Hello all- I am so glad/ relieved/ scared/ but happy that I found this group!
I have ravenously read so many posts... eager to learn about your experiences, your recoveries, your coping skills. Let me say: you all are GREAT! I usually wouldn't post, I prefer to lurk... but I trust you all already.
I am 48 yo woman, Jamie, dx'd with scoli at late teens/ early adulthood. No, I was not screened in school. Every doctor I went to told me I was too old for surgery, but I do remember being strongly advised- that once I am past menopause, when my curve started to change- that was the time when I should consider surgery: not for correction, but for stabilization.
That time has come; I've had a surgical menopause due to endometriosis five + years ago, and even though I insisted on taking estrogen (love it!).. it seems I am shrinking. Weird, though, my curves are changing but NOT worsening- from 60+ thoracic I am now 54 degrees, and my 30 some sacral curve is now 45 degrees. Which - I beleive- is the reason I now have such horrible hip pain. I fear osteo. and I fear the side effects of Boniva/ fosamax ( the bone pain... don't we have enough bone pain already??)
I started looking into scoli on line, and found this site- praise God! My biggest fear is paralysis. Sexual dysfunction. Urinary and /or bowel incontinence. My worst fear is to end up paralyzed from the waist down after having a surgical correction. I haven't seen this discussed here- maybe I haven't read enough. I haven't used the search engine- I'm not really savvy about posting - so forgive me if I break any e-etiquette rules.
that's all for now- I feel I could write a book here, it is so incredible to have other people to "talk" to about this! no one at work understands why I don't go out after work- I'm really not anti-social, I'm in pain. At times I want to lie on the floor in my office ( I am so lucky to have a door!) - just because sitting causes such pain. and lately walking or standing causes the hip pain. I'm taking anti-depressants already. ANd I love Motrin/ /NSAIDS - breakfast of champions for me. Ok for real I will stop. thank you all for sharing- and I will check back periodically- I usually get on the computer on the weekends.
Can't do it at work, really- thanks again for all the SUPPORT I've already found here! Jamie
no surgery- no bracing- just crooked
I have ravenously read so many posts... eager to learn about your experiences, your recoveries, your coping skills. Let me say: you all are GREAT! I usually wouldn't post, I prefer to lurk... but I trust you all already.
I am 48 yo woman, Jamie, dx'd with scoli at late teens/ early adulthood. No, I was not screened in school. Every doctor I went to told me I was too old for surgery, but I do remember being strongly advised- that once I am past menopause, when my curve started to change- that was the time when I should consider surgery: not for correction, but for stabilization.
That time has come; I've had a surgical menopause due to endometriosis five + years ago, and even though I insisted on taking estrogen (love it!).. it seems I am shrinking. Weird, though, my curves are changing but NOT worsening- from 60+ thoracic I am now 54 degrees, and my 30 some sacral curve is now 45 degrees. Which - I beleive- is the reason I now have such horrible hip pain. I fear osteo. and I fear the side effects of Boniva/ fosamax ( the bone pain... don't we have enough bone pain already??)
I started looking into scoli on line, and found this site- praise God! My biggest fear is paralysis. Sexual dysfunction. Urinary and /or bowel incontinence. My worst fear is to end up paralyzed from the waist down after having a surgical correction. I haven't seen this discussed here- maybe I haven't read enough. I haven't used the search engine- I'm not really savvy about posting - so forgive me if I break any e-etiquette rules.
that's all for now- I feel I could write a book here, it is so incredible to have other people to "talk" to about this! no one at work understands why I don't go out after work- I'm really not anti-social, I'm in pain. At times I want to lie on the floor in my office ( I am so lucky to have a door!) - just because sitting causes such pain. and lately walking or standing causes the hip pain. I'm taking anti-depressants already. ANd I love Motrin/ /NSAIDS - breakfast of champions for me. Ok for real I will stop. thank you all for sharing- and I will check back periodically- I usually get on the computer on the weekends.
Can't do it at work, really- thanks again for all the SUPPORT I've already found here! Jamie
no surgery- no bracing- just crooked
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