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RitaR
02-16-2019, 01:33 PM
Good afternoon. My first post so bear with me. Iíve had surgery 2 years ago from top of neck to end of spine rods and screws. Surgery 2 years ago was to take broken rods out and put in all new. What an ordeal! Again! Over the past few months Iíve been in excruciating pain! I canít stand but only for a few minutes. I have excruciating pain in one shoulder blade, down low and mid back. Sometimes to the point of tears because I fear itís the rods broken again. Again? I donít know if I can go thru this surgery again! I cannot bear that thought!!! My reg dr gave me hydrocodone and muscle relaxer until I see my surgeon in March. Iíve gone down the pity road many times! Why me! Anyone have their rods break more than once?

titaniumed
02-16-2019, 07:03 PM
Rita

I'm in shock.....why didn't you post? its been around 7 years....

I remember your huge curve, Dr Lenke did your initial surgery, and you were good a year after. What did he say 2 years ago when your rods broke?

Your the 2nd one here lately that broke rods many years (7) after initial fusion.

I am so sorry about all of this....

Ed

titaniumed
02-16-2019, 07:20 PM
Anyone have their rods break more than once?

FLT, Fierce like Tiger broke her rods twice at age 25. She wasn't fusing. She finally went to Twin Cities Scoliosis Center since she lived in Iowa and they fixed her up. I remember specifically since she mentioned that her surgeon told her that you just don't slap BMP on and expect it to work. BMP is only "on label" or FDA approved for ALIF otherwise, its off label for scoliosis surgery. I had a BMP ALIF procedure so I remember these things.

Again, a lot of years has passed since she was done. I hope she is ok.

Ed

RitaR
02-16-2019, 09:38 PM
hours for sx. He said he was very scared by the amount of blood I lost. I spent 3 days in icu after sx. Recovery went very slow. I always had a lot of pain it seemed. Then a few months ago I started having horrible pain. Itís been ever increasing ever since to the point of tears at times. I called St. Louis and they gave me arch appt time. Iím not sure I can make it that long. Pain is horrible!

titaniumed
02-17-2019, 01:12 AM
Rita,

If it gets out of control, go to the hospital. I suppose they will knock you out with an injectable for a pain break.

Can you arrange to see a pain specialist next week? Have you tried a Fentanyl Patch?

Ed

RitaR
02-17-2019, 03:44 PM
Iíve tried otc patches but not Fentanyl. Iím going to call Dr Lenke tomorrow and see if he will see me. I really liked him. I just canít imagine having sx in NY, ie how to get home. But, worry about that then I guess. I have to do something!

titaniumed
02-17-2019, 08:06 PM
Fentanyl is powerful stuff.....That's why they put it in a patch.

Why didn't you let Dr Lenke know 2 years ago before your rods were removed? Was it because he moved to New York?

Ed

RitaR
02-17-2019, 08:44 PM
Fentanyl is powerful stuff.....That's why they put it in a patch.

Why didn't you let Dr Lenke know 2 years ago before your rods were removed? Was it because he moved to New York?

Ed

Yes, I didnít relish the idea of traveling to NY, expensive trip. And, then youíd have to go back for the surgery. And, not to mention, after surgery how do u get home when u can barely walk.

RitaR
02-17-2019, 08:47 PM
Iíve had a couple incidences where the pain is sooo bad that itís almost like a lung deflates. Is that even possible? If a rod is broken can it impinge on a lung? Because at that particular time it took my breath away! Iím not one to whine, but this is worst pain Iíve ever had!

titaniumed
02-17-2019, 09:58 PM
Yes, I didnít relish the idea of traveling to NY, expensive trip. And, then youíd have to go back for the surgery. And, not to mention, after surgery how do u get home when u can barely walk.

I see.....Surgeries are not cheap. But you should or should have let him know. I would consider him your surgeon and they do need to know about our complications regardless of time frame, and location. He could have assisted your local surgeon without traveling.

