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UMKCwmn
02-10-2004, 02:02 PM
Anyone that is actually considering surgery should see a chiropractor--believe me, they work--or someone that specializes in TREATMENT of scoliosis rather than an orthopedic surgeon. Surgeons want to do what they do best, surgery(maybe they do it well). Thats what they want to do because thats how they get paid. It has a possiblity of parellelizing you. Normally, scoliosis will come back. The rod can cause damage. GET SECOND AND THIRD OPINIONS PLEASE. I've dealt with scoliosis for 5 years (I'm nineteen) MY grandpa and his siblings had it, my aunt, uncle, father, siblings and cousins all have it. None of us have had surgery for scoliosis. I have horrible scarring in my back from it, it's my main cosmetic problem, along with twisted and uneven hips, and uneven shoulders, and a protruding rib. I have used a personal trainer who specialized in scoliosis to help me relieve pain by weight training and other strength exercises. I've been through it, I thought I wanted surgery at one time. I was willing to do anything to get rid of it...but surgery won't. It causes more problems...Please get some more info before going under the knife.

sheilap
02-10-2004, 07:59 PM
May I ask you what your degrees are?

UMKCwmn
02-10-2004, 10:56 PM
If you're speaking of degrees, as in curvature, I don't know. I never had it measured, and am glad I haven't because if I knew it was, like, a 90 degree curve, I would probably think I couldn't do anything about it. It's a mind over matter thing, for myself. If you're speaking of degrees, as in College, I am currently a student at UMKC in Kansas City, getting a photography degree, but am credible, because I have dealt first hand with people that have been through doctors and surgery, spoken with nutritionists, and chiropractors, and people that specialize in this. I don't want to seem hypocritical because I don't know how bad my own problem is compared to others, but getting the right treatment from the right person will always be better, in my opinion. The short way isn't always the easiest or the most painless.

darkhall2003
02-12-2004, 07:23 AM
my curve us at 80% and it bloody hurts i can tell u and i havent hadmy operation yet but will do when i get notification

sheilap
02-12-2004, 01:15 PM
I was asking the degree of your curve. If it was 90 you would certianly know it. The pain would be aweful and your breathing wouldn't be so wonderful either. Your argument is interesting however it seems uneducated. I too saw a chiropractor who admitted that he could manage the pain but not correct the problem. I'm not sure what a nutritionist will do for your spine twisting. I wore a brace for four years and was able to get correction at the bottom of my s-curve however not the top. When I had my surgery I had lung capacity of 50% in one lung. If you think children and their parents volunteer themselves and their children for this very serious surgery you are wrong. I met many people during my experience that had the surgery...they all thought long and hard and weighed all of their options before having it as it is very painful. Having been through it I certianly would not call it a "quick fix" but maybe a last resort. So, while I think many people over react to scoliosis there are many of us who have or had a serious life threatening problem where surgery IS the only option to life a life without health complications. I hope some day there will be a solution that is less barbaric than the current procedure. I can tell you that I am quite grateful that I had the surgery.

sheilap
02-12-2004, 01:16 PM
Ben,
Hang in there! You will do fine! I had the surgery.....you'll be happy you did it.

UMKCwmn
02-16-2004, 08:25 PM
I do have some breathing problems--normally when I'm at college hauling around my backback, hunched over. I have pain pretty much 100% of the time...I'm not trying to convince anyone of anything, I just want people to weigh their options. Some don't hear about anything but the surgery or just living with everything. People will have to exerscise most of their lives, even if they do have surgery just to live, but injury while exercising with a rod in their back could happen (just as easily as without), but be more physically tramatizing because of what that rod can do to your body.

UMKCwmn
02-16-2004, 08:29 PM
Also, the nutritionist and the chiropractor refered me to a personal trainer. But if you read some research on scoliosis, I don't know if I believe it, but nutrition can help scoliosis. It's not just a bone disease. I've researched a lot for myself, but it's hard to remember everything and also back myself up in such a short amount of space and time. It could take me all day to reply to one of these, if I wanted it to.

