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View Full Version : April, May, June 2008 surgeries



Susie*Bee
04-12-2008, 08:52 AM
Here's a list I've compiled... I'm not sure if I have them all or not, so please let me know if I missed some, and I'll edit and add. Also, I'd written down dates but not levels, doctor, hospital, etc., so if you want anything added, please let me know. It will be simple to do. Same with your names.. Big hugs, lots of thoughts and prayers go to all of you with surgeries coming up!

April
8th - Trishthedish
14th (anterior), 18th (or possibly 21st) (posterior) - Dalmatica (Krysi)

May
12th - kjungrl2's daughter
14th - TnGirl07 (Brittany) - Dr. Mencio, 8 a.m.
16th - Sharshe (Sharon) (anterior - 1st of 2 surgeries)
20th - Ginger W. - revision (T4-L2) w/ Dr. Boachie, New York
21st - Angelacross - surgery to correct 70 curve
21st - iluvmath! (Katie) - revision (remove/replace hardware, re-fuse failed fusion area) w/ Dr. Tribas @UW Hospital, Madison, WI
21st - Jennybear
21st - Arn010's daughter (Amanda) posterior (T5-T12) Dr. Lincoln @ Kaiser Oakland
23rd - Sharshe (Sharon) (posterior - 2nd of 2 surgeries)
27th - briarrose (Shell) (T2or3 - L2) Dr. Fras @ Lankenau Hospital, PA @7:30 a.m.
27th - terri watkins' son (Alex) - Dr. Lloyd Hey, 9 a.m.


June
9th - Skoshi314 (Becky) posterior (T10-L5) @Oklahoma Spine Hospital w/ Dr. Alexander L'Heureux
16th - Chihuahua Mama (Susan)- anterior (1st of 2 surgeries) T10-L5
16th - Wishing (Rita) posterior revision (T1-L4, apical VCR@T7) Dr. Lenke, St. Louis, MO
19th - Mags - revision surgery w/Dr Cree, Sydney at Mater in Crows Nest (CANCELED)
23rd - Chihuahua Mama (Susan) - posterior (2nd of 2 surgeries)
23rd (or 30th?) - ChrisWBS (30th if end up doing A/P instead of just P)
30th - Amae28 (Abbie) (T3-L1) Dr. Lenke @Barnes-Jewish Hosp., St. Louis, MO, 6:30 a.m.

txmarinemom
04-12-2008, 10:46 AM
Didn't we have the site fix the surgical calendar because I had to do this exact thing back in Jan/Feb when the calendar was non-functional? The point was to avoid a text list.

You know that anyone can add a person to the calendar, right?

Susie*Bee
04-12-2008, 11:17 AM
Yes, we both know we worked for the ability to access a surgery calendar. I had asked you to start that thread back then, since you had said you were keeping a list of people's surgery dates and I hadn't been. And yes, I know that anyone can access the calendar and add people. Several people have recently asked for a list in the threads. It doesn't hurt to see them this way too. Then others can add their well-wishes or thoughts, etc.

txmarinemom
04-12-2008, 01:42 PM
It's your time, I guess. The only reason I used mine to build the list for Jan/Feb was because we lacked a functional tool.

Personally, I'd encourage people to use the surgical calendar we pushed the site to fix vs. continuing to use a homemade, redundant system.

As a programmer, I can tell you right now using 2 systems is worse than NO system: Synchronization is impossible, and you'll never know which one is correct.

If you're intent on reinventing the wheel every month, we definitely wasted the site developer's time with our request to fix the calendar.

But that's just my lil' opinion.

briarrose
04-12-2008, 02:31 PM
Susie,

That was so nice of you to compile this list. You're very thoughtful. My name is Michelle, but my friends call me Shell. My surgery will be at Lankenau Hospital by Dr. Fras, levels T4-L1 (most likely). I'll schedule my surgery when I see my doctor on April 23rd. My surgery will most likely be the week of May 11th. It's coming up fast!