The past is the past....

Ed

titaniumed
02-17-2019, 10:16 PM
I’ve had a couple incidences where the pain is sooo bad that it’s almost like a lung deflates. Is that even possible? If a rod is broken can it impinge on a lung? Because at that particular time it took my breath away! I’m not one to whine, but this is worst pain I’ve ever had!

Rita, If this is happening, I would see your GP or a local doctor tomorrow. Breathing is serious. Your GP should take you right away or refer you right away. Tell them its extreme lung related pain events.

This could be a non-scoliosis related lung problem, and they can see a lot with just a simple x-ray.

"Extreme pain" is an indicator that something is seriously wrong. Pulmonary complications kill people.

Self diagnosis is fruitless.

Ed

RitaR
02-18-2019, 07:36 PM
I tried calling Dr Lenke office but it was closed today due to holiday. I called dr Guptas office and left a message to see if they can move my appt up at all. Iím hopeful theyíll get back with me tomorrow. I did not sleep well last night at all.so much pain! I will keep u posted when I hear from them tomorrow. Thank you for your concern. If I donít hear by noon I will be calling them tomorrow. Itís certainly not good the degree f pain Iím in.

titaniumed
02-19-2019, 02:32 AM
Rita, right now, this is a local problem. Dr Lenke's office will tell you to deal with it locally. I would wait till this emergency is over.

If you call Dr Gupta's office, don't leave anymore messages, call until you talk with someone, tell them you are having elevated lung related pains and are having problems dealing with it, you need to see someone quickly, today. now. You have to be assertive on the phone. Don't you have his nurses or assistant's phone number? This establishing of contact, communication method is important.

Your not flu or cold sick are you? Its been colder than Antarctica in your neck of the woods lately.

Ed

RitaR
02-19-2019, 09:12 PM
I took you allís advice and called Dr Lenkeís NY office today. Iím getting X-rays done ASAP and sending to him and Iím set up with tentative appt to see him on Apr 4th in his NY office. But heís gonna call me once heís looked at the xrays. Then weíll know whatís what andgo from there. Iím calling about my xraystomorrow. I appreciate all your help and i will keep u posted.

Ldwc
02-24-2019, 03:19 PM
Good afternoon. My first post so bear with me. Iíve had surgery 2 years ago from top of neck to end of spine rods and screws. Surgery 2 years ago was to take broken rods out and put in all new. What an ordeal! Again! Over the past few months Iíve been in excruciating pain! I canít stand but only for a few minutes. I have excruciating pain in one shoulder blade, down low and mid back. Sometimes to the point of tears because I fear itís the rods broken again. Again? I donít know if I can go thru this surgery again! I cannot bear that thought!!! My reg dr gave me hydrocodone and muscle relaxer until I see my surgeon in March. Iíve gone down the pity road many times! Why me! Anyone have their rods break more than once?

Hi,

I too had surgery with Dr. Lenke, 16 maths ago.- Oct 2017. I am also in relentless pain and think my pain is coming from the hardware. I am considering having all of my hardware removed. Is this something you have ever considered? All of my test show that nothing is wrong but I do not want to live with this type of pain.

Lisa

Ldwc
02-24-2019, 03:23 PM
Rita, right now, this is a local problem. Dr Lenke's office will tell you to deal with it locally. I would wait till this emergency is over.

If you call Dr Gupta's office, don't leave anymore messages, call until you talk with someone, tell them you are having elevated lung related pains and are having problems dealing with it, you need to see someone quickly, today. now. You have to be assertive on the phone. Don't you have his nurses or assistant's phone number? This establishing of contact, communication method is important.

Your not flu or cold sick are you? Its been colder than Antarctica in your neck of the woods lately.

Ed

Hi Ed,

I am new on here and cannot figure out how to post a new thread. I had surgery 16 mths ago with Dr. Lenke. I am having horrible pain and all of my tests are showing that things are fine. I feel that my pain is coming from the hardware. Do you know anyone who has had their hardware removed, completely? and who they used to remove it? I am discussing this with Dr. Lenke as well. I cannot live like this without exploring all options.

