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Chrissi
06-03-2004, 10:45 PM
Hi
If anyone has any unanswered questions, just dont be afraid to ask.

Thanks,
Christine

Boo
06-13-2004, 11:22 AM
hi i am gonna hav surgery soon and i wanna know what the cathetor is like! i know it sounds silly but thats the thing i'm most worried about!
:confused:

choliesmom
06-19-2004, 10:54 AM
Hi there. I have alot of questions and not sure if anyone can help me with the answers. I have a daughter (she will be 13 in November). Her scoliosis is progressing at an alarming rate even with bracing. I have to meet with her doctor Monday June 21 to discuss surgery. My problem is that my daughter also has severe cerbreal palsy. She doesn't walk or talk. I wonder if surgery is the best option for her. As I said she doesn't walk so there is no weight bearing for her. I have been researching I understand that without surgery, she could have difficulty breathing. But on the other hand, I worry about pain management due to the fact that she cannot talk. She does communicate through facial movements and crying. But I don't want her to suffer. If anyone could give me some information I would truely appreciate it. I just want to make the best decision possible for her.
Thank you,
Cholies Mom

Carmell
06-19-2004, 03:50 PM
Hi Cholie's mom...

I know of a few CP teens (and pre-teens) who have had scoliosis surgery. You need to find a pediatric orthopedist who has had experience with CP kids and scoliosis. The ortho can help you determine whether or not the scoliosis is going to be a potentially life-altering condition - namely affecting her breathing to a point where she will become oxygen dependent. Weigh the pros and cons very carefully. Her body may or may not respond well to the surgery and rod placement because of the severity of the CP. This is another issue you will want to make sure you consider. Good luck and keep us posted.

choliesmom
06-19-2004, 06:32 PM
Carmell,
Thanks for the other considerations to speak with the surgeons about. I would have never thought of those. The surgeon is out of Rainbow Babies and Childrens Hospital in Cleveland. I don't know about how familiar he is with CP kids. I will talk with him on Monday. I appreciate any questions anyone can advise me to ask.
Thank you again.
Best Wishes
Cholie's Mom
Will keep you posted!