CStadler
04-13-2008, 03:39 PM
I didn't even know there was a surgery calendar until I noticed the link at the bottom today! When I click on the calendar the only thing I had noticed was the birthdays. How caring of you to take the time Susie. Thanks

Chihuahua Mama
04-13-2008, 05:39 PM
I'm learning about this forum and me, too...I didn't know about the surgery calendar date, what a great idea! I didnt' see where it was at the "bottom" tho, I'll look again.

Regardless, it was nice to post about those upcoming surgeries. I think very soon, one of them will be me, so I'm here to help others when I can know I've learned so much already! Thanks to all.

Chihuahua Mama
04-13-2008, 05:43 PM
Okay...help me out here? I can't find how to post an upcoming surgery that txmarine started.

Is there a sticky thread that I missed? Sorry in advance if I didn't do my own homework.

Chihuahua Mama
04-13-2008, 05:49 PM
I found it :rolleyes:

amae28
04-13-2008, 06:56 PM
Thanks for taking the time to do this! It means a lot. I put my date on the surgical calender a while back but now for some reason it's not there anymore or else i can't access it. anyways, My surgery is on June 30th at Barnes-Jewish Hospital in St. Louis, Missouri. I am having my kyphoscoliosis corrected, and the tentitive levels being fused are T3-L1, but we are waiting on a new set of x-rays being taken in May. Thanks again!
-Abbie

Susie*Bee
04-13-2008, 07:36 PM
Yay, Chihuahua Mama, that's great that you are figuring things out! It took me quite awhile to figure out a lot as I had never been on a forum before... so if you need help, ask questions and someone will jump in and help you! BTW, Txmarinemom had made a thread with surgery dates listed, similar to this one, before we could post dates on a calendar. The NSF forum people gave us the surgery calendar that we can access. It just seems like a lot of people don't know about it yet or don't know how to get to it.

Abbie--I just checked, and your surgery is on the surgery calendar... be sure to go to the surgery calendar --see below if you've forgotten how.

Everyone-- some simple directions about the calendar... and please pardon the lack of technical jargon, but I admit I am dumb about computer stuff, but usually manage to find my way ok. In order to view or put dates on the calendar, you must be a registered user.

1. Go to the regular calendar page (it shows birthdays) by clicking "calendar" up at the top of the page, in the blue horizontal line.
2. Then scroll down to the bottom where it says "calendar jump".
3. Click on the side arrow thingy, then highlight the line that says "surgery and bracing date". A different calendar will come up-- the surgery calendar.
4. Down at the bottom is a box that has choices for "add new event" and select "single, all day event"-- choose your date, then add the info.

Of course, it can be used for posting bracing dates as well. There is also a calendar for support meetings, etc., that you could choose instead of the surgery calendar, if you want to post meetings.

The special dates entered on either of these calendars will show up on that date, at the bottom of the regular index page of the forum... just beneath where it lists birthdays, another box will appear that says "today's events"-- and the title of the event will show up... (on April 14th it shows "Dalmatica's surgery"... You can click on that and it takes you to the information that was written about that event-- in this case "Dalmatica (Krysi) -- anterior (first of two-part revision surgery)"...

There is an announcement that includes some guidelines for use that Joe O'Brien posted at the top of the adult forum page, next to his name. You can read this announcement at this link:
http://www.scoliosis.org/forum/announcement.php?f=69

If anyone is still confused, ask away-- or send me a PM. :)

Susie*Bee
04-16-2008, 02:16 PM
Just wondering if anyone has heard how either Trish or Krysi are doing? I've checked Trish's blog, but there isn't any update on it.

Susie*Bee
04-23-2008, 07:28 AM
Just wanted to pass the word on-- I got a PM from Trishthedish -- she flew home Monday night. She said lots happened, and she is glad to have that behind her. I know we'll all look forward to hearing more from her sometime (hopefully) soon. She also said the dilaudid was making it hard to type... ;)

I think there's been two new surgeries posted recently, so I'll add Ginger W. and Jennybear to the first post in this thread. I'll try to get more info from them.

Also--for them and a few others --Angelacross, Wishing, Chris WBS (I know you weren't sure of the date awhile back) who don't have their surgeries listed on the official calendar, if you go to post #11 of this thread, I've written out directions how to do that. If you want me to post it for you, please let me know. It's no problem. By putting it on there, it acts as a reminder to the rest of us on the day of your surgery, as it's listed at the bottom of the index page, under "today's events" -- just below the birthdays, in the "what's going on?" area. That box only shows up when there's something happening that day, so it doesn't exist most days.

