I am new here

[bk4194]

Hi,

I am new here. I have congenital scoliosis.Its been diagnosed when I was 14.
Its really scary. My parents are looking for me to get married.

But I have a some questions.

1) If I marry, will I be spoiling others life too because of my disease
2) If I have children, will they inherit my fate

I dont want to rush and decide something which may have negative impacts on future.

[sweetness514]

If a person loves you they will wether you're at the top of your physical condition or not, and you shouldn't accept anything less. As far as children goes, a lot of people here have kids and not all have scoliosis, and not all experience so much pain that it enables them to have them.

Scoliosis is a day to day thing, and depends on everybody as far as pain and limitations.

I don't know what you meant by getting married but you do have some time to think about that as you're still very young ;)

Take care.

[bubbles1^]

I am 26 year old female. I was diganose with scoliosis when I was six months old. My parents and I didn't think that scoliosis was that serious. I didn't have any back problems until I was a Senior in High School and I had pulled my back. After I had went to the doctor on that. I didn't think anything more about it. Until I got pregant with my now three year old son, my doctor had notice that my spine is curve and that my breast bone stuck out further then normal. When it came time for me to have my son i was not dialating right due to my scoliosis so therefore I had to have my son by a c-section. I started going to scoliosis specialist in November of 02 and contuined until January of 04. He told me that I would need surgery but wanted to wait until my son was a little older. I have serve back pain everyday.

[BaDnOn]

Hey. I'm new here as well. I think about these questions all the time. I myself, being 26, realize that time is running out to get my life in some opportune position to father a family of some sort. Scoliosis only makes it that much more difficult. I'm not really sure if any chick is gonna want to stick around after learning how much discomfort I am in everyday. They haven't yet :) but there's more to it than that, of course. I think, though, I might take it upon myself to not have kids, unless, say, my kid can be genetically engineered. The world too overpopulated anyway. You're just gonna have to weigh the risks, I guess. Have congenital scoliosis doesn't necessarily mean that your kids will...

-BaDnOn

[Kristin]

hey BaDAOn,

I heard from my doc that scoliosis is only passed on by females, and even then they mostly pass it on to daughters. Males with congenital scoliosis do not pass it on from what he said. Research this and see if it pans out. Even if you could pass it on, who is to say how bad it would be! I am 34 and have a 2 and 4 yr old. Girls!! Scary but I am soo happy to have them and I turned out okay even after a 49 degree curve, surgery and all!! Yes my back hurts more often than most peoples but I love my life and wouldn't have wanted my mom to second guess getting pregnant. Did you know kids wearing braces to correct it sometime only have to wear it for 16 hours a day now instead of the old 23!! Hopefully if my girls do get it medical advances will have gotten even better by then. Good luck!!

kristin

[javaboy]

My $0.02... :D
1) My congenital kyphoscoliosis was diagnosed in between engagement and marriage. My wife has not let it bother her for one second. She doesn't particularly enjoy the days I spend in pain, but it's part and parcel of who I am. I guess like any marriage, there are the highs and the lows - it's just that our lows involve a lot of days lost to pain and illness. So don't get down about it - it is entirely possible to have a completely happy and normal marriage! Things will only become troublesome if either of you decide to let them. :)
2) I was told on diagnosis that it was unequivocally non-hereditary. I had absolutely no chance of passing it on. Which is good. Mind, mine is a bit different to most (lack of segmentation fusing T9-T11).

Hope that helps!
Martin Hughes

[dancerchick15]

hey~ a little background on me- i've had congenital scoli since birth..curve of 80 + degrees surgery at age 3 that fused twelve vertebrae which severely stunted growth in my torso...i still have a curve of about 55 degrees....i completely plan to get married one day....granted i doubt i can have children but i will look into having a surrogate mother or adoption. i'm not going to marry someone who can't accept this and its not like it would be a surprise while we were dating..by just looking one can tell i have severe scoliosis. if someone loves you they will understand. i can't imagine not getting married or raising children and i'm not going to let my scoliosis keep me from it!

[LindaRacine]

hey BaDAOn,

I heard from my doc that scoliosis is only passed on by females, and even then they mostly pass it on to daughters.

Hi Kristin...

I believe that's incorrect. While it's more prevalent in females, males can definitely have scoliosis, and pass it on to their children. The President of the National Scoliosis Foundation is a male with scoliosis, has a wife without scoliosis, and several of their children have scoliosis.

:-)

Regards,
Linda

[sweetness514]

You know while on the subject of relationships and love, I believe that it is in hard times like having health problems for example that you really see just how much a person loves you and if two people in the relationship really like each other's company and are devoted. I know that must sound like a cliche, and having been through my health problems and my husband has had his as well, it's hard at times but you really see if you really do want to be with this person and what they're about, as well as what you're about. Just my two cents :cool:

[BaDnOn]

Sorry I never replied here. I haven't done much research into this (too busy with calculus), however I believe that scoliosis is probably too complex to have a male/female division in genetic transmission. I'm sure that it requires quite a few combinations of alleles to produce affected offspring. This isn't eye or hair color we're talking about, but an intricate affliction. It probably just requires the right (or wrong) couple to be together. I doubt that all the genes reside only on X chromosomes, although I may be mistaken.

-BaDnOn