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Hannah
07-09-2005, 11:22 PM
Is there anyone out there who has scoliosis, then has had a child who has been diagnosed with it as well? I believe it to be hereditary in my family - there have been slight cases of it on both sides - but I seem to have gotten the brunt of it - with a double curve. I'd like to have a baby in the next couple of years, and I'm wondering what the chances are of my child having it.

Thank you,

Hannah

Theresa
07-09-2005, 11:33 PM
Hannah, try using the search button. There was some discussion on here last year about that.

cub2007
07-13-2005, 05:53 PM
Hannah,

I'm 15 and had surgery for my scoliosis 2 years ago. We did not know that my mom had scolisis until i was diagnosed. I also have a younger brother and sister, but thankfully they don't have it; however, my brother is only six so their is still a possibility that he may develop it, but we will hope for the best.
Good luck with your decision
--Alicia

LaurenS
07-13-2005, 07:28 PM
hi hannah,
I was diagnosed with scoliosis at age 13 in 1974. Had surgery in 1976. My sister ( 2 years younger) was diagnosed in approx. 1979. She had her 1st surgery in 1984, but due to complications had to have another surgery approx. 2 yrs, later. We each have two children. I have two girls (19 & 10) and my sister has two boys (11 & 8). Yesterday my 10 year old was confirmed to have signs of scoliosis. Just made an appointment with the pediatric orthopedic group today. This, of course, was my worst fear. None of the other children have signs of scoliosis so far. My mother said that her grandmother spoke of an aunt who had a hump, but of course back then they didn't know about scoliosis. So, I would say that there is probably a genetic link in our case. Not a great story, but hope that this helped.

Jacque's Mom
07-14-2005, 09:27 AM
Hannah, I was diagnosed with scoliosis at 12 and had the surgery at 26 years old. I come from a vary large family and not one other family member has it. My two sisters are fine, but my daughter was diagnosed at 11 but SHE IS FINE. She is almost 19 and has a very mild curve (under 20 degrees), was not braced just checked every six months and now it is once a year. I guess it's the luck of the draw. That was my worst fear and especially being a girl. I will admit I was extremely upset but was ready to do everything necessary for her. Thankfully so far she's doing well. Just keep the faith!..... LYNN

HAnn521
07-14-2005, 02:02 PM
I also have a large family, apart from me, none with scoliosis!...I have an older brother with absolutely NO sign of it, and my mother and grandmother both have extremely mild cases of it with hardly any back problems other than that of usual older women...
I am just an odd ball in the family and I have somehow developed a severe curvature over the years....I would have to say not much of mine was "nurture" and more of it was "nature"....that is to say I believe that one's environment, activities & lifstyle during crtical adolescence has more to do with the development of scoliosis than anything! (in my case and my personal opinion)...
and just to agree with your worries, I too hope to have healthy scoliosis-free children one day!! Let's pray that it isn't easily carried down!

survivor
07-14-2005, 11:11 PM
Scoliosis can be hereditary, but there is no way to determine what generation it will hit nor can they say that you are born with a gene. I was diagnosed at 16 had surgery and at age 38 had a revision, I also have an upcoming surgery on August 17, 2005. I have 2 children a girl named Hannah also who is 18 and was diagnosed with it last year. Hers is still in the watch stage not bad enough for surgery, but she is having some pain. My son who is 13 Zachary complains all the time that his back hurts but he has no curve. I guess it could be something that is waiting to happen.

Don't be afraid to have children. I am 40 years old and if I would have decided not to have children just because of my back issues, I would have regreted it.

Good Luck

Dawn

flowerpower
07-15-2005, 10:26 AM
Scoliosis definitely runs in my family. My mother, 1 brother, maternal aunt have mild scoli. I was braced as adolescent, should have had surgery-didn't (regrets). One of hubby's brothers also has mild scoli. My son seems to be hit the hardest out of all. I wouldn't decline to have children because of scoli. My kids are the greatest joys of my life, couldn't imagine life without them.

FlowerPower

munchkin
09-14-2005, 04:03 PM
hi!
i have, my sis, my mom & her dad. yet no dr. has said it is a family thing. (i think it is)
i am 33 & have 3 kids- boy14, girl13,boy11. i too have it worse than anyone else. yet none of my children have had or have any symptoms... (that is watched close). although i had hard pregnancies and had to have a hystroectomy my children were all term, healthy and all 8.0lbs. IMO it was worth every pain!! hope this helps!

Alleycat
03-20-2006, 05:04 PM
Well I can say I back it up. For sure I have it, duh! but none of my three brothers do. My mother has it plus her two sisters (my aunts). But none of there children have it (only one to young to diagnose- girl; 9). Now my grandmother i'm not sure because she left when my mother was really young, but my great-grandmother did have it all the way up to her death last fall. My mother heritage is based strongly in the Appalachain Mtns and its known that several had scoliosis. well anyway, i lil family line of scolisosis.

Singer
03-20-2006, 06:45 PM
Flowerpower, I noticed in one of your posts on this thread that you said you regretted not having surgery for your scoliosis. Do you mind telling why -- are you in pain or do you have other symptoms?
Thanks -- just curious since I'm on the brink of scheduling mine and fighting doubts --
Chris

Sharon B
03-27-2006, 08:29 AM
Hi Hannah,
I too have hereditary Scoliosis, My Nan had it, my dad had it, my sister got it and so did I. I have had two boys though and they have NOT got it and neither have my sister's girls. It seems to be more prevalant in girls than boys for some reason, but can skip generations altogether. Take your chances and have you're baby when you're ready, you can only deal with things as they happen, we both have problems but we are glad we're here arent we?
Kind regards
Sharon Batty.


