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anna
05-05-2004, 11:39 PM
I am 35 years old and had scoliosis since adolescent. I only had a visit to the doctor recently and told me I have a 70 degree scoliosis and because of my age surgery will not help straighten my back, only 10 degreeswill be coorected w/c is really painful and depressing to hear. Can I still have options to correct my spinal curvature? I hope anyone can help me in a way. Thank you.

Mistina
05-06-2004, 10:23 AM
I would definetely get another opinion. What kind of doctor are you seeing, is he an ADULT scoliosis specialist? You are only 35, that doesn't seem right to me. I think there is help for you.

Karen Ocker
05-06-2004, 03:46 PM
An adult scoliosis surgeon reduced my curve from 80 deg to 40 degrees at the age of 60. This was revision surgery!

With the right surgeon it seems you can be helped.
Karen

jennyc
05-06-2004, 04:07 PM
I am 32 years old and had my 45 degree curve (thoracic) corrected to the point that there is no perceptible curve. Did your surgeon order "bending" x-rays (in which you lean over to one side)? That is one indicator surgeons use to determine how flexible or stiff the curve is. Did the surgeon tell you that your curve was particularly inflexible? At any rate, you should consider getting a second opinion.

SandyC
05-06-2004, 04:51 PM
Anna,
Run, do not walk to another doctor!! I'm 55 and had an S curve of 66T/70L. I had REVISION SURGERY BY A DOCTOR WHO SPECIALIZES IN ADULT SCOLIOSIS at the age of 53. I am now have a nearly perfect spine.
SandyC

anna
05-07-2004, 02:31 AM
Yes I did bend from one side to the other in the x-ray and told me that my bone is already matured and even if I undergo surgery 10 degrees will be eliminated, the doctor told me if only I was much younger say 21 then my muscle is still that flexible and also my bone is not matured. Is it true? I live here in Manila, Philippines and I went to a hospital were bones are their specialty, Orthopedic Hospital. Of course maybe in your place doctors and the procedures are advanced compared here in the Philippines so that's why the doctor told me practically I have no chance to straighten my back, but I wonder why you people there had already gone surgery despite your age. Up to now, I don't know, I'm quite depressed and there's no chance for me to go abroad to undergo surgery because of financial means, the fare expenses plus the surgery expenses really make me accept the fact that I have no chance to cure my scoliosis. But anyway thank you for your infos. I just wish that advanced method of surgery in adult scoliosis will be introduced here in the Philippines.

lbas
05-09-2004, 06:04 PM
Hi Jenny,

I'm 28 and have an upper curve of 46 degrees. Can I ask you some questions about your surgery? Since your case seems to be most similar to mine out of what I've read on this forum... How old were you when you had the surgery, and are you (in general) glad you had it done? Also, where did you have it done, you had such a great correction! And how long was your recovery time? I am considering the surgery and am keen to get as much information as possible from adults who have been through it...

Thanks SO much--Laura

lily
05-10-2004, 01:19 PM
Sandy C,

Can you give me more info about your surgery at 53 yoa? Who is your doctor or adult sco specialist? If you would like to email me at rosesharon4065@hotmail.com, I would really appreciate it. I am 56 years old and now just getting into seeking treatment for the first time in my life. I did seek treatment way back then, but in the Philippines they didn't have much to offer as far as treatment is concerned, like Anna said.

Lily

OneofFive1
05-10-2004, 05:24 PM
anna,
Are you in pain?

anna
05-11-2004, 03:47 AM
No, I'm not in pain except when I do household chores but I can still manage it. What bothers me is what the doctor told me that eventually when I grow old, my scolio will start to worsen because when you get old, the bones weaken, and that's what I'm afraid of when I get old. I hope ASCO treatment will be introduced here in the Philippines coz I know many will be benefited if they are for real.

anna
05-11-2004, 03:49 AM
No, I'm not in pain except when I do household chores but I can still manage it. What bothers me is what the doctor told me that eventually when I grow old, my scolio will start to worsen because when you get old, the bones weaken, and that's what I'm afraid of when I get old. I hope ASCO treatment will be introduced here in the Philippines coz I know many will be benefited if they are for real.

anna
05-11-2004, 03:49 AM
No, I'm not in pain except when I do household chores but I can still manage it. What bothers me is what the doctor told me that eventually when I grow old, my scolio will start to worsen because when you get old, the bones weaken, and that's what I'm afraid of when I get old. I hope ASCO treatment will be introduced here in the Philippines coz I know many will be benefited if they are for real.

anna
05-11-2004, 03:58 AM
Nto actually, except when I do household chores, but I still can mange. What bothers me was what the doctor told me that, as of now, in my age, hopefully my curve would not get worse, but as I grow old, it can possibly start again to worsen because as I age, my bones will become weak. I just hope adult scoliosis doctors will be introduced here in the Philippines or the ASCO treatment will finally be introduced here in our country. If anyone had a way to reach out my message to ASCO therapist, please do. I know many will benefit in their therapy if they can really treat scolio.

anna
05-11-2004, 04:01 AM
Not actually, except when I do household chores, but I still can manage. What bothers me was what the doctor told me that, as of now, in my age, hopefully my curve would not get worse, but as I grow old, it can possibly start again to worsen because as I age, my bones will become weak. I just hope adult scoliosis doctors will be introduced here in the Philippines or the ASCO treatment will finally be introduced here in our country. If anyone had a way to reach out my message to ASCO therapist, please do. I know many will benefit in their therapy if they can really treat scolio.