Jess
03-05-2004, 08:31 AM
I completely agree with Sheilap on this one. I do think, however, that nutirition is extremely important for just overall health, not just for someone with health problems. I have always believed in this, which is why I am a vegetarian...a healthy vegetarian, that is. I also agree with the idea of exercise as a way to relieve pain and maintain a healthy body...because it does work.

However, I am also aware that nothing is going to get rid of the disease, not bracing, diet, therepy, or even surgery. Surgery is not for everyone, but it does help tremendously with pain and cosmetic issues that we all, or some of us, are dealing with.

To my knowledge, a chiropractor or exercise will not lessen the degrees of a curve, only relieve pain. Bracing only works for a few, and in my case, was never an option. This is why I have decided to have my surgery. The surgery, by the way, will usually not cause you to develop pain, it's the disease itself that gives you the pain, and pain should lessen quite a bit after recovery. Anyway, at 23, this was a tough decision because I am a senior in college.

And probably the most important point: It sounds ridiculous to say that surgery is the easy way out. My surgery is going to be in about 2 weeks, and I'm pretty sure I'll still think that this is NOT the easy way out. I'm just glad that I may not have to deal with as many back problems when I'm 55 (hopefully), which is why I'm having it in the first place.

Anyway, my point is, weighing your options is important, but don't discredit an option if you don't know much about it.

UMKCwmn
03-08-2004, 06:36 PM
I hate the fact that I feel like I have to defend myself, but I just do. I do know a lot, but not everything, about surgery, most people wouldn't have it if they didn't have pain in the first place, BUT the pain can worsen as you get older and your bones naturally weaken. If you're not healthy, your body will give you problems in many aspects. And no, a chiropractor will most likely not change the severity of the curve, but I am living proof that exercise can help...I haven't for a little over a week, and I am feeling it, mainly in my back...with in the first two weeks I had started training, my mom said she could see my spine was straighter...it's her opinion, but I agree with her. I don't know what else I can say. Surgery wasn't an option for me, because I don't want to have to worry about paralysis and there is no way I can be imobile for any amount of time.

racin2win
03-08-2004, 07:14 PM
It's fine to post our opinions on here, that's what we're entitled to do. However, I believe the first stated opinion on here is a bit uneducated. A chiropractor will NOT make your scoliosis away. Spinal fusion is probably your best bet because while you will always have scoliosis, the rods will prevent your scoliosis from getting any worse. A chiropractor may make you feel better, but they cannot prevent your curves from progressing as the rods are surgically placed to do so. If you have 90 degree curves, you obviously DEFINITELY need the surgery, or you will be crippled fairly young in life, and will continue to have respiratory problems. I highly suggest the surgery to you, and anyone else on here. Also, ANY surgery has the chance of paralyzing you...just by hitting a wrong nerve! A spinal fusion is not the only type of surgery that could paralyze you. How can you say surgery causes more problems? It more than likely CHANGES PEOPLE'S LIVES FOR THE GOOD. My spine is STRAIGHT now, my rib hum is completely GONE and I'm going to be more flexible now than ever! I HIGHLY promote spinal fusion surgery, JMHO :)

UMKCwmn
03-15-2004, 08:54 PM
For one, I NEVER said chiropractors can fix this, you misunderstood me. I said to see one to get their opinion. And, I know all surgery can paralyze you, but if this is the only reason you have surgery then that's your only risk. You can die anytime you get put under anesthetic...I'm not stupid. I also never said that my curve was 90 degrees. And the rods don't always work. Scoliosis can progress after the spine is fused and cause the rods to bend. Later problems with surgery could be even more pain, which isn't fun for anyone, accidently bending a rod from an accident or something else, which I have a friend who has, so it is possible, which means emergency surgery or permanent damage...no one thinks about this stuff or says it won't happen to them, I have researched scoliosis, I know what it COULD be caused by, because no one really knows, (unless it has to do with a muscular disease) I know treatments and risks, and consequences of the disease, etc. I'm not an expert but I am well informed. Your back may be straight and you may have an aesthetically pleasing back, and maybe your surgery went better than others, but some are unlucky and don't benefit from it, possible from a mistake from a doctor or a mistake of their own...you have to know the person and know if they are willing to work to keep theirselves healthy enough after the surgery before you can recommend it. There is too much at risk (like the before mentioned death) to tell everyone with a form of scoliosis to go have surgery done, just because it went well for you. I'm not completely against, I just think some people are being pushed the wrong way in their situation.

