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JudyBug
02-21-2017, 09:29 PM
Hello new community! I'm having a two-part fusion procedure next week at Georgetown Univ. Hospital in D.C. Besides having an "S" curve of 56 and 68 degrees, I also have a peripheral neuropathy -- Charcot-Marie-Tooth (CMT) disease. CMT patients have weak hands and leg muscles, which means I'm unable to squat to bend down and buttoning shirts is problematic. I have two questions: 1) Has anyone been a patient of Dr. Fred Mo? 2) Do any other Forum members suffer with CMT.... I'm looking for advice on how they may have made adjustments and how long they were in rehab facility. I've been told to expect a week in the hospital and 1-3 weeks in a rehab facility.

Judybug
50ish female, married, two teenagers
adolescent scoliosis (Milwaukee brace)
soon to have cages L5 -- S1 and fusion T4 to pelvis

LindaRacine
02-21-2017, 09:59 PM
http://www.scoliosis.org/forum/showthread.php?15220-Charcot-Marie-Tooth-(CMT)&highlight=charcot

titaniumed
02-22-2017, 12:26 AM
Hi Judy,

Next week is right around the corner....

Can I ask about your CMT? Was this diagnosed as an adult?

Welcome to the forum

Ed

JudyBug
02-22-2017, 09:14 AM
Hi Ed, CMT1A was diagnosed in early childhood. I'm fairly independent. I do wear AFOs and avoid marathons, extensive hiking and weight lifting :)

titaniumed
02-22-2017, 07:00 PM
Judy, I can see marathons being out with the foot drop issues. My father had ALS and had the same problem....He was diagnosed late in life....

Have you been waiting a long time for this? and are you ready? Some of us cant wait for surgery and some of us wait forever....like me. My pain was out of control and didnít have a choice.

I tried a search for Dr Mo here, and didnít find anything. But I see he did a fellowship at HSS...which is good.

Wishing you all the best.

Ed

JudyBug
02-23-2017, 10:27 AM
Thank you Ed and Linda for your help.