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OURLENA
09-23-2007, 12:25 PM
Hi my daughter has a 30 degree thorasic curve and her ortho dr has asked us to simlpy wait and see what happens. She has to go every 6 months to have x-rays done, 2nd visit in Nov. They have given us litle info and never mentioned any treatment, no mention of a brace.

She had a rare blood cancer when she was 3 but has had a MRI scan to rule out any other llnesses, luckly this came back all clear. He said she is a few years away from puberty and starting her periods, not sure if this makes a difference.

We live in Scotland, could anyone tell me more about braces, What ones are the best and are they available in Scotland. At what stage they would use them.

I do see a difference in her, and when her rib cage sticks out she does complain of pain. Which i try to controll using anti-inflammatory drugs. She is also just about to start a class called Body Balance, which is a combination of pilates and yoga.
Any suggestions/info would be great appreciated. :)

rtremb
09-23-2007, 12:47 PM
Welcome to the forum. I am pretty new here myself - just a few weeks but have found there is lots of great information on this site. I was born in England and now live in Canada. Both my children have idiopathic scoliosis, we didn't receive very good information from our doctor and both my children's curves have progressed rapidly, sometimes at alarmingly fast rates if they were going through a growth spurt. I think your daughter should be braced now to prevent curve progression. There is a long string of posts on this site about the Spinecor brace which seems to be easier to wear than the hard braces and is available in Britain. If you want to read about the brace the link to the website is: http://www.spinecorporation.com/English/index.htm

Jazzeve
09-23-2007, 06:56 PM
Hi Ourlena,

Weclome! You do not mention the age of your daughter for sure, but I assume she is in the 10-14 age range?. In the US the standard seems to be going into a brace at 25 degrees. My own experience with my daughter (who is 6 and was diagnosed 1 year ago) is that we had xrays every 3 months to give the Dr. a feel for if and how much it was progressing. I urge you to research more and seek a 2nd or 3rd opinion if you daughter still has a lot of growing years left. If you read a lot of the posts throughout the site you will notice that many children had huge growth spurts in a matter of a few months and had their curvature increase by as much as 10 degrees during that time. Based on my own experiences 6 months is too long of a period between visits and a brace should be seriously considered to prevent that curve from increasing unexpectedly.

There is a ton to learn about scoliosis as a parent and it can be pretty overwhelming. There are wonderful, wonderful people on this site to gain knowledge and support from . Just reading their real life experiences is so informative. Every child is different, just as every Dr. has their own philosophy on how to handle scoliosis. This site gives you a look at all the different of scoliosis.

Good luck to you and your family. You are in our thoughts!!

Jasmine

CurvySAT05
09-23-2007, 10:17 PM
If your daughter is a few years away to starting her periods, then she still has not hit her major growth spurt yet. Looking into a brace might not be a bad idea. You could call her orthopedists office and ask what their opinion is on her getting a brace to help slow down progression of the curve during this crucial time while she grows.
Like Jazzeve said, you could also get a 2nd or 3rd opinion to see what other doctors have to say about your daughters case. She still sounds pretty young, so there should be multiple treatment options available to her.
Good Luck

RugbyLaura
09-26-2007, 04:53 AM
Hi OurLena,

I have sent you a private message. The medical proffession in the UK seem to have a very relaxed attitude towards Scoliosis. How old is your daughter and have you seen a Scoliosis specialist or a general orthopaedic consultant?

30 degrees is pretty high for "wait & see". I'd ask for a second opinion.

Laura

gerbo
09-28-2007, 04:22 AM
all depends on how old she is, but as laura says, unless she has finished growing 30 degrees is likely to need more active management.

consider also posting on www.scoliosis-support.org , this is a uk based forum, so advice is likely to more appropriate for your circumstances

take care

cherylplinder
09-28-2007, 08:13 AM
I wouldn't wait and see. I would brace her. Her curve has a really high chance of progression.

~ScoliosisGirl~
09-29-2007, 12:47 AM
thats what happened to me. I grew too fast all in one year that my curves changed dramastically! We knew i had scoliosis.. not being sure of what it was.. and besides the doctor said there is nothing to do about it yet.. so we listened && waited.. i would definatly say go for a brace! good luck!

ecnw
09-29-2007, 12:47 PM
If you are questioning why your daughter is not being braced, then your instincts are telling you something.
My son(age 10) has been in his brace for almost 5 years now. It has been successful in keeping the curve low, we're waiting to see how he does when major growth spurts hit.
My daughter(age 11) was braced for two years before surgery was a must. Even though we knew surgery was going to happen, we were trying to put it off for as long as possible. I feel good that she got those two extra years minus surgery.
If you're unhappy with what your doctor says, question him, get a second opinion, and check out what other options may be available to you in Europe.

Emily