Hello-
This would be my first post here. We have recently found out about our 14 mo. old, Miles, 30 degree scoliosis. It is SO much information, in such a short period..and still much of it up in the air. He goes in 2 weeks for his MRI, as they want to rule out (or in..) the possibility of a cyst on his spine- called a syrinx. I am overwhelmed, saddened, and frightened. Miles was ill as a newborn. We overcame that, and other than this latest news,he is vibrant, active, HUGELY happy!!
With an 11 year old, and a nine year old, it's hard to explain to them what will happen for him...as we dont know. Of course, I am madly researching as much as possible--and a bit disheartened at all of the conflicting info. At this early stage, I'm trying not to project too much..and enjoy every day for what it is. I remind myself to stay grateful that this is not something far worse-which seems to be getting my husband through a little better that it does me right now. I would feel redundant to continue on and on about my feelings--as I'm sure that all here can relate..but decided to get some support asap.
Y'know...Miles had six spinal taps at 48 hrs. old ( to rule out a suspected viral infection at birth) I'm wondering if anyone has info on if this could have played a role..(?) or has had a similar situation. Yikes- there I go projecting again. Realistically, we cannot plan until we recieve the results of the MRI on the 25th. Any responses appreciated-trying to hold it together.
Best to everyone here.
Milesmom
Mom to Miles 14 mo, Ben 9, Allie 11.
This would be my first post here. We have recently found out about our 14 mo. old, Miles, 30 degree scoliosis. It is SO much information, in such a short period..and still much of it up in the air. He goes in 2 weeks for his MRI, as they want to rule out (or in..) the possibility of a cyst on his spine- called a syrinx. I am overwhelmed, saddened, and frightened. Miles was ill as a newborn. We overcame that, and other than this latest news,he is vibrant, active, HUGELY happy!!
With an 11 year old, and a nine year old, it's hard to explain to them what will happen for him...as we dont know. Of course, I am madly researching as much as possible--and a bit disheartened at all of the conflicting info. At this early stage, I'm trying not to project too much..and enjoy every day for what it is. I remind myself to stay grateful that this is not something far worse-which seems to be getting my husband through a little better that it does me right now. I would feel redundant to continue on and on about my feelings--as I'm sure that all here can relate..but decided to get some support asap.
Y'know...Miles had six spinal taps at 48 hrs. old ( to rule out a suspected viral infection at birth) I'm wondering if anyone has info on if this could have played a role..(?) or has had a similar situation. Yikes- there I go projecting again. Realistically, we cannot plan until we recieve the results of the MRI on the 25th. Any responses appreciated-trying to hold it together.
Best to everyone here.
Milesmom
Mom to Miles 14 mo, Ben 9, Allie 11.
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