It's been awhile since I have posted and I feel a little embarrassed to come back needing input. My surgery was 2 years ago and I am back to the crippling pain I had before the surgery: however, 1 reason I've been lax at keeping up with the forum is I was diagnosed with Primary Progressive Multiple Sclerosis 1 year ago. Therefore, just as I thought my life was coming back together ~ life through me another curve. I am partly convinced that I am in a partial state of denial, but the one thing that is certain is the debilitating pain. My surgeon tried cortisone injections above my fusion (T-10 thru S-1). It didn't provide me any relief. I have been through the gamut of anti-seizure meds (which they use for MS pain as well) with horrible side affects. Neurontin, Tegretol, Cymbalta, Lyrica, etc. etc. etc. So, now it's back to the Percoset which is again the only thing that provides any relief. I'm due back to see the neurologist in 2 weeks, but the neuro guys are nearly totally resistant to using the opiates for pain. I get 'you know they are so addicting'. Yes! I realize that, I took them as long as I had pain post-op and that was that. I tell them I am also addicted to being able to live a life that includes functioning beyond getting out of bed, eating breakfast and heading for the recliner to vegetate because if I don't the pain is unbearable. The pain starts directly above my fusion and spreads throughout from there. I was pain free in the morning when I got up until a month ago, now it's 24-7. Any advice or suggestions?
Good to be back, but wish it were under different circumstances.
Always fondly,
Gayle
Good to be back, but wish it were under different circumstances.
Always fondly,
Gayle
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