Lots of surgeries coming up! Best wishes to all of you!

Susie*Bee
04-25-2008, 07:08 AM
Please let me know if I've missed anyone so far... I try to keep up, but can't always read everything AND remember!!! :eek: Anyway, I added TnGirl07 (Brittany) to the rather big line-up in the first post of this thread. And I saw she put her date on the surgery calendar... you are really on the ball for figuring that out so quickly after joining the forum. (OK, so it's me that was so slow...) :rolleyes:

Briarrose-- do you know your surgery date for sure yet?

Anyone heard from Krysi? Or anything more from Trish?

Take care everyone! :)

briarrose
04-25-2008, 01:45 PM
Hi Susie!

I just got back from my doctor's visit (Wednesday's appointment was canceled). My surgery is scheduled for May 20 at 7:30AM at Lankenau Hospital, PA. I believe there are other's with that same surgery date too. Dr. Fras changed my fusion levels to T2 or T3 to L2.

I can hardly believe this is happening. I'm scared. I hope it goes ok.

trishthedish
04-27-2008, 03:36 AM
Yes, my new little buddy Dilaudid mixes up the keys for me-over to the right one and down one row. But thanks for caring enough to mention follow-ups from us all. I ended up with a posterior fusion from T2 to L2 with 3 wedge osteotomies at the apex of the curve. All in all, a correction from 74 degrees down to 30 degrees, I was told. I also ended up with right and left chest tubes, as the doc felt the rib deformity needed to be sculpted a bit. All this contributed to pain that was just incredible in my opinion, till about the 2nd post op day when I woke all locked in a fetal position and unresponsive to my name or to threats to tell The Great One (Dr. Shelokov) that I was being uncooperative and refusing my therapy. So after 2 ultrasounds and 2 CTS, it was determined that my gall bladder had stopped functioning due to the stress of the surgery, and was now inflamed and would have to come out. So after another trip to the OR I again awoke with 5 little stab wounds to my already puffy belly, and a fever that had dropped 2 degrees already. So that's about it; nothing much more to tell, except that I got discharged from Baylor Plano and never did go to Rehab. I imagine that for my 2 weeks check up, I should get rehab instructions to go along with it. What fun-can't wait to see what happens next, lol!

Wishing
04-27-2008, 08:36 AM
I finally added my surgery date to the calendar. Thank you Susie Bee for the instructions. You are always so very helpful. My surgery is June 16th in St.Louis with Dr. Lenke. Posterior revision T1-L4 with apical VCR at T-7 for T97, L70.

Tricia: Congratulations on your surgery and hope the rest of your recovery goes well. At least you don't have to worry about another gallbladder attack ever. Do keep us informed of your progress. Good luck to you.

Susie*Bee
04-27-2008, 02:08 PM
I've been "away" for a couple of days, and there are way too many posts to read. I've got my work cut out for me! I took my laptop, but forgot the charger, so I only checked a little bit... and didn't post till now. I think I'm caught up on the calendar, so if you see something's not there that should be, please let me know! Or if any of you surgery gals and guys want something changed or added...

Good to hear from you, Trish. So sorry about the gallbladder problem. As if you didn't have enough problems!

Briarrose-- (and probably all the rest of you on this calendar list!) of course you're scared. We all (who are on the "other side") have been quaking in those very same shoes prior to our surgeries too... It goes with the territory. At least I don't think I'm the only one who felt that way!!! :eek: It's that very tenuous balance that moves between excitement and sheer trepidation, verging on insanity -- as in "what was I thinking of?!" "I musta been crazy to think I could do this!" and so on. You can add your own expletives, as desired. If you're like me, you think you've got these feelings mastered, periodically, but it's such a fleeting thing. Kind of like me trying to keep my balance on this balance thing you step onto at PT-- especially one-legged... :rolleyes: and then with my eyes shut! For Pete's sake! :D I think I've got it mastered-- but the feeling of success only lasts about half a second. Then I have to grab the bars so I don't fall... You just have to remind yourself of all the positives that come with the surgery. And that very soon now you'll be one of us, moving on, going through recovery, with the surgery behind you. Yay! ;) Then you'll be getting better and better too. :)

TnGirl07
04-27-2008, 04:09 PM
thank you so much for doing that. its so thoughtful of you! good luck to everyone having surgeries coming up! We will all Recover together!! big hugs and prayers to all of you!

