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anyone have or had pain like this before surgery?

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  • anyone have or had pain like this before surgery?

    for the past week ive had pain in my lower back around my tailbone,dr said just to watch it and see if it got better.well now for the last three days now i have pain in my left leg including left hip when i go to standing position and tighting feeling in bottom of left leg when sitting.when i go from laying down to sitting up i feel a burning feeling and pain in my tailbone that radiates to my hip.i go tomorrow for testing and bloodwork to see what it could be since it hurts to lift my leg up when sitting and i cant put much pressure on my left leg when walking without being in extreme pain.just wondering what the bloodtests would be for? i some have said thery have experienced tailbone pain but im also concerned with the leg pain.anyone had this at all? trudy,
    Trudy T60 L70 posterior surgery feb.8th 2007

  • #2
    Trudy,

    This sounds like how my pain started. My tailbone pain started about 8 mths after my 2nd surgery. It was so excruating pain that it felt like someone was stabbing me in my tailbone and would bring me to the ground. I went in for testing after testing and they could never find out what it was. Then it stopped from the tailbone and developed into buttock and leg pain on the right side then radiated to the left side too. This has been like this over the course of the last 6 years.
    Im not sure if this is what is happening to you. I know the tests that they did was a CT-milogram scan immedialty and xrays and a mri.
    I hope you can figure out what it is that is causing this pain. I just had surgery 3 weeks ago for fusion of L4 to the sacrum. I am hoping this is what mine is and relieves my pain.
    Sarah 25 yrs old- Married with three english bulldogs

    1995-Surgery for scoliosis fused T3-L3.
    2000-Surgery for Rod breaking, relaced rod and took out upper rods.
    March 2005-Surgery for removal of all rods.
    August 2005-Fusion of T10-T11 due to crack in fusion, Rods put back in.
    August 2006- Surgery for fusion from L4 to sacrum.

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    • #3
      well i know that the last disk is bad so im thinking because i need to be fused down all the way that it could be my pain.ill find out tomorrow.
      Trudy T60 L70 posterior surgery feb.8th 2007

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      • #4
        I have pain like that a lot. It feels like someone has an icepick at the bottom of my spine. My surgery is in two days and I am majorly stressin.
        surgery 9/06
        Rothman institute

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        • #5
          Gayle,

          That is what I would think it would be. I needed to be fused all the way down and did do it. Even though nothing showed up on any of the scans or xrays or any tests that was my dr's thought. so i went through with it and we will see how it turns out. Are you planning on having the fusion continued down?
          Sarah 25 yrs old- Married with three english bulldogs

          1995-Surgery for scoliosis fused T3-L3.
          2000-Surgery for Rod breaking, relaced rod and took out upper rods.
          March 2005-Surgery for removal of all rods.
          August 2005-Fusion of T10-T11 due to crack in fusion, Rods put back in.
          August 2006- Surgery for fusion from L4 to sacrum.

          Comment


          • #6
            well i will find out tomorrow if they will fuse down to the sacrum but more than likely yes because they already told me the last disk at the bottom of my spine is bad.so they will explain tomorrow the results of all the tests i had done and what they plan on doing.he is going to run more test tomorrow and take blood work so not sure what kind of stuff that will be.Dawney good luck on your surgery on the 6th.
            Trudy T60 L70 posterior surgery feb.8th 2007

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            • #7
              I have had experienced this type of pain, but after surgery(last year mostly). Now that I sit and stand better, and also don't twist and bend too much it's much much better. I'm not fused to sacrum, and probably the fusion puts pressure on it. I can't stress enough how good posture and not doing bad movements(especially in a rough manner) can be of any help with any type of pain. It helps me so much.
              Last edited by sweetness514; 09-05-2006, 05:31 PM.
              35 y/old female from Montreal, Canada
              Diagnosed with scoliosis(double major) at age 12, wore Boston brace 4 years at least 23 hours a day-curve progressed
              Surgery age 26 for 60 degree curve in Oct. 1997 by Dr.Max Aebi-fused T5 to L2
              Surgery age 28 for a hook removal in Feb. 1999 by Dr.Max Aebi-pain free for 5 years
              Surgery age 34 in Dec.2005 for broken rod replacement, bigger screws and crosslinks added and pseudarthrosis(non union) by Dr. Jean Ouellet

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              • #8
                Trudy -

                I had a lot of pain in my low back right along the top of my butt. It would flair up if I sat for a length of time or if I walked for more than a few minutes. What really prompted me to have surgery was the pain in my right leg. The pain began in my calf and radiated down into the top of my foot and into my big toe. I had spinal stenosis and the nerve at L5-S1 was compressed by bone. I suffered with this pain for over eight years. I had a laminectomy the same day as my fusion and I am happy to say I have not felt that pain once since surgery. You describe a burning pain in your tailbone and hip. I am not a doctor, I have just had the misfortune of being a patient one too many times. Based on my own experiences, burning pain, especially pain that radiates down into other areas is typical of neuropathic pain. I hope your doctor can figure out what's going on and get you out of pain soon.

