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View Full Version : Son in Spinecor for almost a year



gwenk
09-18-2007, 10:29 PM
Hi Everyone,

I came aboard last year after Andrew (15) was diagnosed with Scheuermanns Kyphosis. I have not been on much, but have had the pleasure of befriending Melissa and Cheryl. As you all know the whole process can be overwhelming. I still wake sometimes with the hope that this is all a bad dream. Doesnt take long for the reality to sink in though. We did travel to see Orthos at Shriners and Dupont. I was hoping to see Dr. Betz but was told he does not see patients anymore. I understand that he is involved with a new procedure called stapling. I am a little afraid to inquire about it though since I think we need to stay the course with Spincor.

So decided to go to Montreal to see Rivard/Coillard since no one in the Northeast would try the Spinecor brace on a kyphosis patient.I talked to everyone I could in the tri-state area.! Andrew started with a 78 degree curve. ( for kyphosis, 40 is normal). He was just measured in August at 43 degree!!! Dr. Rivard was great. Basically, he told Andrew that he had to wear a brace, but he was very good with him.

Drs. Rivard and Ciollard are very pleased, but remind us that stablization does not occur for at least 2 years. So we are half way there. He does look like he holds himself straighter until he bends over. When he bends over the kyphosis is still quite evident but Dr. Rivard has hope that with stablization this will improve.

Well anyway,

I just wanted to thank all of you who responded and helped us make this decision. I am not an expert by any means but could help with little issues like snaps that wont work or how to deal with schools and people who tease.

Thanks again to everyone.

Gwen

PS CherylP I have a new phone and need your number. Hope to talk to you soon!!!

amandap
09-19-2007, 10:07 AM
Hi Gwen,

I'm not sure where you got your info from but Dr. Betz does still see patients is currently not doing any surgical procedures due to shoulder surgery early this year but once's he's done healing he'll be back in the OR. He was also the pioneer for Vertbral Stapling but this is not something he is completely focusing on either. Shriners in Philly sees and helps many many patients only a handful that are candidates for the stapling.

I'm sure if you call Shriners in Philly you'll be able to schedule a clinc appt for you son.

Amanda

jillw
09-19-2007, 10:48 AM
Gwen, that is great news! I didn't realize spinecor could treat kyphosis also. Thanks for sharing and I wish your son continued stablization over the next 2 years and beyond!

gwenk
09-22-2007, 01:45 PM
Gwen, that is great news! I didn't realize spinecor could treat kyphosis also. Thanks for sharing and I wish your son continued stablization over the next 2 years and beyond!


Hi

Well we couldnt find anyone who does use the spinecor for scoliosis to fit it on Andrew accept one doctor at John Hopkins. So we decided to see Rivard who currently has 15 kyphosis patients in the brace. Thanks for the good wishes..

Gwen

lisa5
01-30-2008, 12:23 PM
Hi Gwen,
I am new to this forum. My son also has been diagnosed with Scheuermanns Kyphosis with 77 degree curve. I am very interested in the SpineCor brace. I have read your postings and would like to make appointment with Dr. Hilaire Rivard but first have some questions and would like to talk to you.
Thank you,
Lisa

mariaf
01-30-2008, 04:31 PM
I was hoping to see Dr. Betz but was told he does not see patients anymore. I understand that he is involved with a new procedure called stapling. I am a little afraid to inquire about it though since I think we need to stay the course with Spincor.


Hi Gwen,

I want to reiterate what Amanda said - Dr. Betz has just gotten back in the OR (only assisting at this point - as he continues to recover from rotator cuff surgery).

He does see patients in clinic - we saw him in the fall and are seeing him again on 2/19.

While stapling is one of the many techniques he uses to treat scoliosis, he most certainly does not focus solely on that treatment method. If you wanted another opinion, I would definitely go see him. As Amanda mentioned, just contact his PA, Janet Cerrone, at either 1-800-281-4050 or by e-mail at janetcerrone@comcast.net. (feel free to email me as well if you have any other quesitons or would like more info).

Good luck!!

Snoopy
01-31-2008, 07:33 AM
Lisa,

May I ask how old your son is and what treatment his doctor has recommended?

Mary Lou

lisa5
02-01-2008, 09:09 AM
I am new to this Forum. I am trying to reach GWENK. My son has been diagnosed with Scheuermanns Kyphosis and we are considering the SpineCor brace. Does anyone know how I can reach GWENK?
Thank you very much!
LISA