View Full Version : Scoiosis, Hydrocephalus -- and Probably Both

Eddie Sand
06-09-2019, 10:20 AM
A long time ago (1959) I was diagnosed with severe idiopathic dorsal scoliosis and underwent (very successfully) the "heavy duty" treatment (body cast and spinal fusion) recommended at the time. But beginning about five years ago, I experienced difficulties descending, rather than climbing stairs, and a less-steady gait, especially when carrying something, The preliminary diagnosis was adult-onset Normal Pressure Hydrocephalus (NPH) -- what used to be called "water on the brain" -- but the condition did not intensify very much until I took a fall on my basement steps and suffered a blow to the head about four months ago.

Cases such as mine are often treated by installation of a surgical shut to divert excess cerebrospinal fluid (CSF), but my neurosurgeon wisely recommended both a lumbar puncture (virtually painless -- a pleasant surprise) and when the usual immediate, but only temporary improvement in symptoms failed to materialize, a 48-hour continuous lumbar drain with the same result. Surgery has therefore been indefinitely postponed, and the current strategy is to investigate the possibility of myelopathy (interference with spinal cord function); if this were to be addressed without improvement in mobility, the option of a second set of lumbar procedures and shunt surgery would remain open.

So I'd like to know if any fellow scoliotics have encountered this condition, and their experiences -- thanks in advance!

06-10-2019, 09:45 AM
Don, I know of one member here that had a shunt installed as a teen. This was a long long time ago....She didn't have any problems with it.

Your scoliosis story is amazing. 60 years of service is a long time.....

Careful with the falling. There have been reports of falls here, its never a good thing. I had a vertical collapse about a year ago (sleepwalking ?) which really screwed up my ankles, (touch big toe to shin) I was lucky I didn't hit my head. I have since laid down rugs in my bathroom as a protective measure. They cover up the beautiful ceramic tile work I had done.....

Be sure to let us know if you proceed with the shunt and or any extra scoliosis related work....