Wishing
04-28-2008, 07:34 AM
Please note, I edited my previous post to put the correct fusion levels that are planned for my upcoming surgery. It is T1-L4 not L5 as I had indicated. I feel very blessed that I can have this surgery. I have a case of the butterflies, but I do know I have a very skilled, experienced and confident surgeon. I thank all who have told of their pre-surgery emotional experience and to know that these feelings are to be expected.

CHRIS WBS
04-29-2008, 04:38 PM
Tricia,

I just saw your before and after pics in your blog. TERRIFIC! :D Wishing you all the best for a smooth recovery.

Chris

Ginger W.
04-29-2008, 11:15 PM
WOW! I now feel like I'm really a part of this exclusive club, because I got named on Susie's list! I appreciate seeing the surgeries in list format as well as seeing the calendar. With Susie's excellent directions, I was able (after two attempts) to add my surgery below BriarRose and Angela who both have the same date.

It was amazing to read about Trish's (Trishthedish) challenging recovery with gallbladder surgery thrown in for "dessert". Trish, the before and after photos on your blog were fabulous.

Susie*Bee
04-30-2008, 10:41 AM
Hey guys, it's not "my" list-- it's "our" list! I'm just helping by posting it. It makes it easy to see, at a glance...

iluvmath! (THANKS for gently correcting my mistake about you being a "her" and not a "he"-- sorry!!!!) is having her surgery May 21, so I'll add her to our really full list. She just turned 20 (on Monday!) and is a college student... this is a revision surgery-- she is having her old hardware removed (it broke because of non-fusion in some area(s?). They will re-fuse the part that didn't fuse and put new instrumentation/rods in.

If being on the "list" helped you feel important, Ginger, then so be it! You ARE important! And everyone on here is too! In all my life, I only "know" one person (other than myself) who has scoli, plus "know of" one teenager who wears a brace. So you guys are my connection/family of the scoli world. You make me realize there are so many of us-- but we are spread out, so our talking and getting to know one another, our sharing of so many things-- concerns, our fears, our struggles, our victories and successes, are all "voiced" here, in written word. The forum is really fabulous because it provides us with that capability. Otherwise, the scoli world is a pretty lonely place. Even if/when others try, they just cannot fully understand us... It's too bad I didn't know about it till 5 months after my surgery, but I got through it ok. But it is just great to be able to share, be encouraged, and try to help others now. So THANKS, everyone, for being such amazing scoli sisses and bros! You are too cool! :cool:

iluvmath!
04-30-2008, 05:22 PM
Hey, just wanted to thank you for adding me to the list and thank everyone for all their support and prayers. I will definitely be thinking of and praying for everyone else on the list as well!!! I'm glad we can all be here to support each other.

Also, I'm a girl so not a "he" as you posted in your last message....lol...no worries though....just thought I'd let you know.

Thanks again!!!
--Katie

Susie*Bee
05-01-2008, 03:11 PM
Dear iluvmath!-- Thanks for letting me know! I got it changed. I don't know why I thought you were a guy! But I've thought that for at least a couple months now. Remember back when I asked where you went to school and stuff like that? Oh well! And it's not because I'm sexist with the math thing either, because my youngest daughter is a math whiz -- majoring in it, a TA, goes to SAMSI workshops, etc. Anyway, my apologies for thinking that. And it's nice to see your "real" name. Definitely female!!! :D

trishthedish
05-01-2008, 06:16 PM
Susie*Bee, thanks so much for putting this thread together for periodic groups of surgeries. And thanks to those who've looked at my blog. I started it for my family mostly, because it's fun to freak them out with surgery pics, but us scoli folks aren't freaked by much at this point in our lives, are we?

