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kimg
01-14-2008, 12:35 PM
My 13 year old son was recently diagnosed with severe scoliolsis. He had a fusion when he was 2 years old for a congenital kyphosis. At 6 years old he was given a clean bill of health. However, at 13 he was diagnosed with a 43T 40L curvature. We have seen Dr. Gabos at Dupont, Dr. Dormans at CHOP and Dr Betz at Shriners (with surgery being done by Samdani or Cahill).

Casey wears a Boston Brace at night, but all doctors are skeptical about holding the curve which has increased to 48T 48L in three months. So we are considering surgery in the next couple of months. We would love some recommendations on any of the above doctors.

Thanks so much!

Kim

amandap
01-14-2008, 02:18 PM
Hi Kim,

Although I do not have any direct experience with Dr. Gabos at Dupont, Dr. Dormans ~ do know Dr. Betz as well as Dr. Samdani and they are both wonderful surgeons.

My daughter is a patient of Dr. Betz ~ she had VBS surgery at Shriners a yr and a half ago the surgery itself was done by Dr. D'Andrea (who's no longer there) anyway I honestly cannot say enough positives about Shriners as well as their entire staff. They are all very honest and caring individuals. They have great bedside manners and really know how to care for a child and make the child completely comfortable.

I've heard wonderful thinggs about CHOP but againg I have no first hand experience.

Hope this helps.

~Amanda

mariaf
01-14-2008, 08:08 PM
Hi Kim,

I too have no personal experience at CHOP or Dupont because we don't live in that area.

My son is also a patient of Dr. Betz in Philadelphia and I know Dr. Samdani as well (we've seen him in clinic a few times). I also know two parents whose kids had surgery with Dr. Samdani and they both loved him. I've heard of Dr. Cahill too but have not met him personally.

We have been going to Shriners for 4 years and Dr. Betz and his team have done wonders for our son - we have received the very best care.

To put it another way - we have good insurance and live in NY with access to many "so-called" top doctors - but we choose to travel to Philadelphia so that David can be seen at Shriners!

Good luck to you - your daughter will be in great hands at Shriners if you decide to go that route.

LorDon
01-14-2008, 08:14 PM
Hi Kim,
Welcome to the forum! You'll find lots of information and support here. This forum has been a lifesaver for me!

My 17 year old son just had posterior spinal fusion with Dr. John Flynn at CHOP. He is an amazing surgeon and I would highly recommend him. Dr. Dormans also has a fantastic reputation. You can't go wrong with either one of them. The entire staff at CHOP is great.

Best of luck to you,

Q's Mom
01-16-2008, 08:04 AM
Hi, My son has been seeing the doctors at Shriners in Philadelphia for about 5 years now. To answer your question the doctors there are great, actually more than great. Dr. Betz and Dr. Samdami are wonderful and I couldn't ask for better care. The nursing staff is just as wonderful and they really take the time to listen and help in every way possible. They all know you by name as soon as you walk in even the cleaning crew care about how you are. For the doctors they really their stuff, they are even involved in the research for new and better ways of helping their patients. If you are looking for a hospital and doctors to help your child with a scoliosis issue Shriners in Philadelphia is the best place to go. Hope this has helped.
:)

malka22
02-05-2008, 10:43 PM
Kim,
I was wondering where you ended up: duPont, Shriners, or CHOP, & with which surgeon? As you can see by my signature below, we've been "around"!!

kimg
02-08-2008, 09:07 PM
Thanks for all the information. We are probably going to have surgery with Dr. Samdani at Shriners. We have an appointment next week. I'll keep you posted.

mariaf
02-09-2008, 09:05 AM
Kim,

You'll be in great hands. We've been going to Shriners for over four years now, and while Dr. Samdani was not with the Shriners team back in 2004 when my son had his surgery, I've heard nothing but excellent things about him in the few years since he joined Shriners. We've also seen him in clinic once or twice (the doctors work as a team) and he seemed very knowledgeable, thorough and really nice.

And besides, he was trained by Dr. Betz, who only hires the best :)

Good luck and let us know when you get a date.

MATJESNIC
02-09-2008, 06:30 PM
Kim,

Good luck. Please keep us posted.