Thanks for you help.

Lisa

titaniumed
02-24-2019, 05:19 PM
Real simple Lisa

Go to main page, select Forum (Up at the top)

Click on Surgical (revision) Adult patients 18+

Click on Post new Thread

================================================== =====================================

Rita had all her hardware removed and you can see how she is doing. There are not many "full" hardware removal testimonials since I have been reading here over 14 years. Partial rod sections and screws, yes, full, no.

If I were in your position, I would go to Hospital for Special Surgery and see what they say. (Dr Schwab) I would get a 2nd opinion at a main scoliosis center.
https://www.hss.edu/

HSS has a orthopedic excellence record that goes back to the Civil War. Possibly the best in Orthopedics in the world.

There is also Dr Errico and Dr Lonner....Both are highly respected scoliosis surgeons.

I would be extremely hesitant removing "All" my hardware unless there is a rejection or infection. If they can rule out the specific area by doing shots, then proceed by removing a screw if that's the problem. I would want to try to find the problem area and put a LOT of effort into it. You can also have a non-scoliosis related pain coming from somewhere else that has not been discovered yet.

Here is a study on progression after hardware removal (Age 10-21) Please realize the age on this one.
Loss of correction was 23 degrees. Larger loss with infection.
https://www.researchgate.net/publication/260040452_Outcomes_Following_Removal_of_Instrument ation_After_Posterior_Spinal_Fusion

Only 40% reported relief.

How old are you and where are you located?

Ed

RitaR
06-30-2019, 06:53 PM
Hi there. So..im still in dying pain. Tears sometimes and i have a high pain tolerance. Went to NY saw Dr Lenke and he said to us in person he could see why im in so much pain. Said he would take care of me. Then 2 weeks later his nurse calls and said Dr Lenke didnt have anything to offer me and that was that! I was shocked! Here we haf own all the way up therw..got the bone scan and ct scan he wanted then he says he has nothing for me. WHAT? and his nurse couldnt get off the phone fast enough. What am i suppsed to do, i asked her. She said, thats all he saud, ok? Ummmm...no! Cannot believe this circus!

RitaR
06-30-2019, 07:06 PM
Ed, where are the drs you mention above? I cannot do anything or im in horrible pain. At times, i can barely walk at work. Then, i wind bbn up going home to bed. Im nearly to end of my rope!

Thanks.

RitaR
06-30-2019, 08:10 PM
Ed, where are the drs you mention above? I cannot do anything or im in horrible pain. At times, i can barely walk at work. Then, i wind up going home to bed. Im nearly to end of my rope!

Thanks.

titaniumed
06-30-2019, 10:54 PM
Rita

I sent you a Private mail

Ed

Ldwc
07-01-2019, 02:20 PM
Real simple Lisa

Go to main page, select Forum (Up at the top)

Click on Surgical (revision) Adult patients 18+

Click on Post new Thread

================================================== =====================================

Rita had all her hardware removed and you can see how she is doing. There are not many "full" hardware removal testimonials since I have been reading here over 14 years. Partial rod sections and screws, yes, full, no.

If I were in your position, I would go to Hospital for Special Surgery and see what they say. (Dr Schwab) I would get a 2nd opinion at a main scoliosis center.
https://www.hss.edu/

HSS has a orthopedic excellence record that goes back to the Civil War. Possibly the best in Orthopedics in the world.

There is also Dr Errico and Dr Lonner....Both are highly respected scoliosis surgeons.

I would be extremely hesitant removing "All" my hardware unless there is a rejection or infection. If they can rule out the specific area by doing shots, then proceed by removing a screw if that's the problem. I would want to try to find the problem area and put a LOT of effort into it. You can also have a non-scoliosis related pain coming from somewhere else that has not been discovered yet.