Anyway, I have had a tired, sore day...just did too much I think. Next appt is at Dr. Shelokov's office in Plano on May 9, so we shall see.

God bless to all the surgeries in our little group. I always look forward to reading about everyone''s progress. Hang in there, you guys =) Better days are a-coming!

Sharshe
05-01-2008, 07:17 PM
Hey All,
The other day my surgeries were re-scheduled to 5/16 and 5/23. Something about no OR available and no interns(figuring graduation maybe) :confused: . But I had P.A.T. today and have to go for a stress test, they found a heart murmur :eek: . Hopefully that won't throw a wrench in the works. The Dr. who was doing my medical clearance said many women have them but should still check it out because its such a huge surgery. I figure its best to make sure its nothing to worry too. Other than that all went well, only 2 more appointments down the city before the 1st big day. I can't wait!

Susie*Bee
05-02-2008, 09:40 AM
Hey Sharon-- so sorry to hear about the delay-- and especially about the murmur. But you're right-- it's good to have it all checked out and have the A-OK before proceeding. I changed your dates in this thread. You'll have to do the official calendar ones though. I was thinking of you yesterday-- before you posted-- and was thinking "YIKES!--just one week away!" I'm sure you're wishing that were still the case-- you get to the point where you just want it over with. :eek: But it will be here soon, so enjoy your extra week.

It's funny, but I've sort of been reliving it all this week, because I'm almost to my one year anniversary-- May 4th. I keep thinking of how this or that was happening last year... May 2nd was my day off from work to do whatever I wanted-- I made cookies, cried a little, made sure everything was in order, etc. Then we headed up to Chicago on the 3rd... it's still so vivid in my mind.

One thing to all of you about to have your surgeries-- my husband took plenty of photos at the hospital so I could have them as memories. I've made a little scrapbook of my scoli journey... (you have to realize I'm NOT a scrapbook person!) He also kept a journal of what happened on what days, etc., and I've referred to it so much. Even when you THINK you are being clear-headed and lucid, you won't remember things very well... it will all be kind of hazy. Not a problem, in general, unless you WANT to recall things. We have a little notebook that has info from my appts., things leading up to the surgery, email and phone numbers, my other medications, and all that kind of stuff. It has been so useful. That is what he wrote my hospital journal in. I'm so glad we have things written down! Even if you don't have someone who can do it for you, you might still want to try yourself, with very basic things... Also, we kept track of all the meds I took, even till I stopped completely with pain meds. So I have a list of dosages and times for all of it. Probably never really need to know, but it seems like it's a good thing to have. :rolleyes: Anyway, just thought I'd mention that in case someone wishes later on they had written things down...

PS--just thought I'd add my reasons for making the scrapbook--the obvious is to look back on this BIG event... for my own and family's enjoyment (definitely not the word to use!!!) But the other reason is because I thought, when I'm long gone, that it might be useful if scoli shows up down the line... my daughters don't have it, but that doesn't necessarily mean it won't get passed on... they can see exactly what my problems were and what surgery I had. I have photos of x-rays, diagnosis, etc., all mixed in with regular photos and info, in the scrapbook. More fun to read-- and much easier for someone later on to find --an album rather than just a file folder of boring stuff that would probably get tossed. My thought anyway. ;)

Sharshe
05-02-2008, 11:32 AM
Susie*Bee,
Yes, I just want the surgery over. Bring it on! But I'll have some running around time with my mom now. She'll still come in on Mother's Day and she'll be able to come with me for the stress test (I won't have to take the train into Philly by myself, I'm a bit of a chicken when it comes to things like that) :rolleyes:
I'm not a scrape booker either but thats a neat idea. It might give me something to do. Since my normal gardening will be out of the question this summer it would be a good distraction.

leahdragonfly
05-02-2008, 07:58 PM
I thought dalmatica was having anterior/posterior surgeries April 14th and 18th--how did everything go??

Gayle

Susie*Bee
05-03-2008, 10:45 AM
Yes, Krysi's surgeries were scheduled for then, although the second date was tentative, depending on how she was doing. But regardless it would have been fairly soon-- I think the 21st if not the 18th.

