I'm new here and might be posting in the wrong spot.
My now 20 y/o DD was diagnosed with Left Thoracic Idiopathic scoliosis, in 1998, due to there being a 51 degree curve, she had surgery. Rods were placed, and they got a 27 degree correction. At the time we were told left thoracic was rare, usually "caused" by something, and tough to operate on, with small to no corrections. All sorts of test were done to make sure this was idiopathic. Her surgery has been very sucessful, except for some disturbing pains and twitches. Some numbness and tingling. Yesterday we were told she has a syrinx, which is causing all this. Starts in her cervical spine, they can't see much past the rods, and it is large enogh to consider surgery. But the results and/ or complications are not so great. Her rod surgery was bad enough, I never heard of this and frankly to scares me more then the scoliosis, and that surgery. Anyone ever heard of this? And any advice you have!!!!
Thanks
Lori
My now 20 y/o DD was diagnosed with Left Thoracic Idiopathic scoliosis, in 1998, due to there being a 51 degree curve, she had surgery. Rods were placed, and they got a 27 degree correction. At the time we were told left thoracic was rare, usually "caused" by something, and tough to operate on, with small to no corrections. All sorts of test were done to make sure this was idiopathic. Her surgery has been very sucessful, except for some disturbing pains and twitches. Some numbness and tingling. Yesterday we were told she has a syrinx, which is causing all this. Starts in her cervical spine, they can't see much past the rods, and it is large enogh to consider surgery. But the results and/ or complications are not so great. Her rod surgery was bad enough, I never heard of this and frankly to scares me more then the scoliosis, and that surgery. Anyone ever heard of this? And any advice you have!!!!
Thanks
Lori
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