Hi, everyone
I'm new to this forum and I hope that I'll be able to get some help from others. I have a 10-year-old son with severe cerebral palsy who now has a 70 degree thoracic curve which is pushing on his left lung. His curve 6 mths ago was at 40-45 degrees. So it has progressed quite a bit in that time. I've been told by his dr. that a decision about surgery needs to be made. Since his scoliosis will most likely continue to progress. I'm between a rock and a hard place in regards to making a decision. My son has had pulmonary complications following two previous surgeries. He develops atelectasis simillar to a pneumonia. There is no doubt in my mind he would have problems after such a big surgery like this. He also has apnea as well. I'd like to know from other parents whose children have similar medical problems what their experience with spinal fusion surgery was like and any advice they could give me. As well as others who may have a big curvature 100+ degrees that they are living with and how this has affected them.
I'm new to this forum and I hope that I'll be able to get some help from others. I have a 10-year-old son with severe cerebral palsy who now has a 70 degree thoracic curve which is pushing on his left lung. His curve 6 mths ago was at 40-45 degrees. So it has progressed quite a bit in that time. I've been told by his dr. that a decision about surgery needs to be made. Since his scoliosis will most likely continue to progress. I'm between a rock and a hard place in regards to making a decision. My son has had pulmonary complications following two previous surgeries. He develops atelectasis simillar to a pneumonia. There is no doubt in my mind he would have problems after such a big surgery like this. He also has apnea as well. I'd like to know from other parents whose children have similar medical problems what their experience with spinal fusion surgery was like and any advice they could give me. As well as others who may have a big curvature 100+ degrees that they are living with and how this has affected them.
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