PDA

View Full Version : Scoliosis & Women



SpringLilly
10-08-2006, 02:15 PM
I heard an interesting theory the other day, and thought I would throw this out there for all of us post-puberty women who were diagnosed with idiopathic scoliosis...

I was told by another nurse that someone is doing a study on women who were diagnosed with scoliosis after puberty. It seems like there is some connection between when we started our period and eventual diagnosis. I am not sure if I buy this or not, but there may be a connection. According to the study (damn! I don't even know who is doing it, and she couldn't remember!!), women who started their periods when they were older were more likely to develop spinal curves.

Personally, I did not start my period until I was 16. This person that I was talking to was almost 16 when she started. That is kind of freaky. I was just wondering about anyone else on this board, and whether or not you would be willing to share this information.

Thanks!
Mary :confused:

Snoopy
10-08-2006, 03:43 PM
My daughter started her period when she was 11 1/2 y.o. and was diagnosed with Kyphosis and Scoliosis four days after her 12th birthday.

Mary Lou

berta@aloha.net
10-08-2006, 04:01 PM
My sister and I both have scoliosis, but mine was worse in our teens, and now in our 50's, mine has progressed a lot and hers has not. I started my period at 12 1/2 and she was 15 at least, so in our case, that theroy does not work! But you never know, we could be that exception.

SandyC
10-08-2006, 04:28 PM
Sorry, but I started at age 13, 1 year after diagnosis, my sister the same.

Cakedec
10-09-2006, 03:22 PM
I didn't start until 14; my mother was so worried she took me to the dr. to find out why but he said just wait.

Deb
posterior surgery 7/24/07
for S curve T70,L76

JamieAnn
10-09-2006, 03:34 PM
Interesting! I started mine late too, 15! But isn't there also some "connection" between thin women and scoliosis? I was very very skinny as a child and teenager - just never really kept weight on until I hit 16 or 17. Who knows, but interesting to hear connections like that.. :p

Jacque's Mom
10-09-2006, 03:58 PM
I do know that it's better (as far as your curvature) if you get your period early as it has something to do with your growth plate. My daughter was not quite ten when she started her period and was diagnosed with scoliosis a year or so later. I, on the other hand, was diagnosed with scoliosis about 12 years old and didn't get my period until 14 or so. My daughter is fine, never braced and is almost 20 years old. I always in pain and by the age of 26 had the surgery in 1981. So in our case, it's true. LYNN

Gail
10-09-2006, 08:03 PM
I was 16 years old.

rainbow2010
10-13-2006, 07:01 PM
My daughter and I both started around 12. Both of us weighed around 120 and 5'4". My other daughter started at the same age and was very thin. Under 100 until about 15 and 5"8" and she does not have scoliosis! I think it is inherited more than weight or onset of puberty.

SpringLilly
10-18-2006, 06:24 AM
The odd thing about inheritence is that I am the first one diagnosed in the family with scoliosis, and believe me, after my diagnosis, both my sisters and my nieces got checked as well. However, mine didn't manifest itself until after I hit 30 either. At the time of my diagnosis, I was very thin, and had been for several years, but going through childhood and puberty, I was pretty chubby. Still, no signs of the scoliosis when I was deemed a "butterball" during regular check-ups. In fact, I was slender when I entered nursing school at 18 and had to have a complete physical then-with no signs. Hmmm....guess that is why they call it idiopathic. :D

rainbow2010
10-18-2006, 06:38 AM
I was the first in my family also. After my surgery when my sisters were in town, they were checked and found to have minor curves. Neither of my parents have it. We think my paternal grandmother had it because of difficulties during her delivery of my father. Because of the problems, he was an only child. We will never know if she had scoliosis because from her early teen years to the day she died, she wore a corset as did all of her sisters.

Karen Ocker
10-19-2006, 06:11 PM
We think my paternal grandmother had it because of difficulties during her delivery of my father. Because of the problems, he was an only child. We will never know if she had scoliosis because from her early teen years to the day she died, she wore a corset as did all of her sisters
Rainbow2010

I actually did a thorough medical literature search in the National Library of Medicine for an obstetrician I work for regarding scoliosis and delivery.
There was absolutely no connection between scoliosis and a difficult delivery. Theoretically, if a mother's scoliosis was so severe that she had breathing issues, then that would impact labor necessitating a c/section.

Regarding epidurals: if there is space below the fusion successful spinals and epidurals have been performed. If the lumbar curve is significant then the anesthetic drug might not spread correctly resulting in a less satisfactory anesthetic.

Regarding corsets: people(grandparents' generation) wore corsets for fashoin not necessarily for scoliosis.

RoundTheTwist
10-25-2006, 07:09 PM
I just found this post, it is of great interest to me as I have always had a kind of theory about puberty and AIS.