I've been wondering too. I PM'd her a few days ago, but haven't heard back. I'm assuming she just isn't up to looking at the computer yet, and will hopefully let us know soon. If you (or anyone else) hears anything, please share.

Susie*Bee
05-07-2008, 10:00 AM
Hey guys-- just wanted to pass on a little "flag" for those of you about to have surgery. Before I had mine, the nurse at the school where I work said to be sure and warn my hubby that sometimes your face gets really puffy. Her father had extended back surgery when he fell off a roof (in his 70s!), and even though she was a nurse, she was totally unprepared for how he looked after the surgery. His face was all bloated and his eyes were bulging. She thought for sure something had gone wrong... but it hadn't. It is sometimes a side effect of being on your stomach for such a long time. That said, I need to also say it doesn't always happen... I didn't get that way, although my torso itself looked a bit swollen (no jokes, please!!!) :eek: Maybe it's just a sporadic thing, but also, for my surgery they used a Jackson table (I think that's what it's called), where they release some part of it so your stomach can hang free (again, definitely no jokes! I'm sensitive!!!) ;) I think that relieves a lot of the pressure and prevents some of that excess swelling.

Anyway, you might want to prepare your family that it's a possibility your face might be swollen afterward. That way they won't feel alarmed if it is.

CStadler
05-07-2008, 10:31 AM
For me there wasn't any swelling in my face but I did have 5 small areas that "broke open" and left me with 5 small scabs. I used the "Mederma" and if attended to right away it works very well in reducing or almost eliminating the chance of a scar.
My stomach swelled a great deal.....6" to the waistline. At almost 7 weeks post-op it is still at 4" greater than normal. Oh to wear jeans again! :o Carol

Chihuahua Mama
05-07-2008, 10:34 AM
It's a little tentative at this point but I'm pretty sure we're going to try and make it work.

Chihuahua Mama
05-07-2008, 10:58 AM
His face was all bloated and his eyes were bulging

Great. That's just great. Can this surgery get any worse? Now, I'm going to tell my kids I will look like a fat guppy.

Sigh. Oh well, thanks for the heads up Susie. Knowing is better than not knowing (I think).

Susie*Bee
05-07-2008, 11:13 AM
C. mama-- Don't worry about it-- just don't be alarmed if it happens. Life gets better! And chances are good that it won't, I think. You'll get through this! Take courage from us-- :) Been there, done that, movin' on... And I added you to the first post... let me know specifics if you want them there too.

Carol-- You made me feel better that you were swollen too. I NEVER (hardly!) measure things like my waist-- way too depressing (!), so I have no idea how swollen I really was. As for jeans :confused: it was a good 6 months or so before I tried them. There was no way to wear them, even if I'd wanted to, with the brace I had, because it came down too far. No way to fasten or unfasten pants. That's why those drawstring ones were so great! And I didn't even have to tie them-- just sort of squoosh the ties up under the brace and I was fine. :rolleyes: When I was done with the brace it was still hard to pull up something tight and fasten... :eek: But I'm a jeans gal through and through, so I manage! ;)

PS--David Wolpert addresses the swelling issue in his book... p. 114.

loves to skate
05-07-2008, 11:29 AM
Hi everyone,
I just wear my fat jeans now. I did manage to get my skinny jeans on one day ( I lost 10 pounds with the two surgeries) and they were very tight, but couldn't get them off as they were the pegged legs. I couldn't get them past my feet so had to have hubby pull them off for me. Does the abdomen ever go back down to normal and when might that happen?
Sally

sparklegirl59
05-07-2008, 03:09 PM
surgery seems like a preety tuff thing 2 go thro 4 some ppl. the Lord will always be with us, He promises, and He won't break that promise either.


GOD BLESS U ALL!!!!!!!!!!!

Pooka1
05-07-2008, 05:54 PM
surgery seems like a preety tuff thing 2 go thro 4 some ppl.

Hey Sparklegirl.

Yes this surgery appears to be a very rough road for the adults.

But it seems like it is much easier on kids. My daughter had this surgery and, though there was lots of pain, she has no regrets and is glad to have had it. She was saying that by the second week after surgery.

