Well since I started with the yucky stuff last post, tonight Iíll attempt to make you all
JealousÖI got a shower yesterday! I just couldnít stand it ant more and asked my nurse what I could do about this filthy mop on the top of my head (the thought of going into a second surgery like this was gross). She said since the incisions were healing nicely I could get a shower!YIPEE! Remember though, I only had the anterior. Oh yeah we thought 2 slices but there are actually 3, 1 right below left rib about 3Ē 1 a smidge back from that 1Ē and one a couple inches below that around 8Ē. So anyway, I changed my afternoon plans of taking a walk to getting a shower, very tiring but wonderful! Iíll aim for another one Thursday before next chopchop.
They finally added Valium to my pain meds. The Lortab just wasnít cutting it, and I told them, I didnít think it was doing a darn thing. So one of the night nurses asked the intern if I could have something else. The combo seems to help, Iíve actually gotten down to a 4(if Iím not doing anything and laying at just the right angle). I was able to sit up for all my meals AND probably the only reason I made it through the shower.
Was measured for my clamshell brace and received it today (Wed).It was custom fitted taking into consideration the amount of correction expected, but he will still be able to fine tune it later if needed. Wore it to PT and redid everything that I did beforeÖ
In & out of tub, up/down stairs, and in/out of ďcarĒ. Along with going over all the dressing junk again.
I keeping busy in my ďdown timeĒ by rough drafts, painting(brought in watercolor pencils) and reading. But they really do keep you busy.
Susie, Iím no wonderwoman, just naturally ansty. I do have myself a superman though for going through and supporting me through all this. I keep making him list of stuff to bring and take home.
Rita, Iím so excited for you Next month will be here before you know it. Iíll try to continue my rambly posts (its not the drugs, honest. My brain is just as disorganized as my house is/was organized).
Shell, Good luck! Youíll do great. Youíll be in my prayers, Ďcause God can decifer even my loopyness;)
So one down, one to go. Now if only I wouldnít feel so bad about pressing a button to ask someone to close the drapes(Iím just soo lazy).
Sharon

PS I know she is feeling better she cleaned her room today.
Bud (Mr Sharshe)

Susie*Bee
05-21-2008, 09:22 PM
Sharon-- you sound so good and so perky!!! I'm so glad you got to shower and wash your hair today. Nothing like clean hair to make you feel good! ;)

It sounds like they have you pretty busy with PT-- and that you are doing wonderfully! :cool: And cleaning your room too? Woowhee. Are you sure you're not wonder woman???

I sent a PM to you both earlier today, but then thought maybe you wouldn't think about checking for PMs. I'm sure thinking of you and know you'll come through with flying colors on Friday. Looking forward to more updates!

Susie*Bee
05-22-2008, 06:45 PM
Sharon-- thinking of you and your hubby as you get ready for surgery #2. I'll be praying for you tomorrow! Looking forward to hearing how well it goes. Hugs, Susie

Sharshe
05-23-2008, 08:54 PM
The second surgery went well. There is more pain and swelling as could be expected. She was face down for the approximately 7 hours so her face was swollen and she couldn't open her eyes for a while (guppy face).It was nice we knew this was going to happen. The doctor said everything went well and the after x-rays look good. She can move all her fingers and toes and is in as good of spirits as can be expected. They went from T3 all the down.

Bud

Chihuahua Mama
05-23-2008, 09:20 PM
Thanks Bud for the update and tell her she's an inspiration to us all. Best wishes for her recovery.

Pooka1
05-23-2008, 09:29 PM
That's great news! So glad she is through both surgeries!

Best regards,
sharon

Susie*Bee
05-23-2008, 09:42 PM
Super news, Bud. Thanks so much for posting. Big, gentle hugs for her. Take care of yourself too.

connier815
05-24-2008, 05:57 AM
Thanks for posting, Bud. That's wonderful news! Now the healing and recovery can begin. Please let her know we're thinking of her and praying for her.

