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girls1706
01-24-2007, 09:42 PM
Hello all:
I just became a member of this forum and it's been quite interesting. I had Scoliosis surgery in 1978 at the age of 13 at Columbia Presbyterian Medical Center in NYC. My surgeon was Dr. Hugo A. Keim. I don't remember at all the degrees of my curvature or which type was it. I do however remember being in the hospital for 3 weeks and wearing a body cast for 9 months. I had the fusion done and have the Harrington rod also. My first pregnancy gave me a lot of pain in my back but my second was great. Had vaginal birth with NO EPIDURAL (OUCH). Both my daughters have Scoliosis as well but very very minimal. No treatment needed so far, but I do take them for follow-up every six months. Lately I have been expiriencing the worse pain ever on my lower back as well as painful left side of my neck and my left arm goes numb or cramps daily, not to mention a stiff neck that lasted 2 weeks. I had an MRI done, but the closest appt that I can get for an orthopedic surgeon is in mid Feb., but the lower lumbar MRI is all blurry due to the rod. Anyway, about 17 years ago the bottom part of my rod came loose and my doctor told me that if I wanted I could remove "the hardware". I was afraid of doing and now I was wondering if all this discomfort and pain was due to that. I have 2 appts in Feb., one with an orthopedic surgeon and one with a neurologist, but in the meantime I am going crazy will all kinds of thought about this. HELP

macky
01-24-2007, 10:08 PM
Oh dear, girls1706 I know where you are coming from exactly. I am so very pleased that you have joined the forum as I know from all the support and information, and friends I have made, it has really been a godsend.

Wish I could help, it is so hard isnt it because you know the bottom part of your rod is loose. I will pray for you, I bet you wish you could have got an earlier appointment. Could your ring your normal doctor maybe and explain that you are so very worried and in pain and could he ring the specialist and try to get you in a bit earlier. They do that over here, and it does help.

God bless,Macky

girls1706
01-25-2007, 07:57 AM
My original doctor has already retired. All I know is that he's somewhere in Tampa now and doing other things but being a surgeon.

always smilin'
01-27-2007, 07:59 PM
Welcome! I had surgery in 1982...this past year was my first year of extreme pain...lower back and radiating down my neck and right side! I went to chiropractors (not the right thing to do I later found out)...luckily the chiro referred me back to my physician...to make a long story shorter...I had a full body x-ray done and found that the scoliosis has progressed unbelievably (with the rod) and have herniated discs both above the fusion(causing arm and neck pain) and below the fusion. I also waited months for appointments...but there really is not much the docs can do until I consent and brave another surgery.

Hope your results are better than mine:)
But still ALWAYS SMILIN'

Karen Ocker
01-28-2007, 04:45 PM
I worked with Dr. Keim in the 70's at CPMC. At the time, Harrington rods were the state of the art. Unfortunately they made, the spine too straight from the side (saggital plane); this meant the normal lordosis was lost allowing for excessive wear and tear in the lumbar area resulting in "flat-back syndrome".

There is relief for this. Don't waste time seeing a regular otho. An adult scoliosis specialist, who has experience with prior fusions/instrumentations, can help best.

There is info dedicated to such problems:

http://www.scoliosislinks.com/FlatbackontheInternet.htm

girls1706
01-31-2007, 09:28 AM
Thanks for the information...
:)

girls1706
01-31-2007, 09:30 AM
Isthe solution to the problem? It sounds like we have the same problem, but mine is on the left side.

MDsinger
01-21-2008, 04:20 PM
Hi, new to this also, I had my surgery in 1975 at Vanderbilt in Nashville TN. I was 15 at the time. I was at 72 degress and now I'm at 32. I didnt have any problems other then the usual pains. But now that I'm getting older my hip is just killing me, it has for 3 months now. the doctor has said they might try needle therapy, does anyone know what that is?

LindaRacine
01-22-2008, 10:41 PM
Hi...

There are all types of injections. You can read about many of them here:

http://neckpatient.com/education/basics_dt_ssep.htm

If you haven't already, I'd highly recommend that you find a doctor who has a lot of experience in treating patients with old scoliosis fusions. You'll find a lot of people in similar situations on this forum:

http://health.groups.yahoo.com/group/Flatback_Revised/

They can lead you to the right specialist if you haven't found him/her yet.

Regards,
Linda

LindaRacine
02-10-2008, 09:58 PM
Hi Cameo...

And welcome.

It sounds like you may not be seeing the right doctors. Where do you live?

Regards,
Linda