Hello, I wish to share with the NSF Forum my last experiences with our daughter's surgeons. I'm the father of Gaby who has kyphoscoliosis due to hemivertebrae, she is four years old.
She was born with an unusual genetic disease called Chondrodisplacia Puntacta. She has had three surgeries of the spine. The first surgery for posterior hemivertebrae fusion from T8 to T12, this surgery failure because of an infection with Staphicolocus Aureus. In the second surgery she was instrumented with two posterior rods from T1 to L1 and the hemivertebraes were fused. Unfortunately the surgery was infected again. The doctors kept the hardware and make an antibiotic treatment trying to get time for posterior fuse of hemivertebrae. Eight months later (November) all the hardware was removed. In that time the surgeons told us that we needed to prepare our daughter for a surgery with anterior approach.
But yesterday we met one of the main surgeons of our country. Despite of what was told to us he doesn't think about surgery for the moment. He say anterior fusing now is going to get more problems in the future that benefices now. He say the curve now was compensated and that there's posterior fusion in the thoracic region. This could stop the posterior growing of the spine, and allow growing by the anterior side of spine. With some time it could improve a little the kyphosis. The bad effect could be a phenomenon called Crankshaft that is why we are going to check ( starting each three month) with X rays the evolution of the curve. Now we have more time for praying. She will use now a Boston or Milwaukee brace.
Any one of you knows about crankshaft? How can we notice it is starting?
God bless all of you
She was born with an unusual genetic disease called Chondrodisplacia Puntacta. She has had three surgeries of the spine. The first surgery for posterior hemivertebrae fusion from T8 to T12, this surgery failure because of an infection with Staphicolocus Aureus. In the second surgery she was instrumented with two posterior rods from T1 to L1 and the hemivertebraes were fused. Unfortunately the surgery was infected again. The doctors kept the hardware and make an antibiotic treatment trying to get time for posterior fuse of hemivertebrae. Eight months later (November) all the hardware was removed. In that time the surgeons told us that we needed to prepare our daughter for a surgery with anterior approach.
But yesterday we met one of the main surgeons of our country. Despite of what was told to us he doesn't think about surgery for the moment. He say anterior fusing now is going to get more problems in the future that benefices now. He say the curve now was compensated and that there's posterior fusion in the thoracic region. This could stop the posterior growing of the spine, and allow growing by the anterior side of spine. With some time it could improve a little the kyphosis. The bad effect could be a phenomenon called Crankshaft that is why we are going to check ( starting each three month) with X rays the evolution of the curve. Now we have more time for praying. She will use now a Boston or Milwaukee brace.
Any one of you knows about crankshaft? How can we notice it is starting?
God bless all of you
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