Connie

Sharshe
05-25-2008, 09:06 PM
Sharon was up in a chair for an hour again today. They had some high heart rates last night so since they found a murmur a few weeks ago they put her on oxygen. She needed 2 units of blood after the surgery and they had to give her another 2 today because her red count was low. So she has some good some not so good but nothing bad so far.
Bud

Susie*Bee
05-25-2008, 09:47 PM
Thanks for the update, Bud. Sorry to hear about needing oxygen-- and so much blood. But it's good they are keeping up on what she needs so well. It sounds like all things considered, she is doing ok. Tell her to keep up the good work--sitting and all that. It's all progress. Hang in there.

Wishing
05-26-2008, 01:47 PM
Dear Sharon,

Congratulations on doing so well with both your surgeries. You are in the thick of your recovery process. Although you needed blood transfusions (which is probably to be expected since you had 2 surgeries), it sounds as though you had no major complications and did well. You now have to get better gradually. Good luck to you, and I wish you the very best. We will look forward to a progress report.
Rita

Sharshe
05-26-2008, 08:27 PM
There where pain issues last night and she was up crying all night. A nurse from where she was last week came by and told them if she was asking for meds she needed them, she is not a whiner. Being it was early am on a holiday getting things from a doctor proved difficult. They sent her to P.T. in the morning anyway and they sent her right back. When I got there at 11:00 they had her back in bed and had the gotten orders from the Dr. So after another :15 of tears she got the pain under control. Her nurse came in about an hour later and said she was still schedule for after noon P.T. but she was going to do her best to get it changed to bedside. About a half hour before P.T. time she came in and told us she succeeded. With the pain under control she was able to walk about 25' down the hall and back. If they don't get so far behind the pain again I think she will progress rapidly.

Bud

Pooka1
05-26-2008, 08:31 PM
Geez that was hard to read. I'm so sorry the pain got away. That's not right after what she went through.

Best wishes to Sharon for her continued recovery. And take care of yourself, Bud.

sharon

Susie*Bee
05-27-2008, 07:53 AM
Sharon and Bud-- I hope we hear that Sharon had a more restful night last night. I'm praying for you! It WILL get better. Hugs, Susie

debbei
05-27-2008, 08:42 AM
hopefully since the holiday/weekend are over the nurses will be more on top of things today. Take care.

txmarinemom
05-27-2008, 11:30 AM
There where pain issues last night and she was up crying all night. ...

Ugh ... I'm so sorry Sharon had to go through that, Bud, and it must have been heartbreaking for you to watch :(.

With this surgery, it seems particularly tough to get things back under control once they get out of hand ... it happened with me when I came off the PCA early (and switched to oral meds) when my IV blew ... and ... it ... was ... AWFUL.

I'm really surprised PT even attempted to take her like that, but like others have said, now that the holiday weekend's over, hopefully they'll be more on top of things.

Other than this episode, it sounds like you're doing really great, Sharon. Hang in there honey ... it'll keep getting a little better every day!

Best regards,
Pam

Susie*Bee
06-06-2008, 08:25 AM
Just wanted to give you all a "heads up" that Sharon is having some problems with infection and was readmitted to the hospital. Her husband will post something later today or tomorrow, I think. In the meantime, please keep her in your thoughts and prayers.

Susie*Bee
06-10-2008, 07:14 AM
Sharon needed further surgery because of the staph infection. Initial surgery for the infection was last Wednesday (June 4) -- they cleaned, packed and wrapped the area involved, then let it drain and checked it on Friday, at which time they decided they could close it up. The good news is that it is/was a treatable staph. She is making some progress, although her legs were affected by the infection, and she is having problems lifting them. Bud (her husband) says she was able to walk a little yesterday, out to the hall and back, and isn't in quite as severe pain when changing positions in bed. They are in the process of making arrangements for her to go to a rehab place, as she won't be able to go home for awhile. Bud also said there is a very high probability the hardware will need to be removed after the fusion is set, as the staph infection has probably adhered to it. Time will tell, after she's been on antibiotics for awhile.

txmarinemom
06-10-2008, 10:02 AM
.. Bud also said there is a very high probability the hardware will need to be removed after the fusion is set, as the staph infection has probably adhered to it. Time will tell, after she's been on antibiotics for awhile.

Aw, man ... hopefully not - I have fingers and toes crossed for her. Susie, from what you wrote, it definitely sounds like it abscessed ... but are they sure it was *on* the hardware?

I ask because I developed MRSA after my breast augmentation in 2001: It was actually in the peri-areolar incisions (both sides) and they (by luck or whatever) did NOT have to replace the implants. Hopefully they won't have to remove anything from Sharon either :(.

