Hello all, I am new to this forum, I post always on the CN forum....
My name is Tracy, and my daughter Megan is 10 1/2 yrs old and has CP due to a birth injury where she was deprived of oxygen for approx 30 mins....She is non verbal, non mobile, seizure disorder, cortical visual impairment, sleep apnea and scoliosis.....At Meggies last ortho visit her curve was at 48 without her TLSO brace and 38 with it....We go back on May 9th and see if it has progressed and if it has gotten much worse that horrible surgery word will be coming....It is the one surgery I fear so much......I was just curious if you all could give me some pointers here.....I am just so scared about this.....God is great, and if he takes us to it, he will see us thru it.....It is just so darn scary......
Tracy
My name is Tracy, and my daughter Megan is 10 1/2 yrs old and has CP due to a birth injury where she was deprived of oxygen for approx 30 mins....She is non verbal, non mobile, seizure disorder, cortical visual impairment, sleep apnea and scoliosis.....At Meggies last ortho visit her curve was at 48 without her TLSO brace and 38 with it....We go back on May 9th and see if it has progressed and if it has gotten much worse that horrible surgery word will be coming....It is the one surgery I fear so much......I was just curious if you all could give me some pointers here.....I am just so scared about this.....God is great, and if he takes us to it, he will see us thru it.....It is just so darn scary......
Tracy
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