Here is a study on progression after hardware removal (Age 10-21) Please realize the age on this one.
Loss of correction was 23 degrees. Larger loss with infection.
https://www.researchgate.net/publication/260040452_Outcomes_Following_Removal_of_Instrument ation_After_Posterior_Spinal_Fusion

Only 40% reported relief.

How old are you and where are you located?

Ed

Rita, I also sent you a private PM. Please call me, I would love to speak with you concerning your pain. I have done a lot of research and work trying to figure out what to do next. I would love to share with you what I have learned.

Lisa

susancook
07-05-2019, 03:01 AM
Rita,

So sorry about all of your pain. I may not have read all of the postings above, so forgive me if I suggest something that you have already said.

I suggest that you call Dr. Lenke's office back, talk to his nurse and tell her that what she told you was in direct contradiction to what Dr. Lenke told you. You need to know why he will not do anything. You need to hear it from him. The next spine surgeon that you go to will ask why Dr. Lenke won't help you.

Request a copy of his notes for the visit immediately so you know why he cannot do anything for you.

Do you have copies of all of the imaging that he did?

I have broken numerous rods and screws and have had them replaced.

Keep us posted. Take some deep breaths....if you can.... and advocate for yourself.

Susan

RitaR
07-06-2019, 11:56 AM
Hello Susan. I canít tell u how disappointed and heart broken I was when Dr Lenkeís nurse called me after all we did to see him,,,expense in flying there, not to mention the bone scan and ct scan he asked us to get and send to him. Then, his nurse calls and says ďDr Lenke has nothing to offer you...okay?Ē And, I thought she truly acted like she couldnít get off the phone quick enough. I quickly said ďUmmm, no, itís not okay. Thatís not what he said when we were standing in his officeĒ. And she said ďwell thatís what he says today. And she hung up! I was in Tears! Dr Lenke took one look at my xrays and said ďWell, I can see why you are in such horrible pain...look at this right here...Ē and he was watching me as I walked. The nurse could NOT get off the phone quick enough! She was borderline rude. Dr Lenke did my very first surgery and I still cannot believe he turned me away. He told us in the exam room he would be more than happy to take care of me again and he knew exactly what the problem is. Iím sorry to reiterate this but I really have a physical problem....and itís not something I can just put up with. Itís effecting my work life and home life. I canít do anything without dying in pain!

titaniumed
07-07-2019, 09:23 AM
Rita, I am so sorry this happened......its just hard to believe.

The good news is that he has seen something that is "standing out".... Most of the time, its hard to locate where pain is coming from.

I worked in severe pain for many years, working with severe adult scoliosis pain is pure agony.

Ed

RitaR
07-08-2019, 11:52 AM
The bad news ....Dr lenke said he had nothing for me..or his assistant who called me. I was shocked! He told us in the room he would be glad to take care of me and he could see what the problem was. Ugh!!!!

susancook
07-09-2019, 02:11 AM
Hello Susan. I canít tell u how disappointed and heart broken I was when Dr Lenkeís nurse called me after all we did to see him,,,expense in flying there, not to mention the bone scan and ct scan he asked us to get and send to him. Then, his nurse calls and says ďDr Lenke has nothing to offer you...okay?Ē And, I thought she truly acted like she couldnít get off the phone quick enough. I quickly said ďUmmm, no, itís not okay. Thatís not what he said when we were standing in his officeĒ. And she said ďwell thatís what he says today. And she hung up! I was in Tears! Dr Lenke took one look at my xrays and said ďWell, I can see why you are in such horrible pain...look at this right here...Ē and he was watching me as I walked. The nurse could NOT get off the phone quick enough! She was borderline rude. Dr Lenke did my very first surgery and I still cannot believe he turned me away. He told us in the exam room he would be more than happy to take care of me again and he knew exactly what the problem is. Iím sorry to reiterate this but I really have a physical problem....and itís not something I can just put up with. Itís effecting my work life and home life. I canít do anything without dying in pain!

