I've been on the registry for several years, and found out prior to surgery that according to current guidelines, scoliosis surgery makes you ineligible.
Currently, I'm communicating with the Marrow Liason through our local Blood Center to remain on the registry.
Today, in fact (like an hour ago), I spoke with her again; she got me to email her all the details of my surgery, and she is forwarding to the approriate person at the NMDP to determine if this exclusion is outdated - or even valid.
Hanson and I discussed this before surgery, and he was as puzzled as I am WHY surgery makes you (what reads as permanently) ineligible. He even offered to write them with his opinion if necessary.
The section that outlines this exclusion is located here.
Specifically, it defines the exclusion as:
Most other back surgeries listed make you ineligible for 2 years post-op. This exclusion makes absolutely no sense to me OR my doctor.
Lord knows there's a shortage of donors. I intend to fight to remain on the registry!
I'll let everyone know the answer as soon as I get it .
Regards,
Pam
Currently, I'm communicating with the Marrow Liason through our local Blood Center to remain on the registry.
Today, in fact (like an hour ago), I spoke with her again; she got me to email her all the details of my surgery, and she is forwarding to the approriate person at the NMDP to determine if this exclusion is outdated - or even valid.
Hanson and I discussed this before surgery, and he was as puzzled as I am WHY surgery makes you (what reads as permanently) ineligible. He even offered to write them with his opinion if necessary.
The section that outlines this exclusion is located here.
Specifically, it defines the exclusion as:
"Placement of rods or pins for scoliosis".
Most other back surgeries listed make you ineligible for 2 years post-op. This exclusion makes absolutely no sense to me OR my doctor.
Lord knows there's a shortage of donors. I intend to fight to remain on the registry!
I'll let everyone know the answer as soon as I get it .
Regards,
Pam
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