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scoliosisat12
12-27-2007, 01:11 AM
I got a question for you guys.
How many of you people get checked for scoliosis at school. Not to many happen where i live and 2/5 children get it, let me know... Thanks

rtremb
12-27-2007, 04:41 PM
Jodi:
Scoliosis screening isn't done in the school's in Ottawa, Ontario. I am writing a letter to our City health department to ask that they start scoliosis screening again since there are new treatments for smaller curves now.
Ruth

scoliosisat12
12-27-2007, 11:40 PM
i don't think there are to many places that do screening i wanna write a note to the school board.

ShanaT
12-28-2007, 12:10 AM
My elementary school had them a time or two when I was younger.
I don't think they do it anymore though
One my friends actually found out that she scoliosis that way.
But luckily hers was a veryyyy small degree, 11 or 12 maybe?
It's been soooo long ago I don't remember
But anyway, it was not long after I had gotten my back brace, and her mom called my mom in a panic because all she knew of scoliosis was my case, which was more severe and it scared her to death
It surprises me how little people do know about it sometimes

rtremb
12-29-2007, 01:31 AM
Jodi:
Very recently I spoke with the Trustee Chairperson of the Ottawa Catholic School Board who is a registered nurse about getting the scoliosis screening reintroduced. While she encouraged me to pursue asking the city health department about getting it reintroduced, she did not offer me any help. This was disappointing to say the least given how important this is!
Ruth

MATJESNIC
12-29-2007, 08:29 AM
If you take your child to the doctor every year, here the doctors always look for scoli at their yearly check-ups. That is how we found out.

Checka729
12-29-2007, 01:10 PM
Both my elementary and high schools were great about screening for scoli; atleast once a year every child was checked during gym class. Thats how my scoli was found! My own doctor didn't find it during my yearly check-ups. I was put in the Boston Brace a fews month after my school nurse found it.

ElleBelleCurvz
12-29-2007, 01:32 PM
HEy jodi, I finally got it activated ^_^ yay

ANyway, none of the district screens and I live in Minnesota which I understand is a fairly progressive state in health research and technology.(correct me if Im wrong) Anyway, I have never been screened at school and my wonderful family doctor didnt even think of screening until I was 12. (SHe also detected my astigmatism at a very young age) Even so, we changed fromt hat doctor due to distance and the other doctor was as unexperienced as you could guess. He didn't even check if my heart murmur was an issue let alone check for scoliosis!

I think that we should all fight for scolio screenings in schools yearly! I ve heard that for free every child can get a scolio screening once a year at school, if the school decides to set aside time to accomadate this!

I believe this is a wonderful thing to see and if you look most people are diagnosed by doctors they have had for life, but what about the people that dont or cant afford to go to the doctor?

scoliosisat12
12-29-2007, 05:46 PM
we need to do something at least to get it started. kids in my grade have scoli and don't know about it and it can help people out alot

scoliosisat12
01-14-2008, 09:20 PM
right now i am writing a persuiasive letter to my community hoping to get something going!!! :D

ElleBelleCurvz
01-14-2008, 10:47 PM
jodi who are you writing it to? i want to write one too! ha but i dont know if it should go to the mayor or the superintendent or my principal! lolz..

rtremb
01-15-2008, 01:26 AM
I am attaching a letter I have written to the Medical Officer of Health. I chose him since his office deals with preventing illnesses (i.e., adminster flu shots). I have carbon copied our local Councillor, the Mayor and our provincial Member of Parliament and sent them an email too asking for their support.