Rita,

I hear:

- that you are in a lot of pain
- you heard Dr. Lenke look at the xrays and say, "Well, I can see why you are in such horrible pain...look at this right here..."
- his nurse called you and said that, "Dr. Lenke has nothing to offer you....okay?" You said, "No, it's not okay. That's not what he said when we were standing in his office". And she said, "Well, that's not what he says today".

I get why you are frustrated/confused, there is a disconnect in information.

My questions:

- Who was in the room with you when Dr. Lenke said that he sees on the xray why you are in such horrible pain? What did he point to? What does that person remember about the visit, what Dr. Lenke said?
- What was the follow-up going to be? Was Dr. Lenke going to schedule more surgery? PT? What? How did he say that he could "fix" whatever he saw on the xray that he said was the cause of the "horrible pain"?
- Do you have a written copy of the CT, bone scan, etc with the interpretation [radiologist's reading]?

Where are you going from here? You need to decide your course of action.

What would I do? [Knowing only what you have written as my guidance.]

- I would request a copy of the CT with radiologist interpretation, the bone scan, and any other labs or radiology that you had done in conjunction with the visit.
- I would request a copy of his medical notes from that visit.
- Review everything with a person [friend, partner, husband, etc] that can help you think this through.

Depending on the information/results of the testing, maybe post the info here and ask for advice.

- Does Dr. Lenke have a PA or NP that you have also seen? Request a phone call with that person.

It seems reasonable to ask for a phone visit with Dr. Lenke to ask him what he meant when he said that he could see what the problem is and then why did he change his mind? When you can set up the phone visit, make sure that you have your support person with you [??? that went with you to the appointment??].
Write down your questions because you will have a very limited time to talk and listen.

If he says that he has nothing to offer you....who would he suggest that you consult with for help with your pain?

I hope that some of this makes sense to you, because I think that I don't have all of the information about you and your problem.

I hope that you are able to find help.

Susan

Pooka1
07-09-2019, 06:05 AM
Rita I have been reading along with your posts. I think what Susan wrote is some very good advice.

There is some communication breakdown here. It sounds like he did see something on x-ray and in your gait but determined that surgery can't address it. If so he should have told you what he saw and what else to try... PT, something.

Don't give up. Now that you have imaging you can try another surgeon.

Good luck, Rita.

titaniumed
07-09-2019, 12:29 PM
There is some communication breakdown here.

Your not kidding....Rita did call me yesterday, and we had a good talk.

Its up to Rita in regards to posting here on her case, which of course is so difficult given the amount of pain she is in. Internet communication can be a difficult thing and with the amounts of information that all of us have, the facts can really jet jumbled. You cant cover everything by e-mail or texting, and if the telephone is scrapped, we might as well all be mutes. Nobody likes to use the telephone anymore which drives me crazy. Of course, in person is best.

I hope that she can finally get repaired and out of pain with the history that she has.....Fingers are crossed.

She does have all her diagnostics.

Susan, excellent post, you and I are on the same page. If I came up there, we could talk for days....

I just have to mention that in talking to many folks around here for years, many revision patients with incredible spine and scoliosis histories, how can I not mention my surgeon, Dr Menmuir, who pulled off some incredibly difficult surgeries on me. Of course there are no guarantees and things will happen with adult scoliosis surgeries, but still I am amazed at how well I came out. Its been over 11-1/2 years now.

Ed

RitaR
07-09-2019, 10:17 PM
Thank you Ed. I enjoyed our talk and appreciated your information. I will definitely keep you posted. Came home from work at 10am with severe pain and muscle spasms, breathing problems... not fun!
Spent most of today in bed.

RitaR
07-09-2019, 10:22 PM
Susan, I have a call into speak with Dr Lenke, or at least a request.dr Lenke requested I send him a ct and bone scan then I get to,she doesnít want to see me. Sounds kinda wonky to me!

susancook
07-10-2019, 12:01 AM
Your not kidding....Rita did call me yesterday, and we had a good talk.