Is there anyone out there who has scoliosis, then has had a child who has been diagnosed with it as well? I believe it to be hereditary in my family - there have been slight cases of it on both sides - but I seem to have gotten the brunt of it - with a double curve. I'd like to have a baby in the next couple of years, and I'm wondering what the chances are of my child having it.

Thank you,

Hannah

The Professor
04-10-2006, 07:26 PM
Chances are highly likely, IMHO. My case is probably hereditary due to my mother's spinal deformities, and the fact that my sister has scoliosis too (although a milder curve). It might have affected my decision to have children had I know that I have it too at the time. My daughter is still very young, but I'm watching her like a hawk.

Gail
04-10-2006, 07:36 PM
No known scoliosis in my parents or my 3 siblings. No known scoliosis in any of my grandparents, aunts or uncles.

Kindest regards,
Gail

KWalkup
09-21-2006, 01:34 PM
Hannah,
I have scoliosis, my mother has it, my grandmother has it, my two sisters have it, only theirs is not a bad as mine. I belive that it is heriditary and I also belive that the first born child gets the worst case out of all the children. At least thats how it has worked in my family for generations now. My mom and I are first borns and we both have a more severe case of scoliosis than any of our siblings.

Hope this info helps you!! Bye

from oz
09-22-2006, 06:32 AM
Hi - i was interested to read this. On telling my mother that Kaitlin had been diagnosed with scoliosis her first reaction was "well no one in our family has it" (isn't that just typical??). A few weeks later she told me she found out that my cousin's daughter has it and then she found out that her own brother had it and had to wear a leather brace (or corset he called it) as a child which she had forgotten about. So yes i suppose it is in our family. I recently had an appt with the physio and she told me i have a very mild curve as well (I am 40), funny because i was screened in year 7 and have also had many chiro and physio appts over the years and no one ever mentioned it, i don't have the best back in the world either.
Our surgeon is rather blunt and first question was "anyone in the family with a crooked back"?
Mind you there are some far far worse things she could have inherited so we have to be happy this is something that can be fixed. Melinda.

MaryT66
02-04-2007, 09:12 PM
I was diagnosed with Scoliosis at the age of 12. My first visit with a Scoliosis specialist was back in 1978 at The Hospital for Sick Kids in Toronto to see Dr. Bobechko.
I am 40 years old and recently discovered that my paternal grandmother had Scoliosis. On my Mother's side of the family however I have three cousins, each one having one child diagnosed with Scoliosis ranging in age of 14-20 years.
Most back specialist/surgeon that I have visited in the past few years have asked if anyone in the family has this condition.
I believe there may be some proof of this condition being hereditary.

DebbiePoynter
02-19-2010, 01:40 PM
Hi there.
I'm new.
I went to an Urgent Care Er Tuesday Evening for possible Kidney problems and a UTI.
They did xrays and CT scans and on the report they said I have Lumbar Levoscoliosis.

My background and family history is complicated.
My biological parents died in 1985 when I was barely 2 yrs old.
My Sister and I were in foster care for about 3 yrs and then were adopted.
Our biological Father was married twice before our mother.
I have 3 half sisters and 1 half brother.
One full blooded sister.

Two of my half sisters are twins and are in their mid 30's.
They both have scoliosis.
Now I've been diagnosed @ age 26
My Full blooded sister has always had a hump at the top of her neck where it seems the top of her spine connects to her skull.
Now that I think about it, she's had it for a long time, it's not huge, but is noticeable when she has her hair pulled up, she just turned 31, so i am thinking she has a large degree curve form of scoliosis.

My oldest half sister has three children, and it in her late 30's, but not sure if she has it or not.
Also, I don't know if my half brother had it, he died in 1994 at age 24 from an epileptic seizure and a heart attack from hereditary heart disease.

Now that I know it seems to run in our blood line, I'm worried my 7 yr old son, and two daughters, ages 5 and 3 are at risk.
They already have the odds against them because their father, my husband, was born with Hydrocephalus (fluid around the brain) and spina bifida (exposure of spine and nerve endings), but luckily they didn't inherit those two genes and were born with no defects.
I would never wish the pain and heartache my husband has had to go through his soon to be 33 yrs of life.

I am not sure if this helps the mother, then child getting scoliosis, but that is where I am at right now, to see if i passed this on to my kids.

Hugs,
Debbie

JenniferG
02-19-2010, 05:09 PM
Welcome Debbie. Only my maternal grandmother had scoliosis in my family. And it was only mild and was untreated. I have two daughters who didn't inherit it and I now have three tiny grandaughters who I'm keeping an eye on.

txmarinemom
02-19-2010, 07:37 PM
Now that I know it seems to run in our blood line, I'm worried my 7 yr old son, and two daughters, ages 5 and 3 are at risk.
They already have the odds against them because their father, my husband, was born with Hydrocephalus (fluid around the brain) and spina bifida (exposure of spine and nerve endings), but luckily they didn't inherit those two genes and were born with no defects.

Debbie:

Hydrocephalus is only a true genetic defect in the case of X-linked hydrocephalus. It's typically a *symptom* of something else, and it is frequently found with spina bifida (a neural tube defect, I'm sure you know).

According to ASBAH, the risk of a SB parent having an SB child is 3%. The alpha feta protein test (given to pregnant women at 16 weeks) is a fairly definitive one. I don't think many people are surprised to give birth to a child with spina bifida these days.

I developed communicating hydrocephalus at age 10 (right after my scoliosis was discovered) - independent of any other identified condition. Remarkably, after a month of sustained intracranial pressure (estimated at 5-7x normal) there is no evidence of damage. Not even in my eyes - which actually crossed (total 6th cranial nerve palsy) and had near total bilateral retinal hemorrhages.

Pretty amazing.

My VP shunt, never revised, will be 31 years old this year.

Is your husband shunted?

Regards,
Pam