Do you know if it was plain old staph, MRSA or VRE?

I know I probably mentioned this as a major concern before my surgery. I asked Hanson to give me both a week of oral Bactrim, pre-op, and then Vancomycin by IV during and after surgery (I do it with ALL surgeries now) because I know there's a high probability I'm still a carrier.

MRSA colonizes in the nares (nose), and if you've had it once (even if you don't have symptoms), there's a good chance you'll *always* be a carrier - and prone to reinfecting yourself. I have often wondered why pre-op tests don't include a nasal culture: It's such a simple thing. (and, no ... that's not to say everyone who gets it infected themselves)

I did just want to add that anyone who has ever had MRSA - systemic or not, abscessed or not - PLEASE insist on prophylactic antibiotics. Vancomycin is what I always get (simply because I KNOW my strain is susceptible to it), but you may not need something that strong. Vanco is VERY caustic: It's what kept blowing my IV's after surgery, and it actually blistered my *skin* when a drop got on me at IV removal. Amazing how your insides can tolerate the stuff.

Please keep us posted, Bud/Sharon/Susie, and cling to the hope it will resolve without surgical intervention. It is *possible*, and let's all hang tight to that ...

And fingers crossed the leg issues resolve soon!

Best regards,
Pam

loves to skate
06-10-2008, 10:26 AM
New England Baptist Hospital does test for MRSA pre-op and has one of the lowest post-op infection rates in the country. I think every hospital should do that. I'm so sorry that Sharon has to go through all of that and hopefully the hardware won't have to be removed. Sally

briarrose
06-10-2008, 11:14 AM
I'm so sad to hear this about Sharon. Hopefully the hardware won't have to be removed. I'll be praying for her.

Are all pre-op patients put on an antibiotic the week before surgery and than an intraveneous antibiotic during and after surgery? I was on Cipro the week before surgery and I can't remember what intraveneous antibiotic I was during and a couple days after surgery. I was just wondering if that was common for everyone.

Shell

txmarinemom
06-10-2008, 11:23 AM
Are all pre-op patients put on an antibiotic the week before surgery and than an intraveneous antibiotic during and after surgery? I was on Cipro the week before surgery and I can't remember what intraveneous antibiotic I was during and a couple days after surgery. I was just wondering if that was common for everyone.

Hey, Shell ...

Good to see you posting!

No, I don't think it's common (it's not here, anyway - and they still want to avoid pulling out the big gun antibiotics unnecessarily - and creating superbugs).

The only reason I received Bactrim/Vanco is because I had a previous MRSA infection: Otherwise, I would not have.

BTW, I found out in 2001 - while trying to treat the initial infection - I am HIGHLY allergic to Cipro. I STILL have scars where it caused blisters all over my right shoulder - and my hand at the IV site.

If *all* hospitals would simply do a nasal culture pre-op (Sally, that's fantastic yours did!), the infection rates could be slashed dramatically. So many people don't know they're carriers (they can be - and never *had* a staph infection), or were previously infected and assume once the infection is gone, it's gone.

Regards,
Pam

Susie*Bee
06-11-2008, 01:24 PM
Bud sent an email late last night saying she'd been able to take a shower and get her hair washed, which made her feel better. (They didn't think the dry shampoo worked very well.) She is being moved to rehab today, and that is a lot closer to their home.

I'll answer what I can from your posts, but I really don't have details. I believe Bud had originally said that they could not find anything wrong through x-ray or other blood work, so they needed to do exploratory surgery. They found "very bad infections deep inside her lower back" and it "was a very severe staph infection"... and later he said, "We finally got the test results and it is a treatable staph... ...There is a very high probability the hardware will need to be removed after the fusion is set. They think the infection has attached to it." That's about all I know at this time.

She is making progress, they seem to have things under control right now, she will be closer to home which should make visiting her and all that sort of stuff much easier. She needs to know we care-- although I think she realizes that. This is just a tough time-- one that most of us realize could happen, but it just hurts when it actually does. It does look much better than it did, so we can be thankful for that.