Its up to Rita in regards to posting here on her case, which of course is so difficult given the amount of pain she is in. Internet communication can be a difficult thing and with the amounts of information that all of us have, the facts can really jet jumbled. You cant cover everything by e-mail or texting, and if the telephone is scrapped, we might as well all be mutes. Nobody likes to use the telephone anymore which drives me crazy. Of course, in person is best.

I hope that she can finally get repaired and out of pain with the history that she has.....Fingers are crossed.

She does have all her diagnostics.

Susan, excellent post, you and I are on the same page. If I came up there, we could talk for days....

I just have to mention that in talking to many folks around here for years, many revision patients with incredible spine and scoliosis histories, how can I not mention my surgeon, Dr Menmuir, who pulled off some incredibly difficult surgeries on me. Of course there are no guarantees and things will happen with adult scoliosis surgeries, but still I am amazed at how well I came out. Its been over 11-1/2 years now.

Ed

Ed, Call Dr. Menmuir and ask him to come out of retirement and help me and Rita!

Susan

RitaR
07-10-2019, 08:58 PM
I just wish it was that easy.
Iím gonna have to see someone soon because my hands are numb and tingly now..why Iím dropping so many things.

Pooka1
07-11-2019, 05:24 AM
That's caused by issues in your neck. Did you tell Dr. Lenke about those symptoms? Tell some doctor. Ed can advise on this.

titaniumed
07-11-2019, 11:38 AM
It sure does sound like the neck.... The neck affects the arms and the hands. Thumb, index and middle finger numbness is C5-6, C6-7. Herniation's also can protrude left, right, and center. Mine protrude to the left, so my left hand can get tingly and numb on some days. Stenosis in the neck is also problematic. I cant see any scoliosis surgeons not looking at the neck since its part of the spine package. Scoliosis patients have so much on the plate that they might not mention other problems that they see....BTW, your engine needs a complete re-build, AND you need 4 brand new tires. Its hard to reveal that much bad news. I am sure that head shaking and sighs happen after many of us leave the office. There are never any easy answers.

My neck has no spinal deformity at all, yet is a problem. Disc degeneration in the neck (C5-6 C6-7)comes in 2nd place after the lumbar. These stats are for everyone, not just scoliosis patients.

I am not rushing into neck surgery....

These problems that we have sometimes are not easy. Even if you pinpoint a pain producer, there is this element of risk that needs careful consideration. Not finding any pain producers makes it that more difficult.....but people will travel to seek out experts and not just having to do with spine. There is always hope that someone else will think differently and look with new and different diagnostics. Its important that diagnostic equipment manufacturing companies continue on with new imaging technology. Larger well known scoliosis training centers and specialty hospitals are the best chance that new technology is being explored. I am a strong believer in new technology and devices.

Rushing into surgery as adults is never something to take with a grain of salt. Scoliosis revision patients are the bravest people on the planet....the thing is that the odds of complication increase every time you go under the knife.

If you want to get struck by lightning, go hang out on a Florida golf course, but you will never get that hole in one if you don't try.

Ed

RitaR
07-11-2019, 08:28 PM
And,sometimes we donít have a choice. I know something is not right. I should not be in this much pain all day every day.

pS Ed, I didnít receive your last message. All I got was a blank page.

RitaR
07-29-2019, 09:32 PM
I have just tonite read all the followups on this thread. You guys are ALL the best. Because as I lay I on my bed dying in pain because Iíve been determined to do something that turned out to be too much for me, I think of all you guys giving me hope that one day, someday, I wonít be in all this pain every day. Some days it realily feels like this might be the time it literally never lets up. AS I continue working full time, I feel this pain every day all day.i come home from work, lay down for awhile before I do anything more...sometimes I fall asleep and then it turns into couple hours or more. For starters, im going to contact Twin Cities Scoliosis Ctr with my copies of my ct scan, bone scan and plain films. See what they say anyways. I canít keep this up the way Iím going.i will for sure keep you all posted, of course.

