PDA

View Full Version : new member from uk



deb
03-28-2004, 06:32 AM
i've just found the site after several months of problems with pains everywhere, tingling and fatigue (diagnosed as spinal cord compression without x-rays/scans). I am 40 now, but diagnosed with scoliosis at 16, which I was told was mild. No treatment except a few exercises which I didnt stick to. Generally had v few problems until now, except for a touch of sciatica, and did years of lifting as nurse/midwife also had a baby myself.
Reading this site it is all starting to make more sense-I have duplex kidneys and only walked at 17 months so I think this is probably originally congenital and aggravated by sedentary lifestyle and being stressed out (I am pretty intense and a single mother).
I was very moved reading some of the entries and I am grateful to have had such a relatively easy time. However it is all becoming quite disabling now (relatively). I have just given up work but would like to be able to write/study, bring up my daughter and enjoy my life more...I hate the fatigue most.
I'm doing Alexander lessons and swimming regularly but feel I need more expert help-does anyone know of specialist physio in the UK?
thanks to everyone involved in the site, it is great to relate to people in similar situations.

ANDREA W
04-16-2004, 02:12 PM
hello deb
my name is andrea, i am 32 years of age and was born with scoliosis, but it has never really bothered me until about 16 months ago, when for some reason my spine has moved and trapped a nerve, i am having a scan to confirm this, as i am now having to self-catheterise too. i have been in agony now for months, lost my job and take morphine 3 times a day. i have also lost feeling in my right thigh, i have never spoken to anybody else with scoliosis before. it would be interesting to chat more !
best wishes

deb
04-20-2004, 05:55 AM
dear andrea,
sounds like you are having a very hard time. I don't really know much about scoliosis in spite of having one (mildly) but am happy to chat. I am also in Wiltshire, perhaps you would like to get in touch outside the forum. Not sure how one does this...
best wishes
deb:)

ANDREA W
04-24-2004, 10:15 AM
dear deb,

i have tried sending you a message outside the forum, but a message comes up saying you do noy wanted to be contacted privately. so i guess its some button you have to press to allow me to do this. i don't mind you having my e:mail address here, i will blame you if i get loads of weirdos though !!!! only joking

weston.lindsay@virgin.net

take care, hope to hear from you soon and we can do chat

andrea

TRACE
05-04-2004, 04:44 PM
HI
I WAS TOLD I HAD MILD SCOLIOSIS AT 15, HAD TESTS UNILL I WAS 19 THEN DISCHARGED.AM 36 NOW,I HAVE STARTED GETTING VERY BREATHLESS AND IN PAIN FOR ABOUT 2 YEARS BUT PUT UP WITH IT UNTIL A FEW MONTHS AGO, WENT TO THE HOSPITAL AND HAD TESTS DONE , MY LUNGS ARE ONLY WORKING HALF OF WHAT THEY ARE SUPPOSE TO BE.
I DON`T KNOW OF ANY DOCTORS BUT I AM ALWAYS HERE TO TALK.SORRY I CAN`T BE OF ANY REAL HELP, BUT AM IN THE UK SO IF YOU FIND ANYTHING THAT IS WORKING FOR YOU COULD YOU LET ME KNOW AND I WILL IF I DO. AT THE MO THE HOSPITAL HAVE JUST GIVEN ME BREATHING EXERCISES SO WE WILL SEE HOW THAT HELPS.
TAKE CARE AND I HOPE YOU FIND SOMETHING TO HELP YOU
TRACE