I'm freaking out a little at this point, so please forgive me if I ramble. My daughter Jasmine (9) was diagnosed when she was 1. We've been bracing and casting since. Recently I learned more about VBS and was looking into that for her. Unfortunately she wasn't a candidate for that. But today her doctor recommended growing rods. Her upper curve is at 47 and lower is 33 currently, and he said that more then likely if we continue to brace she will need to be fused in the next 2 years. If we do surgery it might put it off for another year after that. I'm freaking out that we're so close to her needing to be fused and I'm freaking out over the growth rods. He said he wouldn't recommend VEPTR due to a lot of complications that have errupted over the last few weeks for other kids. Plus Jas is so small (3'9" and 42 lbs) that he's worried about how the VEPTR would effect her ribs. Does anyone have any insight into growth rods? Recovery time after surgery? I have a million questions and can't get them to come out in coherent sentences, maybe if anyone can just tell me what they've been through that would help.
Thanks!
Thanks!
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