LindaRacine
07-30-2019, 12:03 PM
I have just tonite read all the followups on this thread. You guys are ALL the best. Because as I lay I on my bed dying in pain because Iíve been determined to do something that turned out to be too much for me, I think of all you guys giving me hope that one day, someday, I wonít be in all this pain every day. Some days it realily feels like this might be the time it literally never lets up. AS I continue working full time, I feel this pain every day all day.i come home from work, lay down for awhile before I do anything more...sometimes I fall asleep and then it turns into couple hours or more. For starters, im going to contact Twin Cities Scoliosis Ctr with my copies of my ct scan, bone scan and plain films. See what they say anyways. I canít keep this up the way Iím going.i will for sure keep you all posted, of course.

Hi Rita...

I could have written this. Prior to my first scoliosis surgery at age 42, I had a tremendous amount of pain. Thankfully, I was self-employed, so I could lay down in the late afternoon to relieve the muscle pain. It was the only way I could get through making dinner.

Although I tried a lot of different therapies, I look back now and wish I had found a good physical therapist to see if there was something more I could have done to avoid that surgery. I don't think PT works for everyone, but it works for a lot of people. I think the keys are 1) finding a good therapist, 2) making sure you're doing the exercises correctly, and most importantly, 3) being religious about doing the exercises every day.

--Linda

KathyInIowa
07-31-2019, 10:34 AM
I have just tonite read all the followups on this thread. You guys are ALL the best. Because as I lay I on my bed dying in pain because Iíve been determined to do something that turned out to be too much for me, I think of all you guys giving me hope that one day, someday, I wonít be in all this pain every day. Some days it realily feels like this might be the time it literally never lets up. AS I continue working full time, I feel this pain every day all day.i come home from work, lay down for awhile before I do anything more...sometimes I fall asleep and then it turns into couple hours or more. For starters, im going to contact Twin Cities Scoliosis Ctr with my copies of my ct scan, bone scan and plain films. See what they say anyways. I canít keep this up the way Iím going.i will for sure keep you all posted, of course.

Hi, Rita. I am so sorry you are living in so much pain. I hope you can find some answers soon.

I had my surgery 3 years ago at Twin Cities Spine Center. My surgeon was Dr. Joseph Perra. He gave me my life back. I really like him as a surgeon, but also as a person. Anyway, I'm sure they are all good at that facility. Please keep us posted on what they tell you.

Kathy

RitaR
08-02-2019, 09:24 PM
Oh Kathy,
I cannot tell you how bad the pain is! I just can bearly make it. The pain is so bad and just disabling. Iím almost to the point I canít stand it. Iím missing work. I come home from work and straight to bed. I wouldnít recommend this for anyone! I just donít know where to turn! I try to get ahold of Dr Lenke since he did my first surgery but no one returns my call. Iím soooo frustrated!

jackieg412
08-04-2019, 07:29 AM
That is really tough. It does seem if someone should return your call. Maybe it is time to move to a different doctor. Keep trying. It won't move quickly but try at a larger teaching hospital. Where do you live?

Ldwc
08-04-2019, 02:52 PM
Oh Kathy,
I cannot tell you how bad the pain is! I just can bearly make it. The pain is so bad and just disabling. Iím almost to the point I canít stand it. Iím missing work. I come home from work and straight to bed. I wouldnít recommend this for anyone! I just donít know where to turn! I try to get ahold of Dr Lenke since he did my first surgery but no one returns my call. Iím soooo frustrated!

Hi Rita,

I am so sorry for your pain. I also had the same experience with Dr. Lenke and his team. I have moved on to another Dr. That I am hoping will help me and I pray you can find someone else soon as well. No one should live in pain. Best of luck to you.

Lisa