Mary Lou
03-16-2004, 08:03 AM
Sarah Ann...
Through all of your research, have you ever come across the fact that Scoiliosis is a rare side effect of a disease called Charcot-Marie Tooth? There is a great deal of my husband's family who suffer from CMT and none of them have ever heard of this being a side effect. I will be asking my daughter's orthopedic doctor next month about it, but I was just curious if you've ever heard of CMT or the connection with Scoliosis.
Mary Lou

UMKCwmn
03-16-2004, 01:38 PM
No, I had never heard of CMT. I'm not too familiar with things outside of more well known generalized problems. You made me curious, so I went to my university's website, and looked Charcot-Marie Tooth up in their electronic medical books. It says its one of the most encountered nerve diseases and common symptoms of it include muscle loss and weakness. That would be the link to it...muscle loss and weakness, which even if it's in another area of the body other than the back, caused the scoliosis similar to muscular dystrophy, or another like disease. That would be my semi-educated guess...

dapsbounce8
03-18-2004, 05:52 PM
I find your comments about surgery both uneducated and offensive. Please try not to be so pushy about your beliefs. Its about sharing your ideas, not putting others down.

UMKCwmn
03-18-2004, 07:07 PM
I apologize for offending you--that was never my intention...
This is a thread I started and have a right to state my opinion, but ever since I wrote it, I have been put down and made to defend myself about everything I've said. If something indirectly offends you, maybe you should just keep it to your self, then everyone would be a whole lot happier, because it really sucks being told that I'm, basically, stupid. SO, all the good I was trying to do, getting people to realize that some don't have to have surgery to get better, went down the drain. If anyone else has a nasty comment to make to me, I would really appreciate it, if you just kept it to yourself. Everyone keeps saying that this forum is for supporting each other, why do I keep getting put down? I never said anyone was stupid for having surgery...and I never thought I was stupid for doing something other than getting cut open to fix my back, but apparently I am.

racin2win
03-18-2004, 09:24 PM
I for one am not calling you stupid :) I guess I (like others on here) are wondering why you seem SO negative towards spinal fusion! Also, I NEVER said for anyone who has a case of scoliosis, to go get it fixed w/surgery. I believe if you have curves that exceed 50 degrees (especially your's being 90!) should consider the surgery. If you are personally not planning to get the surgery done anytime soon, what are your plans for the horrible curves in your back? I would not want to see you have to get any more respiratory problems, or see you get crippled in just a matter of years, because I'm sure you know that is what eventually will probably happen. I just hope you eventually will find in yourself to put a little more faith in orthopaedic surgeons and spinal fusion surgeries. Obviously you of course know (as I said earlier) you can get paralyzed from a lot of different things, or die under anesthesia, but you just seem really against this surgery. Do you personally know someone close to you that's had it done and it went unsuccessful or something? I just hope you find some kind of treatment that works for you because your curves are worse than mine were when I had the surgery back in November, and I wouldn't want to see them worsen and cause physical problems for you. We'll respect your opinions if you respect our's (and I'm not saying you aren't) but why don't you try and give us a chance to explain the benefits of spinal fusion, I truly think it would be for your good! JMHO :)

GeorgeDittmar
03-18-2004, 09:32 PM
wow man even me who is trying to keep surgery out of the the picture would do it if my curve was that freakin bad. i think surgery would be the best choice if your curve is that bad

dapsbounce8
03-18-2004, 10:55 PM
Sorry about the "attack" I made. Sometimes words written on the internet can seem harsher than they were meant to be.