Ruth

MATJESNIC
01-15-2008, 09:37 AM
Where we live, our doctors look at our children's back every year at their check-ups. That is how we found out about Nicole.

scoliboymom
01-15-2008, 10:47 AM
Ruth
I just wanted to make a comment about your writing a letter to your school board. Have you considered going provincial with it? Maybe even a petition. To my knowledge there is no scoliosis screening in any public school in Ontario. Would be wonderful (but costly I imagine) to impliment and there would be lots of support from many parents. The other thing I wanted to point out is that the screening should be done more then once, and probably at different times for boys and girls. My sons curves progressed very rapidly within the 8 months from time of discovery to surgery. I have photos of him sitting by the pool 12 months previous to discovery, perfect view of his back, and absolutely no sign of scoliosis, no rib hump, no curved spine. We will never know if early intervention could have stopped his progression but I wish we had the chance to try.
Good luck with your letters and you have my support.
Ramona

rtremb
01-15-2008, 01:17 PM
Ramona:

Thanks for your comments and support. My letter is to the Ottawa Medical Officer of Health who is also the provincial representative here in Ottawa.

I have copied the letter to Jim Watson who was previously the Minister of Health Promotion for Ontario and is our local provincial representative. I know him and his staff well from my community work. I also copied the Mayor who used to be my neighbour and our City Councillor who I also know very well from my community work. Hopefully by spreading the letter around someone will pick it up as a "good idea" and work it. I personally don't have time to do a Petition at the moment but I agree a Petition is a good idea.

I agree that early detection is everything especially with the new treatments available and I also agree with you that the screening should be done more than once during the teen years. The medical staff are in the schools administering vaccinations in Grades 7 and 8 here in Ottawa so this would be an efficient way to do the repeated screening.

I decided that involving the School Boards at this time wouldn't do any good. They won't be the ones paying for the screening. Also I spoke to the Chairperson of the Ottawa Catholic Board and I didn't get the impression she wished to take this on as and promote it. She is a nurse and did suggest I take my idea to the local health office. If the province or the City decide to start doing the screening the School Boards will have to cooperate at that time since they have to provide access to the students for issues regarding public health.

Anyway, I will wait and see what happens now that I have sent my letter out...see who responds and what their attitude(s) are towards this idea.

Ruth

scoliosisat12
01-15-2008, 10:12 PM
first of allim writing to my school board here they do they bend over at my doctor but most people when i surveyed them sayd that they don't so im writing. i found mine from my mom spotting it in a dance class and it was a harsh day for me. i am sending my leader out on monday and i can't wait to get a responce!!! I'll let yall know when i get something!

tina_emma_megan
01-16-2008, 06:08 PM
Scoliosis screening - non-existent in UK.


My daughter Emma is 11 years old and last March underwent corrective
scoliosis (curvature of the spine)surgery for an S curve of 80 degrees and 70 degrees which had been diagnosed the previous March. After a traumatic time, physically and mentally, she is now doing very well and has gained in confidence as well as height. She has started a petition to try and get schools in the UK to test children for scoliosis to try and detect the problem
before it gets to the need for surgery. The doctor has said that Emma
has probably had scoliosis for the past 5 or 6 years and if she had
done the forward bend test it could have been diagnosed earlier. Her
sister who is 6 has now been diagnosed with scoliosis, although mild
they are keeping an eye on it to see if it progresses like Emma's.
Emma would much appreciate if everyone could take a couple of minutes
out of their time to sign her petition which she intends to give to the
Prime Minister to raise this awareness. The petition can be found at
thepetitionsite.com/1/start-testing-for-scoliosis-in-schools

Many thanks and a Happy and Healthy New Year to all. Christine, Emma and Megan

marmyte
01-20-2008, 09:06 AM
Scoliosis screening - non-existent in UK.