Susie*Bee
06-11-2008, 09:49 PM
Bud just emailed that Sharon's blood pressure had dropped last night, so they decided to keep her at the hospital till Friday. Needless to say, she was disappointed by this.

txmarinemom
06-11-2008, 11:26 PM
I'll answer what I can from your posts, but I really don't have details. I believe Bud had originally said that they could not find anything wrong through x-ray or other blood work, so they needed to do exploratory surgery. They found "very bad infections deep inside her lower back" and it "was a very severe staph infection"... and later he said, "We finally got the test results and it is a treatable staph... ...There is a very high probability the hardware will need to be removed after the fusion is set. They think the infection has attached to it."

It sounds like a non-systemic (if it's not showing in the bloodwork) localized abscess. An abscess from staph tends to happen when staph enters the body (via surgery or a cut), and is closed inside (by sutures or a scab - as in a nick from shaving).

My room at Methodist contained a box of rubber gloves (which of course, also make handy rubber chicken heat packs when filled with water and tied after surgery), and I actually used reverse methods to make sure they "gloved up" by telling the head nurse I was previously infected with MRSA. Funny how they are a bit more diligent when they think YOU might infect THEM.

Anyone could use this reason. Sneaky, but it works ...

Susie, if you get more info, please post it? "Treatable" could mean anything up through MRSA (it's just a Methicillin resistant variety - they screen a culture *usually* against 10 non-penicillin type drugs). While MRSA blows, and hardware removal blows even more, "treatable" is good.

VRSA/VRE is bad news. (this is obviously not what Sharon has as it's been deemed "treatable"). It's resistant to Vancomycin, commonly the last defense against staph when the lesser drugs (Clindamycin, Erythromycin, Cipro, Bactrim, etc.) are ineffective.

Incase anyone's interested, "superbugs" - MRSA, VRSA (and VRE ... the VR indicating Vancomycin resistant) - have developed in large part from unnecessary antibiotics (http://www.scienceagogo.com/news/20041130203718data_trunc_sys.shtml) prescribed by doctors, patients taking them unnecessarily ("my throat's sore and I think I have some left over from last time I was sick" ...) - or just taking them until they feel better (hence the "leftovers").

(BTW, yes ... because I have IV Vanco with every surgery, I would probably be screwed if I acquired a VR infection.)

As I said earlier, people can re-infect themselves, but just as often (or more) they're infected in the hospital by lackadaisical staff hygiene.

Infection has been linked to health care workers (http://www.ncbi.nlm.nih.gov/pubmed/17564988?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsP anel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=3&log$=relatedarticles&logdbfrom=pubmed), as well. I'm as much for screening the patients as screening the people who TOUCH the patients.

(I have no doubt I acquired it in the hospital ... ironically the day surgery section of the same hospital where I was fused - which now sports "WASH YOUR HANDS!" signs *everywhere*, 7 years too late.)

If you see someone reaching for you without actually seeing them put on fresh gloves in the hospital - and I am NOT kidding - tell them to do so. You're paying enough to make those kinds of requests - even if it annoys them. Any nurse worth their salt should understand your concerns.

I'm also curious, do they plan to just keep her on antibiotics until fusion is complete if/when the hardware has to be replaced?

Didn't we have someone here (was is suzyjay?) who had a similar issue?

Please tell Bud and Sharon they're in my thoughts, Susie.

And let's do what we can to minimize this risk. Any health care workers care to chime in?

Regards to all,
Pam

Susie*Bee
06-12-2008, 10:00 PM
Here is what Bud said about the staph infection:

"The staph is NOT one of the super bugs. That was a BIG relief. I don't know exactly what kind but she is getting Nafcillyn to treat it. They will be monitoring her blood counts to determine how long on the IV, then pills. Also to determine if it attached to the hardware. They seemed to think the chances are quite high it has. She had been to the DR. The afternoon before we took her back in and he ordered blood tests but they had not been done yet. The infection showed up when they did the tests in the emergency room.'

Then he went on to say that the MRI had been down, so that's why they had to do exploratory surgery. They reopened the whole back, from her neck clear on down...

Today they removed two of her drains, with six remaining. They cause her problems-- it makes it difficult when doing anything-- sleeping, sitting up, moving. She is starting to lift her right leg just a bit when she walks. She's scheduled to transfer to rehab at 1:30 tomorrow.

In the big picture, she's making progress, so that's very good.

