Our daughter is tentatively scheduled for a January surgery to put a rod in her back for her 60 degree curvature. She is a special needs child, 12 yrs old but developmentally a 6 month old, and we have no idea what to expect. I have tried to do research on what to expect and the like, but to no avail, I haven't found anything that really explains what goes on in the surgery and what we can expect when she comes out of surgery, healing time, abilities and what not. We have been through many trials and toils with our daughter, from rare seizure disorder, to her passing away and revival due to 6 month DPT vaccine. This ranks right up there! It's almost a damned if you do, damned if you dont situation. We want her here for a while longer, so you get the rod. You don't want her to go through more pain than she can let us know she is having, and take the risk of her not living longer. We have never felt more helpless. She can't sit up on her own, or roll herself over when she is on her back. She can push up a little when she is laying on her tummy. We are going to have to have a feeding button put in her to keep her nourished and keep pain medicine down her. She aspirates fiercely and can't even drink water. It has to be thicker, and it can't take her breath away, as some pain medicines do. Any answers to questions, or heads up or anything to help us understand what we are about to go through would be appreciated.
Jason and Gwen Durham
Jason and Gwen Durham
Comment