My daughter Emma is 11 years old and last March underwent corrective
scoliosis (curvature of the spine)surgery for an S curve of 80 degrees and 70 degrees which had been diagnosed the previous March. After a traumatic time, physically and mentally, she is now doing very well and has gained in confidence as well as height. She has started a petition to try and get schools in the UK to test children for scoliosis to try and detect the problem
before it gets to the need for surgery. The doctor has said that Emma
has probably had scoliosis for the past 5 or 6 years and if she had
done the forward bend test it could have been diagnosed earlier. Her
sister who is 6 has now been diagnosed with scoliosis, although mild
they are keeping an eye on it to see if it progresses like Emma's.
Emma would much appreciate if everyone could take a couple of minutes
out of their time to sign her petition which she intends to give to the
Prime Minister to raise this awareness. The petition can be found at
thepetitionsite.com/1/start-testing-for-scoliosis-in-schools

Many thanks and a Happy and Healthy New Year to all. Christine, Emma and Megan

i'll sign your daughter's petition. since i was diagnosed i've wanted to start something and i wrote to the GP who referred me to my surgeon asking for his help. he agreed that something needs to be done but nobody wants to take responsibility for it. i suggested that nurses go round to schools to start a screening programme but the district nurses all threw their hands up and said they didn't want to do it.

my opinion is that the best interim solution would be to raise awareness by ourselves. even if all you do is speak to a few other parents and encourage them to check their children, hopefully the message would get passed on.

the problem a lot of people see with a screening programme is that there could potentially be a lot of unnecessary referrals (meaning this clogs up the orthopaedic surgeons and causes undue stress and worry for patients and their families), but i'm just playing devil's advocate and relaying what i have found out amongst my research. i do believe screening is something which should take place regularly, and by regularly i don't mean annually, as large curves can develop within 12 months in adolescents who are growing quickly.

you may also be interested to see this: http://www.clinicalanswers.nhs.uk/index.cfm?question=2737 which i found a while ago. i had a better link than that initially but i seem to have lost it.

MATJESNIC
01-20-2008, 11:12 AM
I understand what you are trying to do. Some curves, when detected early can be treated without surgery. Just so you realize, there are many children who started bracing before they hit puberty and when their curves were still in the 20's and they still went on to get surgery. Of course, there are other options out there besides bracing, such as stapling.

I just want to make the point that finding out early does not always equal avoiding surgery. They are in the process of discovering that some of these children have aggressive, progressive curves while others have the mild type. With that knowledge we will be able to make more informed decisions.

But of course, I agree with you that you still want to find out as early as possible.

scoliodancer
01-22-2008, 03:57 PM
hey i heard from one of my doctors that they dont do scoli screenings at school cuz they were giving people false diagnosis. in other words, they didn't catch people that had it, or told people they had it when they didnt. i do agree with you they should start screening again, cuz some people dont get noticed until surgery is the only option. mine was noticed in a dance class, and luckily its minor.

rachelroonie
02-16-2008, 12:16 PM
In my school system they do school screenings. That's actually how they caught mine about 3 years ago. I actually just got a brace the last week, and will be wearing it for the next year.

But yes I agree, there should be annual school screenings. So they can catch the problem before surgery is the only option.

CurvySAT05
02-16-2008, 06:22 PM
We were examined by our P.E. teachers in 7th grade (girls) and 8th grade (boys) because of the age of growth spurt (I think). If the P.E. teacher had any suspicions they would send you to the district nurse for a re-check and referral to your family physician for further evalutaion. I remember the day that we had our scoli check in 7th grade my P.E. teacher was out on leave and one of the male teachers taught the sub how to do the checks that day (I wonder how many people she missed). I didn't get diagnosed that day...I don't even know if I had it back then.
I had another scoli check my 9th grade year for a sports physical at my primary doctors office. He told me to bend over and touch my toes (noted how flexable I was) and told me I was fine (I don't think he even looked b/c it was less than a second check). Less than a year later (summer before 10th grade) I had another sports physical at school and our team doctor detected the scoli in the blink of an eye! It was already above 35* at this point. My specialist didn't think that a brace would be effective b/c I was "too old" so we waited and watched for it to progress and I had surgery.
I think that all schools should have scoli screenings done by trained professionals (not people who are trained that day) so that those who are diagnosed have the most options available to them. I think that it is better to "over refer" people to get x-rays for possible scoli (and find out they dont have it), than to under refer those who might have scoli and not diagnose it until it is too big and their only option is surgery.