I was 15 1/2 years old before I had my first period, but my Scoli was found when I was 13. I am also the only or first person in my whole family to have Scoli, although I did notice a curve in my 9 year old daughters back which is going to be followed up in due course.

Speaking to my Mum the other day, after all the times we have spoken about all manner of things, for the first time she told me that she has a twisted pelvis and that is why she had to have c-sections with both me and my brother. For years, even when I was having my own kids she always said she had to have c-sections because she was so tiny (5' tall and a size 5 (UK size) shoe) and there is a relationship between shoe size and the size of your pelvis and your ability to give birth naturally apparently.
The whole twisted pelvis thing has shed a whole new light on my Scoli and my little (probably rubbish) theories, its opened me to so many questions, especially about my family but my Mum is so vague its frustrating at times.

Kat

HAnn521
11-17-2006, 04:18 PM
Interesting! I started mine late too, 15! But isn't there also some "connection" between thin women and scoliosis? I was very very skinny as a child and teenager - just never really kept weight on until I hit 16 or 17. Who knows, but interesting to hear connections like that.. :p

I was 15 also...which I guess is considered to be a late bloomer... But I was diagnosed at 13.
JamieAnn, I was ALSO told that my light weight may have had something to do with the progression of my condition as well. And I was so skinny, yet had long arms and legs, that they also screened me for Marphans....but I did not have it.

amae28
11-17-2006, 06:13 PM
I started my period at 16 (sophmore), much later than my older sister, who started hers in 5th grade. I was diagnosed when i was 14, and at the time I was about 5'11'' and 125 pounds (very lanky). I have since gotten a little taller and filled out because I lifted weights for basketball all throughout high school.

abbie

rainbow2010
11-21-2006, 08:45 AM
"I actually did a thorough medical literature search in the National Library of Medicine for an obstetrician I work for regarding scoliosis and delivery.
There was absolutely no connection between scoliosis and a difficult delivery. Theoretically, if a mother's scoliosis was so severe that she had breathing issues, then that would impact labor necessitating a c/section.

Regarding epidurals: if there is space below the fusion successful spinals and epidurals have been performed. If the lumbar curve is significant then the anesthetic drug might not spread correctly resulting in a less satisfactory anesthetic.

Regarding corsets: people(grandparents' generation) wore corsets for fashoin not necessarily for scoliosis."

Karen -
One sign of scoliosis is uneven pelvic bone (I've been trained to screen for scoliosis). This can cause problems during delivery. As for an epidural - I was unable to have one because of the way my fusion was done. They shaved off the bumps and fused the bone over that. An xray had to be taken because of the position my daughter was in and the doctor tried to give me one, but couldn't find the space because of the bone and my rod (he checked the xray also). It had also been about 15 years after my fusion when I had my children. About corsets...yes, they were worn for fashion. My grandmother started around age 11 and wore hers for the rest of her life. They contained whale bone stays and some had metal stays. These acted like a brace in that her body could only grow in the shape of her corset. She only took hers off to bathe.

Megan_aust
11-23-2006, 06:47 AM
I was 14 when I started my period and diagnosed with scoliosis age 12. I have noticed in a few scoliosis studies that the researchers had noted that it was a 'coincidence' that women with scoliosis had a lower body mass index (meaning that they were skinnier) than the average woman. Personally, I think that the short stature and slim build are part of a genetic makeup that is associated with vulnerability to scoliosis.

sweetness514
11-24-2006, 03:07 PM
I was diagnosed at 12 and had my period at 14 and a half(almost 15). I was very skinny, and my bones were very small, even when I was 20 I was told that my bones were of a 12 year old. Didn't gain weight until surgery at 26.

ashleym8118
12-07-2006, 10:13 PM
I had my first period when I was 14, almost 15, and was actually surprised because my bones are very small and I have always been underweight (but healthy). I've heard before about the correlation between smaller built women and scoliosis, and have noticed that many people I know who have even mild scoliosis are smaller.

hypobellum
01-29-2007, 07:39 PM
I got diagnosed when I was 14 or so, and didn't get my 1st period till I was 15. After the first period, I didn't have another period until AFTER surgery(about 7 months later). Right after surgery, I got my period and ever since it's been regular. That's interesting.

macky
01-31-2007, 01:42 AM
I too, did not start my period until after surgery, I was 16 at the time. I was also of very slight build. Funnily enough I wore one of those whale bone corsets for 6 months, as part of my treatment for scoliosis, after I had the operation.