I just wanted to tell you that in case you ever need surgery. I hope you don't and that your brace holds your curves below surgery territory.

sharon

Sharshe
05-07-2008, 07:58 PM
With all the bloating comments being raised I figure I better run and pick up some stretchy shorts :( I had the yoga pants because original surgery was supposed to be in February. It will be a long hot summer without shorts.
But this is also making me think some, does the long term bloating seem to happen more with the anterior surgeries? Good luck to all, don't know if I'll have time to post much now, trying to get all the last odds and ends done.

Chihuahua Mama
05-07-2008, 08:47 PM
But this is also making me think some, does the long term bloating seem to happen more with the anterior surgeries?

I submit that Sharshe has posed the Question of the Month....other than the fact that this is surgery month.

Frankly, it's all about Bloating. Doesn't matter if we're thin. Doesn't matter if we're fat. Doesn't matter if we're daunted by the most difficult surgery of all time.

It's all about BLOATING. I intend to ask God about this someday.

(All silly and stupid comments are intended for the humor of the situation....which is better than laying awake at night worrying...at least for me).

briarrose
05-07-2008, 09:02 PM
I just wanted to give an update on my surgery. My doctor called me this evening and said he would rather do the surgery May 27th because most of his regular surgical team will be away May 20th because of the upcoming Memorial Day weekend. It was really nice of him to let me know about this because I wouldn't have felt as comfortable if my surgery had been with a group of people my doctor doesn't normally work with. I'm kind of annoyed that I have to wait an extra week, but it's better to be more cautious!

Susie*Bee
05-08-2008, 07:09 AM
I had sent a couple of PMs to Krysi (Dalmatica), who was scheduled for surgeries on April 14 and 18... and she sent me a PM last night. Here's what she said...


Hi and yes I survived not two but three surgeries. I will post a bit about it on the forum as my memory and skills come back to me. Krysi
(Just saw that she also posted in her thread "surgery dates are looming"...)

Briarrose-- I got your date changed in the first post. Sorry you have to wait an additional week, but you're so right-- it will work out for the best. Enjoy your extra week--somehow!

C.Mama and Sharshe-- by all means have loose comfortable clothing for afterward. I'm sure your doctor (or his nurse) will tell you to bring loose clothing to the hospital, etc. I think it doesn't matter which surgical approach is used-- there's apt to be some swelling in your torso from the trauma of the surgery. Mine was posterior. I think the possibility of face swelling was attributed to being on your stomach for so long, so that's in line with posterior surgeries. It's not that big a deal.

Sharshe- we sure are thinking about you as it's getting close to your date! We understand you may have other priorities for your valuable time! So know that we will be thinking of you and praying for successful surgeries-- and the same for Kjungrl's daughter and Tngirl07, who are also having surgery this next week. I know when it was just before my surgery date, I kept thinking "YIKES!" :eek: and having my insides do that flip-flop thing that happens when you're a bit stressed... and VERY emotional! :rolleyes: But there was also a part of me that was celebrating, thinking "Yay!--it's almost over!" ;) You'll all do fine. :) Big hugs, and if you don't get back on here much before your surgery, know that we'll be looking forward to that first post when you are "on the other side" of surgery-- and are able. :) Susie

Angelacross
05-08-2008, 08:25 AM
I have finally got the scoliosis book delivered took a while....its a good book lot of information in it that helps, and my mum and dad have found it intresting aswell.

I have been reading it page by page everything :)
Thanks for recommending it everyone.

Angela

Susie*Bee
05-10-2008, 06:54 AM
Yes, it's a pretty interesting book! I'm glad your parents are reading it too. Just remember that it gives you a really good idea of the "big picture" of it all, but everyone's own surgery and recovery are different, so expect yours to not follow everything he says... like some of us take longer with the pain meds, etc. Since you are so young, I am sure you will recover a lot quicker though. Thinking of you! :) Susie

Susie*Bee
05-18-2008, 11:55 AM
I thought there was someone else designated to post, but since I don't see anything yet, thought I'd share an email I received from her husband on Friday night. (I was gone yesterday...) This is what he said:

"Sharon's surgery went well today. The doctor predicted 4 hours but it took 5.5. There is an incision up her left side and another under her ribs. This was to place the hardware that goes in the front of the spine.They are going to keep her there all week till next Fridays operation. She is very sore and her stomach is a little upset from the drugs but otherwise doing well."

