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sugs2780
06-19-2006, 11:22 PM
We are going to see Dr. Do tomarrow at cinncinatti childrens to see if Khyler is a canidate for the veptr procedure. Dr. Lenke's office called me on friday to tell me that they are putting Khyler's traction off for another month because the Dr. is too busy over the holiday weekend!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :mad: I am sooooooooooo angry how can you tell a person something is life threating for there kid and he needs emmediate care and then put it off for 3 months.

desheah
06-20-2006, 09:28 AM
oh corina!

how awful that dr. lenke put your appt off. :mad: at least you have some other options.

good luck at your appt today in cincinnati. did you and gail ever touch base? i'm crossing fingers and toes for you guys that you get some good advice and can move forward and treat khyler's scoliosis.

give an update when you can!

deshea

Celia
06-20-2006, 01:00 PM
This may seem like an isolated unfortunate incident - the fact that your son has fallen through the cracks - but stories like this are repeated countless times. It's very sad! Doctors should be held accountable.

desheah
06-20-2006, 01:11 PM
celia,

you are so right. corina, i hope you don't mind, but i looked up information on the website of wash u to file a complaint. i don't know where you went to see dr. lenke, but if i were you and that angry (which you have every right to be), i would file a complaint. here's the information:

St. Louis Children's Hospital

Patient Advocate / Padent Representative

Address: Guest Relations Specialist
600 S. Taylor, 2nd Floor
St. Louis, MO 63110

Telephone Number: (314) 286-0711

i hope you have better luck today!

all my best,
deshea

sugs2780
06-20-2006, 10:36 PM
thanks for the info deshea i will do that it's a shame that so many people get the run around i thought it was just us till i got on here it is jjust crazy something needs to be done about this....... if Khyler's curve was detected eairly and properly diagnosed maybe we would have avoided surgery all togeather.... :mad: