PDA

View Full Version : Janet



Singer
01-30-2008, 03:48 PM
Hi all, I just wanted to let everyone know that our Janet is back home in California and doing much better. She said the trip home from NY wasn't much fun, but we could've guessed that, right?? :eek:

She is very appreciative of everyone's messages and concern.

Susie*Bee
01-30-2008, 03:54 PM
I had been feeling concerned and just sent her a pm about half an hour ago... Glad to hear she's doing ok. :)

Janet
02-21-2008, 11:44 AM
[FONT=Arial]
Hi everyone,
Thanks for all the positive thoughts.
Just briefly, Dr. B obtained a very good correction, but I've had some complications post-op. Pneumonia (sp?) on days 2 thru 7, spent in intensive care; I couldn't figure out how to use patient-controlled anesthesia device -what do they expect from patient who was hallucinating the entire time? Mostly indifferent nursing staff in ICU. Once moved to regular room, was doing OK, even eating real food.

Since my transfer to rehab (at NYU - do NOT go there - more later) I've been throwing up or had dry heaves almost every day, thus hard to consume enough protein and I've lost muscle strenth. I have visiting nurse, home health care, PT coming in - I just need to get past the nausea. I've been home for 4 weeks.

Today is my 1st day on the computer. Gotta go now - I'm really tired.

Susie*Bee
02-21-2008, 12:19 PM
Janet--it's wonderful to hear from you. I'm so sorry you are still having nausea problems--that's a REALLY long time to have to deal with that! Hopefully you'll get past that soon and be able to get the nutrients you need to gain back your strength.

Rest up and post every now and then, so we know what's happening. I'll sure keep praying for you. What a time you've been through! :eek:

Singer
02-21-2008, 01:48 PM
Janet, the fact that your nausea has lasted this long is really concerning. Has your family doc thoroughly checked you out?

Please feel better soon!!
Chris

CHRIS WBS
02-21-2008, 04:36 PM
Iíve been wondering how you are doing, Janet. Sorry to hear about your problems with nausea. I have very low drug tolerance (throw up on Tylenol with codeine) so Iíll probably have the same reaction. Happy to hear though that your cosmesis is superb. I sincerely hope and pray you begin to feel chipper real soon.

Chris

lady
02-22-2008, 12:25 AM
i hope and pray that you get well soon, janet.

Janet
02-22-2008, 10:06 AM
Sorry if this sounds too gross, but, although the vomiting seems to have subsided, I am still producing a lot of white and bubbly saliva, which in turn makes me gag followed by dry heaves.

Again, thank you all for your encouragement.

Linda W
02-22-2008, 11:08 AM
Hi Janet,

Glad to hear that you are home although it does not sound like you are very comfortable. The suggestions others have made to call your primary care md and possibly Dr. B's office sound like good ones. Try and make your calls today so you are not caught up in the weekend coverage web. Hope you get some relief soon.

Take care,
Linda W.

txmarinemom
02-22-2008, 11:35 AM
Sorry if this sounds too gross, but, although the vomiting seems to have subsided, I am still producing a lot of white and bubbly saliva, which in turn makes me gag followed by dry heaves.

I've come to discover that nothing, and I think I really mean NOTHING is too gross for this board - LOL. Unfortunately, this surgery can produce some pretty "non-dinner party appropriate" conversation.

(unless, of course, *we're* all having dinner ;-)

I think the advice to contact Boachie's office today (avoid the weekend on-call rigamarole at all costs - bleck!) is great. Perhaps something as simple as adding Phenergan to your meds could solve the problem.

Are you having any other signs of a potential med allergy (i.e., hives, itching, etc.)?

Hopefully they can eliminate, decrease, or add something to your cocktail to get you some relief over the weekend. I have my fingers crossed for you, Janet ... it's a truly awful feeling to have side effects on TOP of initial discomfort.

Keep us posted when you can.

Big (ok ... big GENTLE) hugs.

Pam

Singer
02-22-2008, 01:11 PM
Last time I talked to Janet -- maybe a week or so ago -- she said she was off all her pain meds(!!). So I just can't imagine what could be causing her weird symptoms.

Janet
02-22-2008, 07:59 PM
[FONT=Arial] Thankfully I haven't thrown up for several days. I even ate macaroni & cheese! The big annoyance still is the foamy white saliva, which collects at the back of my throat and sometimes causes a gag reflex when I try to clear my throat. Dr.B's nurse said she never heard of such from other patients. I'm waiting to hear back from my PCP.

The visiting nurse / physical therapist process has been exasperating: no one seems to know what is going on; they fail to get pre-approvals from the ins. co., etc.

But one bit of really good news - I'm hiring a woman experienced in home care - hopefully daily for several hours per day.

Gotta go lie down - back is aching.

Singer
02-23-2008, 07:15 AM
Hooray for eating mac and cheese!!