Susie*Bee
06-16-2008, 10:35 AM
Sharon got moved to rehab on Saturday, and is happy to be out of the hospital and moving on with her progress. She's been approved for 5 days there, but they will evaluate how she is doing after 3 days and then extend her time there if needed. I'll let you know when I hear anything else.

Sharshe
07-17-2008, 02:38 PM
Just a quick update...
I've been home from rehab since June 24 :D My sister helped me get out of a hell hole of a place, please please find out what rehabs your insurance covers and check them out(ask people who have loved ones inside if they have complaints, it was mostly the night staff that were awful) before your surgery. You may not plan on rehab but if you need it at least you'll have a better idea of where you'll be going. I had them trying to give me wrong meds, my IV antibiotics were given anywhere from 2 1/2 hours to over 6 hours apart (should have been every 4). linens not changed for the 9 days I was there...just a few of the problems.
Anyhow on a brighter note.
I'm doing great with PT (last visit next Tuesday).
I'm using a cane now except at night I prefer the walker( a little steadier when 1/2 asleep), I push a wheel chair when we walk outside then if I get tired Hubby pushes me-really dog pulls me-then I walk some more. Doing it this way I don't have to worry about going too far and not being able to make it home but I can get as much walking in as I can handle.
My IV PIKK line came out yesterday, I see the infectious disease DR tomorrow and should just be on oral antibiotics :D
Today I saw the plastic surgeon who closed me after the 4th surgery(4 in 3 weeks :eek:). He gave me the all clear as well as my visiting nurse clearing me this morning.
My OT was in for 1st evaluation last week and said I was doing fine and unless I needed her she didn't need to come back(I said no need).
I am able to go up/down a full flight of stairs (though I wait til hubby is behind/infront of me, I'm playing it safe). and I pick one "big" task to do a day
ie wash and hang laundry(next day take down), iron,(someone else sets up the board and only a few items at a time),clean bathroom (can't do tub though :( , dust etc.
My sister left a lot of leftovers so I've only cooked a handful of times and hubby has cooked some too.
I'm also painting my brace, if I have to wear it lets spritz it up some.
I plan on sending some pics to Susie but I won't have my after x-rays 'til after my August appt (no driving 'til then), but they did look really good.
well I guess it wasn't much of a quick update, oh well.
To all you up and coming surgeries, good luck and its not THAT bad, you'll get through it and be glad you did it ;)Just keep a positive outlook.

Sharshe
08-22-2008, 12:44 PM
Sorry its been awhile.
I was taken off Nafcillin after 6 weeks of the iv, they didn't switch me to oral antibiotics so 1 1/2 weeks later I was back in the ER. I woke up and could barely raise my arms. The infection had reappeared in my upper back, the MRI showed no large pockets of it so no surgery:D, I was admitted over night and put back on the nafcillin for another 4weeks. That will be up next week. I spoke to Infectious Disease DR. (what a fiasco, trying to get an appt with the right DR!) today and all 4 ID DRs and Dr Anderson have decided that PICC can come out Tuesday and they'll switch me to Bactrim. I can't wait! I'm glad I hadn't needed another debridement but having a PICC for 10 weeks is no fun either.
Pam, you've been on Bactrim before, how is it? We're going to Cancun in October so I am a bit concerned about the precautions about the Bactrim as it says to wear sunblock(I would anyway) and protective clothing while outside. I hope I'll be off it by then.

CherylPJ
08-22-2008, 04:06 PM
Bud - Thank you. My husband has been right there with me, as you seem to be. Are you getting any help?

I posted a thread about the three weeks around surgery, today. May be it will help you. There's lots of detail ... such as shampoo caps.

briarrose
08-31-2008, 07:38 PM
Hi Sharon,

It's good to hear that you are doing better. How are things with Bactrim? I took that often a few years ago for recurrent UTIs. It's one of the few antibiotics that didn't have any noticeable side effects for me. I hope it's the same with you!

Shell

txmarinemom
08-31-2008, 09:53 PM
Pam, you've been on Bactrim before, how is it? We're going to Cancun in October so I am a bit concerned about the precautions about the Bactrim as it says to wear sunblock(I would anyway) and protective clothing while outside. I hope I'll be off it by then.

