summer camp...

[chic xx chic]

if there a summer camp for kids with scoliosis / a brace???
my friend who has diebeties goes to a camp for that and
i thought there should be like a back brace camp too !!!
like an indoor thing because it gets REALLY hot in the brace.
they better create one or i`ll do it myself. =] =] =]

[Scoliosis_Gal]

OMG I think that is such a good idea! They could have some sooper coolio stuff to do that wouldnt be hard for people in a brace, or that have a bad back. They should offer massages, LMAO! :rolleyes: Totally daydreaming now.
I would hecka help out with that! it would be OOBER cool :cool:
There are so many people that have scoliosis, but like none of them live in Cali. Seams like everyone who actually posts stuff on this site is from the east coast and the middle of the US. Poor me, I'm over here all alone :(

[chic xx chic]

i know! haha when i did physical therapy a HOTTTT guy gave me mausauges. :rolleyes: he was MARRIED. :mad: ughh. and i am on the east coast but your not alone. =] i feel like im alone at times too. =]

[Divagirl13]

omg that would totally be a good idea b/c i really was thinking about going 2 summer camp this summer but i no i cant cuz i have my brace and i figured that I wouldnt b able 2 do anything we did. someone should start that.

[Scoliosis_Gal]

If i were you, i would totally go to summer camp anyways and 'accidentally' leave my brace behind...oops!!! I did that one time...I went to my cousins wedding and i wasnt wearing my brace so that i could dance and stuff. I knew that i would end up going to my aunt's house, because that always happens. I just acted like i didnt think it would happen...and i got to go! i had to wear my cousin's clothes though, and she is 2 years younger than me so i had to wear sweats so that they would fit!
I totally want a summer camp now, even though i wont have my brace much longer...Yay!

[chic xx chic]

oopsies. haha. my parents would like makesure i had it on. they sometimes watch me like a HAWK with that thing. =p

SOMEONE START A BRACE CAMP PEAS?

[Scoliosis_Gal]

My mom has been way less strict about me wearing a brace b/c i had this REALLY bad breakdown. Dont remember why though. It had something to do with being left out of something, like a party, b/c i had to wear my brace and couldnt do something. I dont remember...it was this summer. Or maybe i had a breakdown b/c of the UNBEARABLE heat. It was probably both! i had a lot of breakdowns....its not good. It sucks
We should do a search for brace camps, or even scoliosis camps, that way i can go too :].
Have you seen pics for the Spinecor brace? I did research on it and it looks WAY better. Its just a bunch of straps! It looks hard to put on though. Google search Spinecor brace for scoliosis under images...its freekin awesome!

[The Slice]

Hey guys, I di a search for scoli camps when this thread first started, and sorry to say that it didn't look hopeful. So far as not having the brace on for all of the time set by your doctor, being out of the brace for a couple/few extra hours on a given day, and have it happen only oce in a while, probably won't hurt you too much. But going for many days to a week (or more) could potentially lead to problems. For one, if you do that often, you'll start kidding yourself that you're okay without it and get more and more lax about wearing it. There have been many, many stories of kids who have not work their brace as they should have and then ended up having surgery. Although wearing a brace is no guarantee that you'll avoid surgery, it will certainly increase the odds, especially if the curve was caught early. Try looking at things this way, instead of thinking about what you supposedly can't do in a brace, be thinking in terms of how to do the same thing, only differently. Yes, there are some things that you will be told specifically not to do in the brace, and you should follow those guidelines. But aside from those things, everything else may be harder at first, but once you figure out how to do it, and get used to it, things will get better. Remember that alot of things that are new to you are tough to do at first, but not after you've had the time to work it out. So far as having the brace off for days at a time, the other thing is that you just have to get yourself used to it again when you start putting it back on. If you are having problems adjusting, and you're fairly sure that not jus impatience, see if you can get a referal to a/your physical therapist form your doctor to get more advice. I suspect that the reason why there are no camps specifically for kids with scoliosis, is that there are not the special needs that are associated with physical challenges, obesity, diabetes, asthma, etc. In short, having a brace is an inconvenience/annoyance that may create certain challenges, but you should still be as average as most other healthy kids, who don't have to deal with diets, or medications, or need a camp that is adapted for the physically challenged. Here's an idea for you. It's not a camp, but see if you can find other kids in your community, or nearby communities that you can get together with (be sure to work with your parents on this). The key here is to be with other kids and share common experiences and there are other ways to do that other than a special camp. In some ways you are doing some of that here on the website (yeah, I know it's not the same as actually getting together). I want to stress to you the importance of getting your parents involved for your safety. They don't necessarily have to be around all the time, but you want them to help make sure that you don't get lured into a bad/dangerous situation. One thing you might do is talk to your doctor, or orthopod to see if they can help you get in touch with other families. It might be a good idea to see if you can get someone to sponsor a group, like a church, a local hospital or something like that. Sorry that this is so long.