Not to nag you Janet, but I do want to urge you to be assertive with your primary care doctor. My experience with home health care (when my mother-in-law lived with us and we had lots of visiting nurses coming in) is that they are okay at health maintenance but generally clueless when it comes to spotting and/or diagnosing problems.

Keep feeling better,
Chris

trulyaries
02-23-2008, 08:01 AM
I may be mis-reading the last two posts, but there's a vast difference between visiting nurses and home health care. As most of you probably know, visiting nurses are there only for skilled med care such as injections, changing dressings, etc. Home health care aides don't do any of that, but they do clean house, fix meals, do laundry, etc., which is my idea of heaven! I have aides come a few days a week while I'm recuperating and it's worth every penny.

As far as Janet's saliva problem, it would seem her surgeon or PCP should arrange a consult with another doctor. Could it be a fungus? A virus? An infection? A gastro problem? At least two of those could be caused by some meds.

I'm just doing some brainstorming. I miss brainstorming with my creative teams back at work, so when I brainstorm now I just look in the mirror - makes me feel like I have some company. (Yes, i do answer myself!) Sorry, I'm feeling silly this morning! :D

Janet
02-23-2008, 10:09 AM
Out West here (or at least where I live), my PCP can order a visiting nurse to take samples, draw blood, etc. I'm working on this. The home health care person only does the sponge baths - she is allotted 1 hour per visit which leaves no time for anything else. I have a housekeeper for general cleaning, laundry, etc. I also have someone to help me by running errands, getting the mail, etc.
I have never before been so dependent on others. I keep thinking of "The English Patient." This is all quite depressing. The good news is that I am getting stronger in terms of getting out of bed and walking around (using walker, of course).

Sorry if I sound very negative, but this is how it is for me right now.

lelc2002@yahoo
02-23-2008, 05:56 PM
hang in there Janet!
I remember being in my bedroom for days & days. I just was most comfortable there & had dinners there for quite a while. Little by little you will be up more & more but in the beginning you need lots of rest/sleep. Your body has been through a huge trauma and needs lots of time to repair....
I think it was by 2 mos or so that I would walk downstairs & plop into a chair there, enjoying the flowers & birds. It brought my spirits up!
You'll get there, Lynne :)

CStadler
02-26-2008, 11:31 AM
So sorry to hear of the continuing nausea. I found for me it was the drugs and when they reduced them from Hydromorphone to Oxycodone I did much better. I lost so much weight from not eating. Please be careful. I found fresh fruit salad went down the best. Good luck we all are thinking about you, hopefully this passes soon!!

Janet
03-22-2008, 01:19 PM
Reason you haven't heard from me in a month is that I was hospitalized AGAIN....locally. My February of vomiting was finally traced to a very large paraespohageal (??) hernia. I had been told several years ago that I had a large hernia where my stomach was pushing thru the diaphragm into the chest cavity, but was told to not worry about it. Of all the pre-op tests and exams, no one ever said to follow up on this, and I completely forgot about it except to mention it to Dr. B., who said he didn't think there was any relationship. I do not know if there was a correlation to the spine surgery, but what is done is done and I now have 5 little laparoscopic scars on my midriff. I had gotten extremely weak from not keeping any foods down, my potassium levels were way low and I was feeling awful ... I went by ambulance to a local hospital, where G-I docs and surgeons were very thorough in diagnosing the problem. I was there from 3/1 to 3/9 just having tests, and on 3/10 they did a 4 hour surgery to get my stomach where it belongs. NOT RECOMMENDED to have 2 major surgeries 10 weeks apart, but I had to have this done as there was a risk of very serious complications and it was not going to get better on its own.

Anyway, I was discharged Thursday night and am now at home, resting. I am very tired. Interestingly, I kind of forgot about my back surgery while dealing with the stomach problem. My back is healing well, the huge hump is gone (there does remain some curve). I am getting around my house OK, can prepare a few cold meals; have someone coming in most days to help. Yesterday was the 1st time in a while that I ate real food: cottage cheese, banana, hot cereal.... I am still in shock that I've had 2 major surgeries since Xmas - but I do believe I had had excellent docs, and now I can start dreaming about new summer clothes that show off my new shape - BTW, I lost almost 35 pounds since 12/26. My body is mostly loose flab now, so I have to give priority to toning exercises.

More later on - gotta take nap. Love and hugs to all of you for your fabulous support and encouragement... couldn't have done it without.

Janet

Susie*Bee
03-22-2008, 01:44 PM
Long distance hugs for you, Janet. I'm so sorry you have had such problems! At least it is now behind you and you are back home, recuperating. It was great of you to let us know what's happened. Rest up -- and here's to a very quick and complete recovery, with no more surprises!!! ;)

Singer
03-22-2008, 02:26 PM
Holy moly Janet, you've really been through it, haven't you. I'm a little miffed at Boachie's people for not catching it right after you had the surgery when you weren't recovering well. I think that's the danger of highly specialized doctors and surgeons -- they are so overly focused on their one area and simply don't take the whole person into account. Thank goodness you fixed this problem and now you can really start to get better.

love,
Chris