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MJB
04-28-2008, 03:50 PM
My daughter is in pain since her brace was tightened on Thursday, she is wearing the Spinecor Brace. I don't know what to do right now to help the discomfort. The plastic parts from the pelvic base are hurting her, especially the one on her left side that goes around to her back. I got a call at work from her school today, she had been in the office laying down for 45 minutes with a sore back and headache, so I left work (again) and got her... I am going to end up losing my job because I have had to miss so much work.

Any suggestions on how to make a child comfortable at school in their brace all day? I know that having those little hard plastic chairs don't help for sure. Also other than the moleskin, does anyone have and suggestions for padding under the plastic parts?

RugbyLaura
04-28-2008, 05:00 PM
I'm really sorry Halle is having such problems. I'm afraid I can't help as Immy has never suffered anything other than mild discomfort and chaffing.

I hope someone will be along soon to help you.

Laura x

HaleyMom
04-28-2008, 05:58 PM
Sorry to hear your daughter is having a rough time. It can take a couple of weeks to adjust to a tighter brace. I give my daughter a quick back massage every night before bed to relax all those tense muscles.

My daughter did have a couple of rough weeks after one of her brace adjustments. Straps 1 and 3 were so tight were they overlapped that they caused the edge of the plastic on the pelvic base to cut her left hip. She's a skinny little thing without much padding.
She doesn't like bandaids or moleskin so we just wrapped a small piece of polar fleece around that section for a few days. After that everything was fine.

My 2 children constantly argue about who has it worse - the one getting their back brace adjusted or the one getting their teeth braces tightened.

cherylplinder
04-28-2008, 09:31 PM
I would call or email Dr. Coillard and run the discomfort by her.

MJB
04-29-2008, 09:29 PM
Thanks very much everyone! I have sent Dr. Coillard an e-mail regarding this, hopefully she has some suggestions. My daughter needed to to be picked up from school again today, again with a headache, back ache and a fever that is unexplained because she is not sick.

cherylplinder
04-29-2008, 11:23 PM
Headache, backach and fever can be spinal meningitis or encephalitis.
Usually the neck is really stiff and the headach is unbearable, but not always.
How high is the fever?
Rachel had a viral meningitis that led to increased cerebrospinal fluid pressure for several months. It presented as a headache and backache at first. It was atypical. If she ran a fever with it, I never caught it, i.e. really low grade.Her backache and headache were also atypical, i.e. not your usual unbearable. The headache became unbearable in the post inflammatory reponse she had to the viral meningitis.
Just a thought. Probably not that. But keep an eye out.

MJB
04-30-2008, 11:15 PM
How scary! Thank you for the information though. She seemed pretty good today, other than the brace being tight but she made it through school today and didn't have a headache or fever. Dr. Coillard called me and said there isn't much that can be done about the tightness of the brace, that her Scoliosis is very progressive and it needs to stay where it is, so I can't loosen it at all, which i expected anyway.