Sharon, I had no ill effects from the Bactrim (I mean NONE), but Cancun will even fry this olive-skinned Texas girl's a** in 10 minutes - LOL. Take your Bullfrog 36 gel, and apply liberally - and often. Wear a hat. Keep a light long-sleeved shirt with you (dark in color, because you can even burn *through* fabric).

Dorky as it may look, zinc oxide works. No worries people will think you're a tourist: 90% of the people in Cancun are tourists - laff.

You realize October is still hurricane season right (till Nov 30th)? And the Yucatan Peninsula is kinda like Florida ... merely a speedbump ...

(... written as Hanna chases Gustav in the Gulf!)

I am THRILLED you're down to oral meds. How long a round did they rx?

Regards,
Pam

Sharshe
09-01-2008, 01:17 PM
Shell and Pam,
Thanx for the info on your experiences with Bactrim. Things are so far so good with it. I finally was able to speak to the Dr about it and she said most people aren't bothered by the sun. I have put on sunblock before going out up here and the sun hadn't bothered me a bit.
We've been to Cancun 4 times and I would never consider going w/o sunblock and a hat (even with a good base tan, which I do not have this year:(). We're taking my 5 y.o. granddaughter this time so have stocked up on spray on sunblock and zinc(clear) and a 30spf stick sort of thing that Bud can run down my scar to double up protection.
I have 6 months of refills on the Bactrim and I see the ID doc 9/19 to check on my labs and see where we go from there. It's nice not being on a leash (PICC), or to have blood drawn every week(my veins started to rebel after all the needles from the surgeries and infections). I have also switched to Tylenol now and occasionally hydrocodone at bedtime if I've REALLY over-done it. It's great to being feeling more myself:D

Susie*Bee
09-01-2008, 01:51 PM
Sharon--I'm so glad to hear that all is going well now. You sure had a time of it! I hope your trip is wonderful and that you have continued good reports in the future. That's super that you are feeling more like yourself! :D

PS-- I've taken Bactrim before, but since I wasn't going to be out in the sun much I'm not sure how sensitive that can be. It sounds like you've got it "covered" (sorry about the pun!) ;)

txmarinemom
09-01-2008, 05:22 PM
I finally was able to speak to the Dr about it and she said most people aren't bothered by the sun.

Hah. I tried to send you that same bit of info in my response to your PM, but I was running out of room.

I was on it 10 days (or was it 2 weeks? I can't remember now) pre-op, and was still tanning every day. The photosensitivity side effect wasn't one I had, nor was it the first time I took it when I contracted MRSA in 2001.

As long as you're familiar with the ant under a magnifying glass effect of the sun in the Riviera Maya you'll be fine. Just protect yourself normally! (... and I'm sooooooo glad "normal" is back in your world :))

With a 5 year old in tow, I guess no "behave yourself!" is required, eh? - LOL!

Regards,
Pam

Susie*Bee
09-10-2008, 05:36 AM
I received this PM from Bud, and am passing along the information to all of you.

Sharon has been admitted to ST. Marys tonight.She went to the ER about 1:30 this afternoon. She has been having intermittent tightness in her chest, shortness of breath and fatigue.They suspect a blood clot problem but the testing has been inconclusive. They have done x-rays, blood work, ekg, and a cat-scan. The cat-scan was a bit blurry in the part of her lung where she is feeling some pain so they are keeping her for observation.
That' all we know for now.

Bud

txmarinemom
09-10-2008, 07:04 PM
Oh, man ... :(

Yes, please ... keep us posted.

Susie*Bee
09-10-2008, 08:12 PM
Just got this update from Bud... so relatively good news.

We just got home. The tests did not show any blood clots and her heart is fine, but were inconclusive as to what it is.
The best guess from the doctor is inflammation of chest cartilage. There was not a test for that. This can be caused by both physical and mental stresses which are both present.
The doctor told her to take Motrin. That would be a bad thing at this point in the fusion process so it's grin and bear it. At least we have ruled out anything serious.
Bud

debbei
09-10-2008, 08:19 PM
Oh Jeez, I'm so sorry she's having more problems. I hope the pain resolves itself quickly.

theizzard
09-11-2008, 06:37 AM
hope you feel better and you can stay out of the hospital for a while at least.
take care.
avis