                Sending positive thoughts and prayers your way,
                Brandi
                Brandi
                Congenital Scoliosis, 58* lumbar curve
                Combined Anterior/Posterior Spinal Fusion w/Laminectomy May 22, 2006
                L1-S1
                Dr. William Lauerman
                Georgetown University Hospital, Washington, DC
                Pedicle Subtraction Osteotomy @ L3, Posterior Spinal Fusion L2-L4, rod removal with re-instrumentation T10-S1 and Laminectomy February 5, 2009 to correct flatback
                http://brandi816.wordpress.com/

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                • #9
                  well the dr seems to think it is nerve root irritation or something like that so he put me on methylprednisolone ,cant spell it..lol.. it should take the inflammation away so hopefully it will.
                  Trudy T60 L70 posterior surgery feb.8th 2007

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                  • #10
                    Did you get it in the form of a Medrol dose pack? Worked wonders for me.
                    Brandi
                    Congenital Scoliosis, 58* lumbar curve
                    Combined Anterior/Posterior Spinal Fusion w/Laminectomy May 22, 2006
                    L1-S1
                    Dr. William Lauerman
                    Georgetown University Hospital, Washington, DC
                    Pedicle Subtraction Osteotomy @ L3, Posterior Spinal Fusion L2-L4, rod removal with re-instrumentation T10-S1 and Laminectomy February 5, 2009 to correct flatback
                    http://brandi816.wordpress.com/

                    Comment


                    • #11
                      yes i did, i got the generic form though but i guess is the same.thanks for letting me know it works :-) its very yucky to take though.
                      Trudy T60 L70 posterior surgery feb.8th 2007

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                      • #12
                        I appreciate your willingness to share your ordeal

                        I've read your comments and those of other interested people, and I've found much of it similar to my situation. 10 years ago, by X-ray, an orthopaedist identified that I had a 50% slippage of my L5 over my sacrum. At the time, he said it was difficult to see how I could walk with this condition, but my body must have adapted to it well. But since then, I have had many other symptoms that my primary care doctor could not pinpoint and did not relate it to the lumbar problem.
                        I had right hip pain, and he said it was sciatica.
                        I had right leg pain, and he said it was an extension of sciatica.
                        My right leg and foot began to have strong pain, and he did not worry.
                        My right abdomen became inflamed, and he did have a CT scan performed, but he could only say that it was not my liver, not my GI tract, but it was inflamed. He did not see any relationship in all of my symptoms on my right side, AND my MRI which showed this severe slippage on my right lumbar.
                        I eventually saw a good neurosurgeon, who did a new set of MRI's and he said I needed surgery. I said how soon. He said within 6 months, But I might be able to make it 2 years.
                        With this knowledge, I went back to my primary care doctor, and he said "You don't need surgery, But if you do, I'll read up on how to do it, and I'll do it for you". And he left the room with a smile.
                        I Went to a pain management doctor, who looked at the MRI and said "I can't help you". I need to get you to a orthopaedic surgeon or a neurosurgeon.
                        I was examined by the lead orthopaedic surgeon at the spine center, and without much discussion, he said "I don't believe you need surgery". I couldn't argue with him about this, so I thanked him for his opinion.
                        I've now seen two neurosurgeons and two orthopaedic surgeons. They all concur that I need surgery. From these spine doctors, I started to work with the one that was best known. He recommended additional tests, so I gladly did them.
                        Now with Pre-Op tests: Contrast Myelogram, CT myelogram, MRI's, there is a good bit of concern over whether surgery has been postponed too long and there is too much nerve damage. I didn't postpone this, my doctors did this.
                        I am still searching the internet sites for the best lumbar spine surgeons, and any information about the condition. I couldn't have gotten this far without my own searches.
                        A very good, highly respected orthopaedic surgeon that recommended that I have surgery and ordered my pre-op tests, is now much more timid about what he thinks he can do for me. In my 4 meetings with him, the first one being when he diagnosed me and determined that I should have surgery, he has not yet described the nature or magnitude of the surgery, the effect it will have on my life, and the realistic level of danger that I may incur.
                        Each day and each night I have to deal with a very high level of pain due to the L5 root nerves being crushed because there is no disc at that level. I get only a medium level pain medication, the strongest being hydrocodone. No pain management doctor will attempt to work with me and the doctors I deal with will not go out on a limb to address the pain.
                        Each day, it is a trial to get through the day with the pain, and then through the night with the pain and interrupted sleep. And each time the surgeon wanted me to do other tests or see other doctors, he sentenced me to more days of pain; seemingly he does not realize how much nerves can hurt when they are being crushed like this.
                        This has been my experience so far with back pain. I appreciate hearing from you and others with similar trials. I write this not to brag, but to give you and each person who reads this the knowledge that you have brothers and sisters going along with you in this journey to hopefully return our lives to "normal".
                        Last edited by richard miller; 09-09-2006, 10:22 PM.

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                        • #13
                          Do you HAVE scoliosis???

                          Do you have scoliosis????

                          If you do then only an adult scoliosis specialist is helpful;all the others have tunnel vision whereas a scoliosis specialist will take the whole spine into account--meaning balance and workload of the spine.

                          If you do NOT have scoliosis then see a spine specialist who specializes in complex spine issues.

                          Try to get a recommendation.
                          Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
                          Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

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