I'm sorry that you feel put down by members of this board. I think its fantastic that you are trying to avoid surgery, just don't take it to far, you know? Good luck in the future.

UMKCwmn
03-20-2004, 08:02 AM
Thank you for the positive words, but I never said my curve is 90 degrees...what I said was, something to the fact, I've never let myself find out the actually degrees, because if it was 90 degrees, or somewhere around there, I would probably not think I could not do anything about it myself. "It's a mind over matter thing for me." There is no way my back is that bad, it was just an example. Most people don't know I have scoliosis until I lift up the back of my shirt. But thank you for your concern. My scoliosis progressed really fast, when I was about 14, and my main problem is the rib humps, which no one except me really sees, and a build up of a lot of scar tissue, which I've read if you get removed it normally just comes back as possibly more than you had before, so I still don't see all that down time (recovery time) from surgery as an option for me, I'm doing okay the way I'm going, and I'm dealing with what I have. I just know a lot of people feel the way I do, that the recovery time could be better spent, so I wanted people to know there are other options.

Imagerycaptured
03-15-2007, 09:08 PM
Hmmm....interesting. I am a "product" of spinal fusion *gasp* AND received my BA in Photography. I was diagnosed with scoliosis when I was 5 during my kindergarten physical. I was braced from agest 6-13.....so surgery was definately NOT a first option for me.....it's not usually ANYONE'S "first option." I mean, who WANTS to get sliced open and lay on a table totally out of it for 8-12 hours while people probe your open back? It in no way is a "quick fix" but at the same time just b/c a person doesn't want to "waste" time recovering, that's no reason not to get it if it IS needed. In my case, at age 13, during one of my routine check-ups along with x-rays, I was told my curve had worsened (thank you puberty and growth spurt) and that surgery was needed as soon as possible so the twisting of my spine would not affect my heart/lungs. I had not been in ANY pain up until this point. I had ALWAYS been an extremely active child (volleyball, basketball, and softball all through later elementary and junior high). I was told in June I needed the surgery, had it in August. Returned to school and could not do P.E. for a whole year...which was hard for me b/c like I said, I'd always been so active. So that was my 8th grade year. Yes, I could have been paralyzed during the surgery. But every time I get in my car to go somewhere, there is the CHANCE that someone could hit me and I could be in a severe car accident and become paralyzed too. For me, my RISK outweighed my "not wanting" to get surgery, so I needed it and I don't regret it. Once I entered my freshman year of high school, I tried out for basketball, and made the team. I played that my frosh and soph year. I ran track all four years of high school. Did cross country my senior year and the beckoning of my coach. I was the girls' teams' captain for both teams. I later on discovered from another x-ray that my lower crossbar in my back broke. I think this was due to the "charges" I took while on the basketball court. I NEVER let scoliosis keep me from doing things. Of course I had to be WISE and be cautious at the same time. Now, I am 26 years old. I have my degree in Photography and have worked a few years in that field since I graduated. I have since returned to school to pursue a career as an LVN and then onto an RN. I feel it is a calling of mine. I try my hardest to find my purpose in life and I love helping others. Why do I have scoliosis? Now that I have it, what can I do to raise the awareness or relate/help others who have it as well or those who might be going into surgery or are recovering from it? I'd like to work in the orthopedics field as a nurse.....possibly pediatrics. I feel I can empathize with those who have been through what I have.....or are considering it. And definitely let them know surgery is not ALWAYS the only option, but at times it CAN be simply b/c the person's health might be at a greater risk without it. It's not something to be taken lightly and for me, and I'm sure others, it's not a mind over matter thing....it's a real physical threat to our safety, health, well being, and even life. I have researched it a lot too, and even being in this nursing program learning about anatomy and diseases/abnormal conditions and their causes (idiopathic, genetic, congenital, etc.) has really helped educate me even further. Sorry for the "rant" and "life story" but I felt the need to share. Even if we don't agree, it doesn't mean I'm "against" you. We can share our opinions, yes, and still be respectful.

What type of subjects do you enjoy photographing?