Hello everyone out there. My name is Nancy and I have a 5 1/2 yr old daughter that was diagnosed 12 months ago with Idiopathic Severe Juvenile Scoliosis.
The curve in her upper spine is 78.9 degrees and lower is 24. We are really scared and concerned about what her lifestyle will be after her surgery. We have agreed to go ahead with the surgery only for the simple reason that she wore a TLSO brace since August 2005 and we have actually seen her getting worse. She was measured at 58.3 last August and now she has progressed to almost 79.
She wore her brace in the first few months only for 16 hrs a day. We went about 3 wks straight without wearing it because the redness and bruising was so bad. We had it re-adjusted so many times that now she isn't even wearing it. She is suppose to so that it will be easier preparing for the surgery. We have placed it on her and within hours we can take it off just to either let her skin breathe or give her a bath and the blotches of red are so dominate on her skin, then they turn into bruises.
If anyone out there has gone through the sugery with their child, please shed some light whether it is positive or not, on how your child is doing afterwards. His/her recovery, lifestyle, and how they are adapting.
I appreciate all of your comments.
May God bless each and every one of us..
Just remember, whatever doesn't break us, makes us stronger...
Nancy
The curve in her upper spine is 78.9 degrees and lower is 24. We are really scared and concerned about what her lifestyle will be after her surgery. We have agreed to go ahead with the surgery only for the simple reason that she wore a TLSO brace since August 2005 and we have actually seen her getting worse. She was measured at 58.3 last August and now she has progressed to almost 79.
She wore her brace in the first few months only for 16 hrs a day. We went about 3 wks straight without wearing it because the redness and bruising was so bad. We had it re-adjusted so many times that now she isn't even wearing it. She is suppose to so that it will be easier preparing for the surgery. We have placed it on her and within hours we can take it off just to either let her skin breathe or give her a bath and the blotches of red are so dominate on her skin, then they turn into bruises.
If anyone out there has gone through the sugery with their child, please shed some light whether it is positive or not, on how your child is doing afterwards. His/her recovery, lifestyle, and how they are adapting.
I appreciate all of your comments.
May God bless each and every one of us..
Just remember, whatever doesn't break us, makes us stronger...
Nancy
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