[CurvySAT05]

Just wanted to pop in and say that Molly, you are not alone...I am from the LA area. Cali rocks!!! There are a few of us from the West coast, but not many.
Mandy

[chic xx chic]

heyy! good idea but no one around here has it really. i asked the nurse that works at both schools and she said the people that have it [ besides me ] dont have a brace anymore. =/

[Scoliosis_Gal]

most of the people in my area dont have a brace, but there are a few that have scoliosis. I just dont think there is a big enough group to start something out here. I think it would be really cool if we could have a camp. but it is something that would be REALLY hard to get started, especially with the fact that everyone is spread around the WORLD. So yeah, that may be potentially problematic... :eek:

[lil cutie]

most of the people in my area dont have a brace, but there are a few that have scoliosis. I just dont think there is a big enough group to start something out here. I think it would be really cool if we could have a camp. but it is something that would be REALLY hard to get started, especially with the fact that everyone is spread around the WORLD. So yeah, that may be potentially problematic... :eek:

yea they should totally start a scoliosis camp! they have cancer camps and stuff wat about us scoliosis people?! i feel left out too! :( i live in Sheboygan,Wisconsin! it's cold here but then again it's good for me sometimes cuz i get hot in the brace! he he he! :D

[scoliosisat12]

omg that is a good idea about the camp i'll help you with it heather talk to ya later :)

[chic xx chic]

ahaha. we need to have one. =) if theres a foundation, there should be a camp. xD

[Divagirl13]

okay do u guys think i should send a message 2 the president of the site and suggest the camp? do u think he could do anything about it?

[chic xx chic]

hha i like the lightbulb.

i dont know. the sky`s the limit. they should start somehting for us.

it ashmames me about how we suffer every summer and day.

also i dont know anyone that i goes through what i do...

im lucky to have you guys. =)

so yeah you should.

[Divagirl13]

kk thx i will then.

[~ScoliosisGirl~]

I think that is an awesome idea to start a camp for scoli kids..but i think a sleepaway camp is better... because there are not too many people in the same area. I'm guessing that one day a person will start a sleepaway camp for that but im guessing it will be very hard because there are many kids that will want to come to it from all over the world and not everyone will have the same brace/ the same therapy and it will be hard because the owner will need to find many kinds of physical therapists. I know.. its soo annoying how we, people with braces can't do alot for summer.. My summer just started and when i go outside for 10 mins i already get sweaty and have to change an under shirt. I really wish there was a scoli people camp.. so we can share experiences and to therapy together and get to know other people that can help you out!! IF YOU HEAR OR THINK ABOUT CREATING A CAMP LIKE THAT .. LET US KNOW.. LOL

[~ScoliosisGirl~]

and yes Divagirl13.. i do think its a good idea..!! go for it!

[Allegra]

:) wow you guys this is a really good idea

i think we would need doctors that could come up with fun stuff to do and then we could have back massages each night and do spa stuff. oh and yoga and meditation.
maybe like a fashion thing, too, so we could experiment with lots of styles that would work with braces. i know it would be totally cool :cool:

[chic xx chic]

fashion scolio camp? im THERE. and we need a camp. theres cancer camps, diabetic ones, why not scoliosis?

[~ScoliosisGirl~]

fashion scolio camp? im THERE. and we need a camp. theres cancer camps, diabetic ones, why not scoliosis?

ya.. thats true.. but by the time someone decides to open one, we will all be done with our braces... lol. :) . its not very easy to open a camp like that.. there is a lot of work to it:rolleyes:

[chic xx chic]

yeah truee.

[Allegra]

hmm i guess it would be a lot of work.
the best location would be somewhere cold so we dont get all sweaty..
Alaska maybe?
haha jkjk
i have no idea why ppl didnt think of this earlier.
fashion camp would be the coolest.

[chic xx chic]

ahaha alaskaa. i should move there.

and i thought of it because my friend is going to a diabetic camp this summer and i was like... what about scolio? i mean.. we cant even go outside in the summer. =/

[~ScoliosisGirl~]

ohh ya.. i didnt think of it.. we do need to have the camp somewhere where it is not very hott.. and not alaska.. lol.. it is wayyyy to far :(.. and yes.. it is sooooo very hot we cant even go outside.. im in barcelona right now and it is boiling hot and its night!!! helppppp!!!.. lol :)

[Allegra]

ohh im sorry it's so hot!
does barcelona look anything like it does in that cheetah girls movie? hahaha

[chic xx chic]

I LOVE THAT MOVIEE.

amgias ;; cheetahs ;; friends for lifeeee. =D

[Allegra]

ahahahaha oh yeahh

and disneys coming out with that high school musical 2 movie now
cant wait =]

this stuff really takes my mind off my back :)

[~ScoliosisGirl~]

today i went to see park guell.. where some of the movie was shoot, and it was amazing, and amazingly hott!!! I took a lot of pics.. lol.. but i couldnt be there for a really long time because of the heat.. but what i did at least. so i can last for those 3 hours was i bought an icee thingy.. Its the best thing to have when you are sweaty and hot inside!! consider trying it next time you are boiling hot.. especially now in the summer.. lol :p :)

[chic xx chic]

i can`t wait until hsm2.. although i know what happens. :]

spoliers? aha whoops.

[Divagirl13]

Okay, everyone, listen up!!! I emailed the head of the site and he said they have been trying to open a camp for a while. He said everyone interested in a camp should email him so he could see who was interested. I am going to make a new post so that everyone can see. YAY!!!

[~ScoliosisGirl~]

omg! r u serious?? im sooo happy!! thats soooo cool! good job!! do u mind forwarding the email to me?? (rotem@myscoliosisstory.com) so i will know base on what he replied to answer?

[Divagirl13]

yep no problem

[~ScoliosisGirl~]

thank you soo much!! i will reply to him as well and i will encourage more people to do that!! you are really great!! :)

[chic xx chic]

do the same for me!

polopopiinprepxx@yahoo.com

[Allegra]

can u send it to me please?

luckyduck141@hotmail.com

[Scoliat11]

I thik it will be cool!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!: )
:D
:cool:

[llg1419]

can u send it 2 me

dadyzbaby75@hotmail.com