anna
05-11-2004, 04:01 AM
Not actually, except when I do household chores, but I still can manage. What bothers me was what the doctor told me that, as of now, in my age, hopefully my curve would not get worse, but as I grow old, it can possibly start again to worsen because as I age, my bones will become weak. I just hope adult scoliosis doctors will be introduced here in the Philippines or the ASCO treatment will finally be introduced here in our country. If anyone had a way to reach out my message to ASCO therapist, please do. I know many will benefit in their therapy if they can really treat scolio.

anna
05-11-2004, 04:15 AM
Not quite, except when I do some household chores but I still can manage. What bothers me is what the doctor told me that as of now, hopefully my curve will not get worse, but as I age, my bones will get weak and that could worsen my condition. I'm really depressed because what will happen when I get old? How can I move? I just hope advance techniques will be introduced here in the Philippines. And if ASCO Therapy will work for you, I hope that you can talk to them to introduce their kind of treatment here in the Philippines. Thank you and I hope to hear from you soon. I wish your scoliosis will be treated w/out having surgery.

anna
05-11-2004, 04:21 AM
Not quite, except when I do some household chores but I still can manage. What bothers me is what the doctor told me that as of now, hopefully my curve will not get worse, but as I age, my bones will get weak and that could worsen my condition. I'm really depressed because what will happen when I get old? How can I move? I just hope advance techniques will be introduced here in the Philippines. And if ASCO Therapy will work for you, I hope that you can talk to them to introduce their kind of treatment here in the Philippines. Thank you and I hope to hear from you soon. I wish your scoliosis will be treated w/out having surgery.

jennyc
05-11-2004, 10:58 AM
I had 2 surgeries this year, the first one in January, the second one in March, at the age of 31. I was out of work for 6 weeks after the first surgery and 4 weeks after the second surgery. It was tough, but I have no regrets. I would be happy to discuss my experience in greater detail. Feel free to e-mail.

Karen Ocker
05-11-2004, 02:27 PM
Anna:
Send me an e-mail.
Karen

OneofFive1
05-11-2004, 04:22 PM
anna,
I'm not sure if they are ever going to open an ASCO center in Philippines, but they have a few in diffrent states. It says on the website where they are.

claire
09-15-2005, 05:32 AM
hi anna! i'm claire from the phiippines. i'm 24 years old and i also have scoliosis since i was a teenager. Now, the curve at my back got worse. please inform me if you have an update regarding latest treatment procedures in the phils. I really have a hard time dealing with this. I would really appreciate your response.

trinainmanila
07-04-2006, 06:58 AM
...you can have scoliosis surgery here in the Philippines, without you having to rob a bank to get treatment abroad. There's an orthopedic surgeon at the Philippine General Hospital, Dr. Rafael Bundoc, who has made it his life's work to "Filipinize" scoliosis surgery. As we all know, modern scoliosis surgery had been developed in Western countries with mostly Caucasian patients. Dr. Bundoc devised techniques and technology more adapted to the smaller frame of the Filipino and undertaken right here on our soil--cutting not only physical pain and discomfort and recuperation time, but also costs. No need to doubt his capabilities--he belongs to the teaching staff of the University of the Philippines' College of Medicine, has been trained in five prestigious universities in two continents, and has won many awards, the Ten Outstanding Young Men award included, for his contribution to the science of orthopedics. Contact or visit the PGH for his clinic hours.

trinainmanila
07-04-2006, 07:39 AM
I started with about 17 degrees when I was in my young teens. I wore a Milwaukee brace in high school and through my first two years in college. Strangers, meaning to be kind, asked me if I had an accident or needed help all the time, and kids approached me to ask if I was a robot, but I never had any negative experiences wearing a brace. Aside from the musty smell and the extreme discomfort, of course. (It also helped that in my high school, four girls were wearing spinal braces at the time so I wasn't an oddity.) However, my brace wasn't a good fit and I cheated a lot (not wearing it 23 hours a day) so by the time I graduated from college my scoliosis had worsened. At 25 years old, when I was one month pregnant, it was 45 degrees. At 30 years old (right now), I fear I have developed a complication, cervical kyphosis.

My uncle, a doctor in the USA, wanted to bring me back to his hospital for surgery when we first found out I had scoliosis, but since I only had a "slight" curvature and we weren't exactly swimming in money, I stayed in the Philippines for treatment. My brace was constructed at the Philippine Orthopedic Center way back in the early 1990s, so I can only speak of that decade and my own personal experience. Let me just say that I didn't have a good experience there. I felt that the doctors were either dismissive or disinterested, and there was no clear follow-up program like the ones I see in other hospitals in the internet. To be fair, I've also more recently consulted other "famous" orthopedists in expensive private hospitals in Manila who were also dismissive and said that I had only "moderate" scoliosis and that I could drink Biogesic for the pain, end of consultation, so I'm not going to cast a negative blanket statement over the Philippine Orthopedic.

However, in retrospect, and I say this now to help young and adult scoliosis patients to save them the pain when they're older:
(1) I should have gotten second and third opinions on my case from different doctors in different hospitals.
(2) I should have researched more on orthoses (appliance) options.
(3) I SHOULD HAVE WORN MY BRACE AS INSTRUCTED.
(4) I should have persisted in finding an orthopedic specialist who would not isntantly tell me without the benefit of thorough examination that my chronic lower back pain and the clicking sounds on my neck were "nothing out of the ordinary."
(5) I should have persisted in finding orthopedic specialists who would not tell me to "Just stand up straight and maintain proper posture." (Look, I really wish I could do that, but if I did, I couldn't breathe well and my whole rib cage hurts, okay!)