Hi my name is Lori and I am the mother of soon to be six year old twin girls. We live in Virginia - and Anna one of my twins has Prader Willi Syndrome of which one side effect is severe scoliosis - she wore a boston brace for three years off and on - her size due to her Prader Willi made it very difficult - anyway her curve is now at 65 degrees and her doctor wants to do VEPTR surgery - has anyone done this? I am very nervous and have done a lot of research and it makes sense but seems scarey and I know it is relatively new.
Any thoughts or advice would be appreciated.
Lori Guthrie
Any thoughts or advice would be appreciated.
Lori Guthrie
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