Hi, everybody,.. I'm so glad I found this site. I posted this same message at scoliosis-support, and they suggested I also attend this board as well. I'm 31 from Oregon and have 3 daughters. My oldest daughter, who will be 10 y/o this summer, had an appt yesterday afternoon with a Dr. who finally took me seriously that something is not right with her back. I have consulted with other Drs over the years, and none of them gave me the time of day, and worse, the last one mocked us, telling my daughter that she simply had poor posture and she needed to learn to stop slouching and stand up straight.
So, the x-rays show that she has Scoliosis, Kyphosis, AND Lordosis..... that's about all I know so far, and that we're being referred to a pediatric orthopedic surgeon in Portland. They should be calling us in the next couple of days to set up the appt. they said. They also mentioned that she'll probably get more films at other angles, and possibly an MRI, but not sure.
We don't know yet, but they also suspect a possible link between this and Neurofibromatosis because my youngest daughter & I both have it (NF, that is), and Scoliosis, etc. is common in NF. My youngest thankfully does not have it, although she does have the bilateral optic nerve gliomas which have been growing and she's being reccommended for starting chemotherapy (Sorry, off subject). Anyway, we'll be doing some genetic testing shortly also to see if there is a link to my oldest's spine curves,... goodness, she's curving in every direction.
My husband & I both had mild scoliosis as children,.. mild enough we outgrew it quickly and treatment was never required beyond a Ped. saying 'Scoliosis',.. the Dr today said that is probably what contributed to her condition being so much more than either of our's ever was, just the fact that we both had it... and then adding in the NF. Anybody know anything about this?
It doesn't seem too, too bad yet on the x-ray, but then again, I don't know anything about this... to look at her on the outside, it looks really bad. The Dr. said he was guessing maybe 15 degrees for the Scoliosis, whatever that means,.. (but I guess that's minor?) and has no idea on the Kyphosis or the Lordosis yet, but her swayback is so bad she often looks like her back is going to snap,..
Can anybody enlighten me as to how to interpret the meaning of the 'degrees'?,.. Also, how common is it to have all three regarding Scoliosis, Kyphosis, and Lordosis? Is that fairly common or not?
Can anyone suggest what types of questions I should be asking at her appt with the ped. ortho. surg.??? I'll be greatly appreciative of any suggestions and advice I can get,... I want to go loaded for bear, if I can manage it.
Thank in advance!
So, the x-rays show that she has Scoliosis, Kyphosis, AND Lordosis..... that's about all I know so far, and that we're being referred to a pediatric orthopedic surgeon in Portland. They should be calling us in the next couple of days to set up the appt. they said. They also mentioned that she'll probably get more films at other angles, and possibly an MRI, but not sure.
We don't know yet, but they also suspect a possible link between this and Neurofibromatosis because my youngest daughter & I both have it (NF, that is), and Scoliosis, etc. is common in NF. My youngest thankfully does not have it, although she does have the bilateral optic nerve gliomas which have been growing and she's being reccommended for starting chemotherapy (Sorry, off subject). Anyway, we'll be doing some genetic testing shortly also to see if there is a link to my oldest's spine curves,... goodness, she's curving in every direction.
My husband & I both had mild scoliosis as children,.. mild enough we outgrew it quickly and treatment was never required beyond a Ped. saying 'Scoliosis',.. the Dr today said that is probably what contributed to her condition being so much more than either of our's ever was, just the fact that we both had it... and then adding in the NF. Anybody know anything about this?
It doesn't seem too, too bad yet on the x-ray, but then again, I don't know anything about this... to look at her on the outside, it looks really bad. The Dr. said he was guessing maybe 15 degrees for the Scoliosis, whatever that means,.. (but I guess that's minor?) and has no idea on the Kyphosis or the Lordosis yet, but her swayback is so bad she often looks like her back is going to snap,..
Can anybody enlighten me as to how to interpret the meaning of the 'degrees'?,.. Also, how common is it to have all three regarding Scoliosis, Kyphosis, and Lordosis? Is that fairly common or not?
Can anyone suggest what types of questions I should be asking at her appt with the ped. ortho. surg.??? I'll be greatly appreciative of any suggestions and advice I can get,... I want to go loaded for bear, if I can manage it.
Thank in advance!
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