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  • New Member - Just Saying Hi

    Hello,

    I've been visiting this forum for a few weeks now but this is my first post. I just wanted to say Hi and thank everyone as this website has been really helpful. I'm 25 yrs old and I've been diagnosed with scheuermann's kyphosis.

    I was hoping that anyone else who has been diagnosed as such could share their experiences and results of surgerical treatment. I'm currently on a wait list to see a specialist and I would like to know what I'm in for. Also, if anyone has before/after x-rays/pictures, etc, please feel free to post them or pm me.

    Thanks! I look forward to hearing from you guys!

  • #2
    Hi & glad you joined this forum. I have learned so much useful info and received so much emotional support from others on the forum.

    I have Scheuermann's Kyphosis - had it since I was 13. I am having surgery in December. I am now 62, with a 100* kyphotic curve. Up until 3 years ago, I was consistently told by doctors that I was too old, it was too late, there is no possibility for correction once past early teens, etc.. Then one day I realized that I was getting shorter much more quickly than anticipated; one thing led to another, and I found out that many, many doctors are simply ignorant of the possibilities for correction and stabilization that are available now.

    Your specialist probably will order full-spine x-rays & an MRI, maybe a bone-density test and measure your spine's flexibility. If you don't already have measurements of curve progression, s/he may recommend waiting 6 months or a year to measure progression before advising surgery.

    Be sure you stay on top of this, and if the curve is progressing, have the surgery to correct & stabilize sooner rather than later. As you search this forum, you will find that younger people get better correction and heal much faster.

    Please let us know how things are going.
    As of 12/25/07, age 62, 100* thoracic kyphosis, 73* L1-S1 lordosis, 37*/25* compensatory S-curve scoliosis. On 12/26/07, Dr. Boachie @ HSS NYC did 11 hours ant. & post. procedures, fused T2-L2, kyphosis now 57*, scoli 10*. Regained 2 1/4 inches in height!! Improving every day.

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    • #3
      Welcome, Canadian Bacon!

      You've come to the right place for support and information- There is always someone that has had the same problems you have and willing to help-Good Luck! Lisa
      Lisa age 47
      T curve 69 degrees
      L curve 40 degrees more or less - compensatory
      fused to from T-3 to sacrum
      anterior and posterior surgeries completed June 1, 2007
      pushing hard in recovery !!

      Comment


      • #4
        Originally posted by Janet
        Hi & glad you joined this forum. I have learned so much useful info and received so much emotional support from others on the forum.

        I have Scheuermann's Kyphosis - had it since I was 13. I am having surgery in December. I am now 62, with a 100* kyphotic curve. Up until 3 years ago, I was consistently told by doctors that I was too old, it was too late, there is no possibility for correction once past early teens, etc.. Then one day I realized that I was getting shorter much more quickly than anticipated; one thing led to another, and I found out that many, many doctors are simply ignorant of the possibilities for correction and stabilization that are available now.

        Your specialist probably will order full-spine x-rays & an MRI, maybe a bone-density test and measure your spine's flexibility. If you don't already have measurements of curve progression, s/he may recommend waiting 6 months or a year to measure progression before advising surgery.

        Be sure you stay on top of this, and if the curve is progressing, have the surgery to correct & stabilize sooner rather than later. As you search this forum, you will find that younger people get better correction and heal much faster.

        Please let us know how things are going.
        Janet, thank you. I completely understand. I was told by two seperate General Pracitioners and a Chiropractor that surgery was not an option since I had finished growing (apparently they hadn't updated their knowledge of orthopedic surgery since first year med school!). It wasn't until I started researching online did I realize that surgery was absolutely possible and wheels only started rolling when forced my GP to refer me to an orthopedic surgeon.

        I'm waiting to see Dr. Dvorak in Vancouver, BC. He's supposed to be the best so I'm very excited. I don't know how I'll be able to wait 6 months though! (Slow wait times in Canada).

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        • #5
          Originally posted by crepehanger
          You've come to the right place for support and information- There is always someone that has had the same problems you have and willing to help-Good Luck! Lisa
          Hi Lisa, thanks! I have no doubt I'll run into people with my condition as well; althought it seems to be more rare than scolosis. I guess it just makes us more special

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          • #6
            Also, if there are any Canadians here who have ventured down to the US to have surgery performed, please (PLEASE!!) share your experience with me via posting on this thread or through pm. This is an option I may have to explore so I would like to know the in's and out's.

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