So it's good news so far, but still a ways to go... I know she still needs our thoughts and prayers as she faces this next surgery.

Susie*Bee
05-23-2008, 06:31 PM
Has anyone heard from any of the ones that had surgeries this week-- other than Arn010's daughter Amanda (who has given updates a couple times) ... ??? I had someone asking if we'd heard anything, so thought I'd just post and ask.

Chihuahua Mama
05-23-2008, 08:55 PM
I'm having anterior on 6/16 and posterior on 6/23 from T10 to L5. Saving that fusion to the sacrum. Phew.

trishthedish
05-28-2008, 06:29 PM
My 2 week follow-up was very disappointing. C2 and C1 had subluxed, so it was back to the OR for 4 hrs for me and and a Mother's Day gift of 2 more Chest Tubes. The Fairfield Inn thinks Hubby is a character from 'Cheers" (where everybody knows your name!) I've been home for a week now and go back for a check up in 2. I could surely use your prayers for a good outcome!

Trish

CStadler
05-28-2008, 06:55 PM
Hi Trish,

Sorry things did not go as well as you had hoped but it is all over and your back looks wonderful on your blog!

Hope it only gets better and better from now on. Best wishes on a speedy recovery.

We are all thinking of you.
Carol
PS...with such cute grandkids recovery is sure to be full of smiles!!!!

Chihuahua Mama
05-29-2008, 06:37 AM
[QUOTE=trishthedish]I could surely use your prayers for a good outcome!/QUOTE]

Trish, count on it. Sending those prayers.

Hang in there!

Susie*Bee
05-29-2008, 06:54 AM
Trish-- I am praying for you too. I was so sorry to read of the need for additional surgery, but surely that will have done the trick. You have definitely had quite a time of it!

I hope, since they know his name, that the hotel staff has treated your hubby royally. :D

I haven't looked at your blog lately, but, after reading Carol's glowing report, I guess I'd better get my act together... :)

You will continue to be in my prayers. Also, plenty of healing thoughts and gentle hugs from me to you... Susie

debbei
05-29-2008, 08:05 AM
Good luck Trish, hopefully this is the last 'tune-up' you need. Sounds like you have a great attitude, and great support in your family.

Wishing
06-11-2008, 05:17 AM
Has anyone heard from Ginger W.? She had surgery in N.Y. on May 20th. Hope she is doing well.

trishthedish
06-14-2008, 02:15 PM
Thank you, everyone, for the prayers. My June 12 appt went well. My head is still straight on my shoulders (surprise). Next appt is July 18. And thanks for looking at the blog, too :). I am lucky to have such a wonderful bunch of family and friends.

Sending prayers and well-wishes to all with recent and up-coming surgeries. Each day is another step forward, even if it doesn't feel like it, I think.

God bless you all :)
Trish

Susie*Bee
06-16-2008, 08:00 AM
Trish-- I was glad you posted to let us know how you are doing. I was so relieved to hear your appointment went well and all is still in order. You've sure been through a lot!!! Hopefully it will continue to be smooth sailing without any more of these extra surgeries or other problems. Be sure to let us know how the July appointment goes.

You have such a wonderful attitude! :) And God is good, regardless of the difficulties we have. Enjoy your family and the forward progress you are making in your recovery. Hugs, Susie

Susie*Bee
06-22-2008, 06:13 PM
Has anyone heard from Rita/Wishing? I think she's the only one we haven't heard from yet... and I know she said her husband would let us know sometime. Just wondering if someone else might know.

I was going to ask about Ginger (yesterday) but then she surprised us with her post and blog link, which, if you haven't seen it yet, is pretty amazing-- and entertaining. :D

As you know from the updates Suzy has been giving us, Chihuahua Mama's 2nd surgery is scheduled for tomorrow-- and so is Chris WBS's surgery. We're almost done with this thread, unless there are updates people want to add. Abbie's (Amae28) surgery is the last one, on the 30th.