I am now 2 weeks post osteotomy and thought I would share my story. I don't want to scare anyone with this but just let be aware not to take these surgeries lightly because you never know what can happen.
With my first surgery I lost a lot of blood despite being checked by a hematologist before hand. Because of the significant blood loss the first time I saw another hematologist before the osteotomy and he found nothing as well. This surgery nearly cost me my life! The surgeon told my husband despite giving me infusions for the unknown bleeding disorder I bled torrentially and that it could not be controlled surgically. He told him he really didn't think he was going to be able to pull me through. I lost 11 litres in the 6 hours.
He now is going to have my blood sent somewhere to the US to undergo further testing believeing that it must be a very, very rare missing factor in my blood. (missing factors are what causes heamophilia, Von Wilebrands disease).
As I said I don't want to alarm anyone but those thinking of having this surgery that don't have pain, I think should consider it very closely.
If anyone knows the best Bleeding disorder clinic or hospital in the US I would love to know where it is.
Thanks for listening....and by the way I have a perfect correction now and am thrilled.
Carol
With my first surgery I lost a lot of blood despite being checked by a hematologist before hand. Because of the significant blood loss the first time I saw another hematologist before the osteotomy and he found nothing as well. This surgery nearly cost me my life! The surgeon told my husband despite giving me infusions for the unknown bleeding disorder I bled torrentially and that it could not be controlled surgically. He told him he really didn't think he was going to be able to pull me through. I lost 11 litres in the 6 hours.
He now is going to have my blood sent somewhere to the US to undergo further testing believeing that it must be a very, very rare missing factor in my blood. (missing factors are what causes heamophilia, Von Wilebrands disease).
As I said I don't want to alarm anyone but those thinking of having this surgery that don't have pain, I think should consider it very closely.
If anyone knows the best Bleeding disorder clinic or hospital in the US I would love to know where it is.
Thanks for listening....and by the way I have a perfect correction now and am thrilled.
Carol
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