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Hi everyone,
I know I'm very slack and don't post often and offer advice but I'm on all the time reading everyone else's progress and opinions
. This site is a godsend believe me!! After Elysia's surgery maybe I can be more active in the advice department. 
I thought I'd post just to let everyone know that Elysia's surgery is sceduled in four weeks time for the 12th Feb. It's been tough with a lot of tooing and throwing about whether to proceed with the surgery or not.
I'm a bit confused about the whole event and how everything has turned out as we went for our second opinion with a Professor, many years experience who told us Elysia had Lordoscoliosis. Researched but couldn't find out much about it except I know that Ramona's son also had this. Funny thing is when we finally get our appointment with our surgeon he tells us that all Thoracic Scoliosis patients get the Lordosis!!!!
I was quite annoyed with how we were bounced around like a tennis ball. We were given 5th December, 7th Jan, 4th March and now we on for 12th Feb for the surgery, right when our school year starts! Elysia hadn't been x-rayed out of her brace since March 07. She has now had another x-ray out of the brace but I haven't been given the curves on that one yet. All I know is is that my child is still Risser 0 - has an enourmous rib hump (seems to be the majority of her problem, the rotation, rather than the curve itself and has days when she is in a lot of pain with her back, not often but it reduces her to tears.
All we can do now is pray that we've made the right decision and getting the job done while it is relatively simple than waiting for the curve to be a monster before deciding to get it fixed and it has affected her lumbar and that has to be fused as well.
I know I'm very slack and don't post often and offer advice but I'm on all the time reading everyone else's progress and opinions
. This site is a godsend believe me!! After Elysia's surgery maybe I can be more active in the advice department. I thought I'd post just to let everyone know that Elysia's surgery is sceduled in four weeks time for the 12th Feb. It's been tough with a lot of tooing and throwing about whether to proceed with the surgery or not.
I'm a bit confused about the whole event and how everything has turned out as we went for our second opinion with a Professor, many years experience who told us Elysia had Lordoscoliosis. Researched but couldn't find out much about it except I know that Ramona's son also had this. Funny thing is when we finally get our appointment with our surgeon he tells us that all Thoracic Scoliosis patients get the Lordosis!!!!
I was quite annoyed with how we were bounced around like a tennis ball. We were given 5th December, 7th Jan, 4th March and now we on for 12th Feb for the surgery, right when our school year starts! Elysia hadn't been x-rayed out of her brace since March 07. She has now had another x-ray out of the brace but I haven't been given the curves on that one yet. All I know is is that my child is still Risser 0 - has an enourmous rib hump (seems to be the majority of her problem, the rotation, rather than the curve itself and has days when she is in a lot of pain with her back, not often but it reduces her to tears.
All we can do now is pray that we've made the right decision and getting the job done while it is relatively simple than waiting for the curve to be a monster before deciding to get it fixed and it has affected her lumbar and that has to be fused as well.
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