I am a twenty-six year old female. I had a thorasic and lumbar curve that was progressing. January 2005 I had surgery. Since then I have been on a rollercoaster ride of pain. For about a week, I will feel allright, able to dance, hike, and play with my kids (all the things I love). Then I will go through about three weeks straight of severe, debilitating pain. The pain has been so bad that I once went to the ER thinking that there was something really wrong. The doctor that saw me took x-rays and told me that the only thing he could see was that one of my screws was not placed the same way as the others and maybe it was irritating the thorasic wall around my lungs. I got in to see my surgeon right away in regards to the pain and what the ER doc told me. My surgeon said that that was'nt possible but he did order an MRI. After the MRI, I saw him again. He told me that everything looked great and he said "I don't know what to tell you, people don't come out of this surgery in more pain." That was my last visit with him. I went to my family doctor because if my pain was not from the operation, then I needed to find out what it was. When I described everything to her, she told me that "to say that this was not a result of surgery was proposterous." She sent me to another back specialist for a second opinion, but he did not deal with scoliosis surgeries, so that did'nt help me any.
I've missed a ton of work because of the pain and I am probably going to lose my job entirely because of it. This is what my pain is like in it's most severe instances. I will get a sharp pain that feels like it's drawn horizontally acoss my upper mid-back. The pain quickly increases and becomes so bad that it hurts to breath and I can't take a deep breath. When this happens my husband always has to keep me from hyperventilating because the pain is so intense at this point I am sobbing but yet can barely breath. I also get intense stabbing chest pains. I carry on in this state for anywhere from four to six hours. I am literally crawling around my room trying to find some position that I can rest in. I can never lie down when it's this bad. These are the very worst times, other times, like right now, I will have swelling along the spine and be unable to use my right arm, unable to bend over, and unable to move my neck without extreme pain. When it is like this, I absolutely cannot bend my neck down as if to look at my feet.
If anyone else has similar pain, please let me know about it and what your Dr. has to say.
I've missed a ton of work because of the pain and I am probably going to lose my job entirely because of it. This is what my pain is like in it's most severe instances. I will get a sharp pain that feels like it's drawn horizontally acoss my upper mid-back. The pain quickly increases and becomes so bad that it hurts to breath and I can't take a deep breath. When this happens my husband always has to keep me from hyperventilating because the pain is so intense at this point I am sobbing but yet can barely breath. I also get intense stabbing chest pains. I carry on in this state for anywhere from four to six hours. I am literally crawling around my room trying to find some position that I can rest in. I can never lie down when it's this bad. These are the very worst times, other times, like right now, I will have swelling along the spine and be unable to use my right arm, unable to bend over, and unable to move my neck without extreme pain. When it is like this, I absolutely cannot bend my neck down as if to look at my feet.
If anyone else has similar pain, please let me know about it and what your Dr. has to say.
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