Macky

ecnw
02-02-2007, 05:13 PM
I think that until there's an actual gene linking scoliosis, many
"theories" will be floating about. In my family it seemed to skip a few generations, I had it, then passed it right on to my kids, a girl and a boy. We are all of different body mass, so I don't buy into that having anything to do with it.
When it comes to child birth, as long as the doctor's aware, everything should go fine. I even delivered my daughter breech.
Emily

sparks42
08-26-2007, 01:28 PM
oh you lucky lucky people.....
i have scoliosis.....but i started menstruating when I was only 9 !!!!!

curvycakes
07-04-2008, 12:16 AM
I was diagnosed with very mild scoliosis sometime during the 5th grade...so I would have been about 10 years old. I started my period two years after that and the scoliosis worsened.
I've heard a lot of things about menstrual cycles/scoliosis though! I've noticed that during the week of my period, my rib hump is more noticeable. Kind of weird but interesting at the same time.

Danihenson
07-04-2008, 02:04 PM
:)
I had my first monthly on my 13th birthday. I began to develop scoliosis when I was 25 ( I wasnt told about it until this last Feburary 2008). I am now 28yrs old. I have no family history of Scoliosis. So far my doctors cannot find a cause.
:)
Yours,
Dani

txmarinemom
07-04-2008, 11:40 PM
I've noticed that during the week of my period, my rib hump is more noticeable. Kind of weird but interesting at the same time.

There's really no medical explanation for this unless you're just more tired during menses and your posture is more lax. When posture is poor, your rib hump will most likely become more obvious.

Progesterone (the hormone that makes the body more loose during pregnancy - a contributing factor to why some curves progress during pregnancy) levels are at their lowest during menstruation, so there's not a hormone connection I can ascertain.

Regards,
Pam

txmarinemom
07-04-2008, 11:58 PM
I actually did a thorough medical literature search in the National Library of Medicine for an obstetrician I work for regarding scoliosis and delivery. There was absolutely no connection between scoliosis and a difficult delivery. Theoretically, if a mother's scoliosis was so severe that she had breathing issues, then that would impact labor necessitating a c/section.

I had my first child in 2-1/2 hours (the only thing that slowed him down is he was "sunny side up" ... head down, but face up). I dilated from 3-8 cm in 15 minutes and stopped for a short while (maybe 30-45 minutes) only because of his position. Once he turned, I swear you could have heard the *THUNK* as he dropped, and was out in 3 pushes.

My daughter (born 22 months later) was scheduled. After my son, I seriously feared sneezing her out - or giving birth on the side of the freeway. An epidural slowed my labor down with her (hah!) to 3-1/2 hours.

My curve with both deliveries was what it was when I had surgery ... about 53.

BTW, I was dx at age 10 with JIS (it was termed plain ol' AIS in 1979 - LOL), and started my period at age 14. I am very small boned.

My almost 19 year old daughter, however, was diagnosed with a mild lumbar curve at about age 13, at least 4 years after she started her period at age 9 (and trust me ... I was looking). She is NOT small boned.

Regards,
Pam

SIsForSarah
07-05-2008, 09:19 AM
I wasn't diagnosed with scoliosis until I was 14 - three months before my surgery! No one ever checked me for it until I had back pain and when they finally x-rayed me, the curve was at 47 degrees. I hadn't gotten my period yet - in fact, one of the reasons the doctor decided to send me for an x-ray, was because I hadn't gotten my period yet (she felt that late menses and scoliosis were connected). It was also one of the reasons they scheduled me for surgery so quickly. I ended up getting my first period 4 months after surgery. This was in 1990, so all these views on scoliosis may be outdated. I am also small-boned and thin and based on studies they were doing on scoliosis back then (on ballerinas and gymnasts) this was considered the typical body type for scoliosis. Again, I do realize these are outdated views on scoliosis, but this is what I was told at the time.

debbei
07-07-2008, 09:42 AM
I was 14.5 yrs old when I got my period, and one month later was diagnosed. Although, when first diagnosed my double curve was in the high 30's and the other cuve in the low 40's. So I probably had it for quite some time. :(

Eleanor :)
08-27-2008, 08:41 PM
I started my period when I was 13, and I was diagnosed with Scoliosis at age 15. :)

augemac
09-20-2008, 11:38 PM
I was diagnosed when I was 5!! I went for my routine physical and my primary Dr. detected a heart murmur. They then sent me to a specialist in Denver and my heart was okay but they found I had scoliosis!

I was very thin growing up and I started by period shortly after my first surgery. I was 15!

lauriek
12-08-2008, 07:47 PM
i was very late - about 18. also went thru a few month time span around 14 when i verged on anorexia. not small-boned or naturally thin, but short and slender during adolescence.

while we're throwing observations out there --- i was also extremely flexible - could do a backbend and grab my ankles and become a human wheel. could also easily kick the back of my head with my foot. i'm wondering if anyone's heard of a connection between extreme flexibility and tendency towards scoliosis.

laurieg6
12-08-2008, 08:09 PM
If anything, my son's experience is the opposite regarding scoliosis and flexibility. His physical therapist told us that Alexander is the 2nd least flexible person he's ever met. He stretches every night now and it's gotten a little better.